Pain for Sale

I've been away from my blog for so long because in August, I relaunched my Etsy shop (an online site that sells handmade goods from all over the world), which had been sitting dormant since 2007. And every day since...I kid you not...I've been putting in a good eight hours a day, sometimes more. I'd no idea what a gargantuan...and satisfying...task this would be.

I owe it all to quitting smoking exactly one year ago (March 22, 2011), which unleashed a shocking amount of creativity. Yes, the smoking was obviously bad for my already fragile health, but as I was obsessing about it so much, it was also bad for my mental health, as the guilt trips were apparently eating me alive. Once I stopped smoking, it was as if there was nothing to think about anymore. I was free in a brave new world that didn't include lighting up, and I was positively shocked at just how much mental real estate the guilt had devoured.

At first my creativity exploded all over the place. I was painting again, writing songs again, I even made a YouTube video. I was also painting furniture and doing crafts like making paper roses, even creating bouquets that I would then give away. (!?) In short, even though I was still in pain, I was excited about everything, but soon realized that I was on my way to becoming the jack of all trades, master of nothing.

So I whittled it down to this: I need money, so which of these pursuits is the most likely to bring in some much-needed cash?

The answer was to use my art to create all kinds of funky items to sell in my Etsy shop, and with that decision, I've yet to look back. In the seven months I've been doing this, I've made over 170 items, which include art originals, art prints, pendants, lockets, rings, journals, with even more items in the pipeline.

Since the relaunch in August, it's indeed been a curious time, as certain days I feel like my old self again, so full of joy and excitement, literally bouncing out of bed in the morning, eager to start my day. But it's also been a period of alarming increasing pain in my face, which has required an increase in my pain medication. I've no idea what's going on, but obviously the necrosis in the bone is spreading, and I'll need to get more surgery...and soon.

Aside from the pain, which is excruciating, I'm just so afraid of this condition getting worse overall. I read recently that it can even spread to other bones in my body, not just my face, which is info I did NOT need to hear. I worry enough as it is.

I was going to start a new blog that focused just on my art and my Etsy shop, but I'm not sure I can split myself like that, as my art and my pain, and even the shop, are all so intertwined. So I'll start combining things and see what happens.

My concern is that I don't want to seem like I'm using my pain to hawk my wares, as that would indeed be tasteless. On my bad days, I can write those suicidal-type posts, where I'm pouring my heart out to my readers, literally in tears. "But by the way...have you seen this week's featured necklace...ON SALE?" That would be crass, right?

Actually, this week's featured item is a giclee print, below...just $15! Grab it while you can! (sigh...)

New 8" x 10" print: "Sahara"
The shop: maryannfarley

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I Seem to Have Misplaced My Life

Lady Gaga is everywhere. When I scan the channels there she is--in yet another interview, another video, another performance, another commercial. And I admit, I can't get enough of it.

But while I'm enjoying the ride, there's a lingering malaise that's sitting in the pit of my stomach like an undigested dessert, and I'm getting a tummyache.

It's strange listening to Gaga, because her music has reignited a love of pop that I haven't felt in a long time, and I feel something like a teenager again, when music was the sustenance of my existence. But here's the rub: I'm not a teenager anymore--far from it, in fact--and all that went with my love of music in those days is long gone.

For example, when I listened to pop music as a young person, it stoked the dreams of me doing that myself one day, and so much of what I chose to do was put towards making those dreams a reality. As a kid, I dutifully took my music lessons, and as I got older, I joined bands, developed my songwriting and performing abilities, put my own band together, and hit the road. I recorded and released two CDs, was a critics' darling, and came close to publishing and record label deals, which always ended up falling through.

Undeterred, I kept at it, but as the years began to pass, an eerie feeling soon emerged, which was this: If my dreams don't come true, if I don't end up a truly professional singer/songwriter (who no longer needs the day job), then what will happen to me? Who will I be without my dreams, or worse, without those dreams fulfilled?

For years, even decades, I didn't allow those worries in, because like any good young person, I thought I would live forever. And I believed, perhaps naively, that provided my heart was in my work, as long as I didn’t sell out, then everything would turn out fine. There was nothing to be concerned about. I worked hard, my music was good, and I was committed. What could go wrong?

Well, what went wrong far exceeded anything that I could have imagined in my wildest dreams, as my health, which was never very good in the first place, took a dive in 2004 that brought me to a full stop. And just like that, it was all over.

While I’ve pursued other creative interests during this time, like writing and painting, and even dance for awhile, music will always be my first love as songwriting is what I do best. But when I became so ill and was racked with such unrelenting pain, there just wasn’t anything to write about anymore, and I knew I was done for a very very long time, maybe for good.

Whether it was creative exhaustion or the inability to put physical suffering into a song lyric (or a combination of both), I knew that my music days, for the most part, were behind me, but I was just too sick at the time to grieve over it, as most of the time, I was just trying to stay alive.

But in the last few months, I’ve noticed that my spirits have picked up, which has led me to picking up my guitar again, right around the same time Lady Gaga began promoting the release of her new disc. While her songs inspire me so, I painfully realize that I’m no longer the teenager who can fantasize that I’ll be like her one day. And frankly, I don’t know what to do with these feelings.

In short, I feel like crying all the time it seems, despite my rebounding spirits, because the days of dreaming about a music career are over. Let’s face it: No record company is looking to hire a 52-year-old pop star.

Some have suggested that I get back into the game as simply a songwriter, but even that takes money (to record demos), hence the realization of another grim reality: I’m flat broke. This illness has wiped me out so completely that I live in a Section 8 HUD apartment, am on Social Security disability, and am in chronic pain most of the time. This is NOT how I expected my life to turn out.

So when I see Lady Gaga in all her glory, talking about how she “stuck to it” to achieve her dreams, I think of the millions and millions of other aspiring performers who also gave it their all, sometimes for their entire lives, and have ended up with absolutely nothing, other than some wonderful songs that no one knows or cares about.

On a positive note, I’m so skilled as a songwriter that I no longer have to hone my craft for a lifetime in order to pen a tune. Instead of dreaming about it, I can pick up the guitar or sit at the piano and just do it, provided the inspiration is there, which is a BIG proviso, by the way. Without inspiration, I’m no better than a no-talent hack with nothing to say.

But the negative note seems to be ruling the day, it seems, for at least this day. I just heard a passing car blasting Gaga’s “The Edge of Glory,” which is an edge I sat on for a very long time. The scales just never tipped my way, and there’s a giant ache now where my dreams used to be.

Maybe it’s time to grieve for them, as I gave up everything to have them…marriage, children, and careers in other fields. I went for it 100 percent without a net, and now I’m splat on the ground after having fallen off the wire.

I don’t regret it—not a bit. But I feel just so so sad.


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Who is God?

When I first started this blog over two years ago, the biggest issue I grappled with, other than the chronic pain, was whether or not God existed. My suffering was so great that my vision of the world became incredibly narrow, and it seemed that all I saw was suffering all around me. I couldn’t understand how God, if he existed, could let it happen.

I’ve been revisiting this question again in recent weeks as I find myself praying more, something I never thought I’d ever do again, and I’m wondering what has changed. Have I forgiven God for my state, or has my understanding of a greater power changed?

Yesterday I was doing some research, and I revisited the Amazon listing of When Bad Things Happen to Good People by Harold Kushner, a rabbi who lost his son to the premature aging disease, and was intrigued by the reader reviews. Many people gave the book five stars, thanking the good rabbi for restoring their faith in God again, but many also gave the book just one star, as they found themselves depressed by his belief in an impotent god—a god who suffers with us when we suffer, but who is powerless to intervene on our behalf.

Many readers had obviously suffered terrible tragedies in their lives, like losing a child, and they just couldn’t accept the notion of a supreme being not being able to step in with a miracle. One bereaved mother sadly said of her life, “I will never believe in God again.”

I remember having these exact feelings about my own life and about the book as well, as an impotent god seems about as good as having no god at all. While Kushner’s writing is beautiful, and his story is heartbreaking, I remember feeling sad when I first read his book, as perhaps back then I just didn’t want to believe that we live in such a random world.

Yet when I stop and think about it, I think the rabbi and I have come to similar conclusions about life and suffering—first, that random things do happen in this world, and second, that what we can count in terms of the divine is compassion, for ourselves and others.

Yet where we differ is perhaps the notion of God himself. The rabbi believes that he does indeed exist, and in his book I got the feeling that he just didn’t want to let go of the god of the Old Testament—the father figure sitting majestically in Heaven, overseeing us all in our daily lives. But what I’ve come to believe, I think, is that God is more of a force—something that moves within each of us, and manifests in the form of all good things, like truth, compassion, art and love.

While it’s true I suffer day in and day out (today was a very bad day, in fact), I have to remind myself that there are countless researchers and scientists out there who are uncovering the mysteries of pain every day, many of whom no doubt witnessed a loved one in their own lives who suffered with relentless pain.

They are motivated by compassion and love, as are all those who start research foundations to find cures for diseases. So many of these organizations are named for those who lost the fight, and it’s the loved ones left behind who become determined to right the wrong, so to speak, by not letting their loved ones die in vain. They are moved by compassion not to see other families similarly destroyed, and so they take up arms to raise money, to organize walkathons, to stimulate research.

When I pray these days, I find myself talking to the “Great Spirit,” and I’ve no idea why that particular name has surfaced. For one thing, it’s genderless in my mind, and I feel it almost like the wind—something I can’t see but that I know is there. It’s the source of all goodness, and when I speak to it, I can sometimes feel its love for me, as strange as that may sound. It’s more of a sense that it’s a force that is on my side, that is there to guide me through this treacherous minefield of life, and when I take the time to surrender my questions, I do indeed get answers, and this often startles me.

Don’t get me wrong. I’ve by no means figured anything out, and I doubt anyone ever will. There’s simply no way any of us will ever figure out the mysteries of the universe, no matter how deep science may delve into the matter. All we have to go on is the proof as it arises, and the proof for me are these answers I seem to get when I take the time to look deeply into my heart and humbly ask for guidance.

Do I think this is God? Whatever it is, I’m grateful for its appearance, but I’m not suffering any the less because of it. In fact, most days still blur in this lingering malaise, and I do ask frequently why I, or anyone, have had to suffer at all.

Yet in the grand scheme of things, if there is indeed an afterlife, my life on this planet will truly seem like a fraction of a second when one thinks about how long our universe has been around. And maybe then I’ll understand why I had to suffer so during this particular tenure of my life on Earth.

Does that understanding of things help me right now? A little—for the moment, anyway.

Today I watched a History Channel show about the blood diamonds in Sierra Leone, and saw suffering on such a grand scale. It was an interesting juxtaposition to watch the horrors depicted in the show interspersed with commercials that reflect the beautiful lives we enjoy in our own culture. It made me want to do something, other than just sit and watch in horror, as I know just how frightening and harrowing life can be. I thought that perhaps I should look for a job with one of these organizations and put my writing skills to better use than just as a means to pay my bills.

Perhaps that’s the god force working within me—the tangible manifestation of compassion born out of the terrible suffering of my own. Maybe that’s who and what God really is, and maybe that’s enough—for now, anyway. It’s all rather new.


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But for the grace of God go I

For my birthday last week, my dear friend Janet gave me the book The Power, which is the much-anticipated follow-up to the bestseller The Secret by Rhonda Byrne.


Even though I never read The Secret, a number of years ago, Janet and I were big fans of the Law of Attraction (LOA) after our discovery of the writings of Florence Scovel Shinn, who wrote about the phenomenon during the 1920s.

As anyone who is a fan of these books can attest, when you first learn about the Law of Attraction, you can feel quite excited, as suddenly you’re given this road map to life that actually has hard and fast rules to live by—rules that if supposedly followed will bring limitless joy and prosperity into your life.

What I always loved about Shinn’s work was that she didn’t just write about the LOA; she actually gave you exercises to do to activate it in your life. And what was so exciting was that when I began to employ her ideas, I did indeed see my life begin to change. I began to practice gratitude, I did my daily affirmations, I envisioned a better life for myself and I have to say, it began to be something of a heady experience—to live by these guidelines and have them produce an actual result in my life, for never had I felt so joyous and free, so in tune with a power that was greater than myself.

So why then when I read The Power this week did I feel like punching Rhonda Byrne?

The book is filled will relentless optimism, basically saying that when we activate love (which is “the power” of which she speaks), everything will change, and if we can activate it enough, we’re guaranteed a blissful existence beyond our wildest dreams. She peppers the book with extraordinary tales about ordinary men and women who made simple attitude adjustments and then found themselves in the midst of a miracle, be it a reinvigoration of a marriage, restored health or gargantuan amounts of money.

While few could argue that a positive attitude in life generally produces more positivity, what has come to frustrate me about the Law of Attraction is that it can create a false sense of security, so that when life throws in a random catastrophe, the believer is then left wondering what he or she did wrong to attract this horrific event, and frankly, I find this cruel.

This was certainly true of me in 2004, when a series of unbelievable health traumas left me in this state of chronic pain. When I look back on that year, I was probably living one of the happiest periods of my life, and I see now that I was living with a type of hubris that set me up for the fall. I was a full believer that my whirlwind of positive energy had me encased inside a type of protective shield, and I wonder now if I thought I was just a little bit better than the next guy as my belief system seemed to be working so well. Like the evangelical Christian who believes God is on his side, I was so in touch with “the universe” that I wonder now if I was holding my head just a little too high.

In that sense, I suppose I’m grateful for the fall, which are words I never thought I’d hear myself say. I’ve since let go of my absolute beliefs in the Law of Attraction, realizing now that anything good happening in my life back then was the result of positive thinking, for sure, but also just a streak of good luck. I was feeling healthy and robust after a few years of stressful health issues, and frankly, I was probably a bit manic as well, which is when mental pathology feels good for once. I seemed to have limitless energy, endless creative ideas, and bottomless motivation to make those ideas come to fruition.

While I’ll continue to employ the helpful aspects of the LOA, never again will I believe that there are no accidents in life, as I know now just how dangerous that thinking can be.

We all want to feel safe in our worlds, and the Law of Attraction can lead us astray in thinking that we’re safer than we really are. If we can blame ourselves for every bad thing that happens to us (that gossip session yesterday brought on today’s headache, that fear of not having enough money brought on today’s arrival of a huge bill—these examples are detailed in The Power), then life doesn’t seem so random, so strange, so frightening.

But the truth is that sometimes, life IS random, strange and frightening, and instead of causing a panic attack, a full-on acceptance of this uncomfortable truth ignites something far deeper and more beautiful, and that’s compassion.

The affirmation that comes to mind right now is “But for the grace of God go I,” which means that as we look around us, we bear witness to the awful suffering human beings can go through day in and day out, and we recognize that any one of us is just inches away from befalling a similar fate.

Instead of looking at our brothers and sisters with judgment, that they somehow attracted these horrendous events into their lives with their erroneous and negative thinking and is thus their own fault, we see them instead as children of the universe who truly are sometimes just the hapless victim who deserve our love and deepest sympathy.

I missed all that when I believed too deeply in the Law of Attraction.

The bottom line is that sometimes, bad things do indeed happen to good people, and there’s no sense to it at all. What a relief.

While we’re certainly responsible for our own happiness, finding that happiness is harder for some than for others, and it’s not their fault at all. There are all kinds of horrors in this life—third-world poverty, abusive homes, dying children, murderous rampages, falling skyscrapers, to name but a few, and most victims are just at the wrong place at the wrong time, and that's about as deep as it goes.

But for the grace of God go I.



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You're going to do WHAT?

When the bad days erupt, they can feel like a slow controlled explosion, with each passing hour feeling worse than the one that just came before.


This past week, I’ve been trying to reduce my morphine dose, as I’m seeing a new holistic doctor in New York City, who has put me on a nutritional regimen that is suppose to reduce my pain. But I’m still on a hefty dose of the stuff, which combined with all these new vitamins he has me on, landed me in the hospital the other night with a case of constipation that was literally off the charts.

As embarrassing as telling this tale might be, it’s a grim and somewhat common reality that anyone who takes opiates, whether by choice or not, must deal with the sometimes extreme irregularity it causes, and Saturday night at 3 a.m. will go down in the annals of my life as yet another indignity my poor body has suffered as a result of this unrelenting pain.

It’s happened before—this extreme constipation, indelicately called fecal impaction—but somehow I was always able to, er…well, push through. You would think that one would be able to tackle the problem with some basic laxatives long before it would get to these end stages, but for some reason, it often can happen hard and fast (oh, these puns), with little warning that a huge amount of cement is building up where it ain’t supposed to be.

Each time it’s happened, I’ve sworn that it would be the last time, that I would do whatever it took to prevent these occurrences, but the new supplements must have been my undoing this week, for when the clock struck around 3 a.m. Saturday morning, and all measures I’d been employing for the previous eight hours or so had failed, I intuitively knew I’d been beaten and that this time, I’d have to go to the emergency room, as even waiting until morning could make this dangerous case even more perilous to my health. Plus, having a brick sitting in your bowel feels like, well…a brick sitting in your bowel, and you want it out as quickly as humanly possible.

I did get myself to the emergency room, and luckily I didn’t have to wait too long for a young male doctor to come in and remedy the situation, which was basically sticking his finger up my ass in order to break up and pull out the offending material a little at a time. But oh, the indignity…and the discomfort! I can’t believe that we can put a man on the moon, but the best we can come up with when it comes to a clogged pipe is manual dexterity.

Before he took the plunge, I asked in astonishment if there was any other way, if there was any magic potion they could shoot up there to break things up, but he said somewhat curtly, “Nope. I just have to get in there, and it’s nasty.”

He then told me to take down my pants and roll over, as a nurse stood by, pan in hand, ready for the rocks. Before I knew it, he’d put on two pairs of rubber gloves, greased up, then plunged in with such ferocity that I grabbed onto the side of the bed for dear life, fearing that my poor anus was being ripped from its moorings.

He wasn’t in there for even a minute when the intercom clicked in, saying he had a phone call. “Excuse me,“ he said, removing the gloves, “but I have to get this.” “What?” I whimpered, shocked that any phone call could be more important than stopping in the middle of a procedure such as this. As one might imagine, a patient in this position wants the entire matter over as quickly as possible, and it felt like an hour for him to return as my poor butt was throbbing, even though it was probably just a few minutes.

It gave me just enough time to ponder how awful it was going to feel all over again when he returned, and my imagination didn’t disappoint. He was just as vigorous the second time around, to which I grunted, “How long is this going to take?” “Oh, a few more minutes,” he said, which inspired such fear in me that I gave a mighty push, and well, the matter resolved itself from then on in just a few seconds to the surprise of both him and the nurse. They both acted like a baby was coming as they rushed to get the pan underneath me, realizing that nature was taking its course in a way I just couldn’t control.

And just like that it was all over, and before I knew it, I was back in my apartment, back in bed tending to my severe case of bronchitis and fever, which felt like kids’ play compared to what I’d just been through.

Since then, I’ve been trying to reduce my morphine even more, and I’ve been staying away from the supplements for now, but frankly, I’m miserable. The pain in my face is too fierce right now to reduce the morphine any more, and I was in tears most of the afternoon, wondering how in god’s name my life has come to this—that I’m on so much pain medication that I actually needed an emergency room doctor this week to pull a brick out of my butt with his bare, if gloved, hands.

The poor guy didn’t even stick around for me to thank him. I did thank the nurse though, who was left with the grunt work, ‘natch, of throwing out my poop. I told her I was sorry that I’d come in with such an unpleasant task, but she couldn’t have been nicer, shrugging off the whole ordeal with, “Honey, this is what we’re here for. We’re here to help, and it’s not just you…this happens to people all the time.”

And with that I walked out a little easier than I walked in, if a little bowlegged.



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The Bust-Out Power of Journalling

I'd forgotten how dazzling, exciting and soothing daily journal writing can be.

After the holidays had ended, I was feeling such a terrible void, which isn't that unusual, I suppose, at this time of year, but the whole season seemed to have a void to it, despite how busy I was. On the surface, I probably looked happy. My online Etsy shop--filled with all kinds of my art-related goodies--was doing well, and I was commissioned by six clients to do a pet portrait. And my pain level was holding steady, kept in check by a moderate daily morphine dose.

There really didn't seem to be any overt reason for me to feeling such a deep malaise, during the holidays or after, but there it was, grinding away at me day in and day out, and yet I couldn't even cry about it, which was really strange for me, as weeks earlier, it seemed I couldn't turn off the daily waterworks.

Very early in the season, I was so tearful that when an old friend, who I hadn't seen in about 15 years, came over to pick up her pet portrait, the tears came out in an embarrassing flood when she asked me the simple question as to how I was doing. I knew the dreaded words were coming while she was catching me up on her own life (with me laughing and smiling the whole time), and I kept saying to myself, "Please don't ask me how I'm doing. Please don't ask me how I'm doing." She did, of course, and the more I tried to regain my composure as I spoke, the more the explosion built up steam.

It all turned out fine, as she's as much a dear now as she was then, but I was indeed perplexed by my post-holiday numbness, and decided it must be the morphine, which only added to my malaise, as right now, it's just something I can't live without.

I don't know what made me do it, but I decided on New Year's Eve to seek out my journal and just start writing automatically, not to make any discoveries necessarily, but just to break the logjam of my feelings, which had come to a full halt. And what a break I made.

It's amazing what feelings lurk inside us when we just stop for 20 minutes or so, and really let them surface. At first, I wrote that I should go off the morphine at all costs, as I just couldn't stand the blankness of my life anymore, but suddenly, little glimmers of other matters began to appear. The first entry gently percolated with what family gatherings do to my feelings of self-worth, especially when I'm sick and in pain, and I found myself praying on paper for guidance, as I was so at a loss as to what to do next.

I ended with, "I need a miracle," and sure enough, the next day while talking to Glori, my therapist, while telling her that I just can't cry anymore, that the morphine has put me out of touch with any and all feeling, a few sniffles suddenly turned into a flood of tears about how yet another year has passed with me being in pain, and the sorrow I felt about it was overwhelming.

"My dear," she said. "I believe you are in touch with your feelings just fine."

Since then, I've made the effort to write every day, and the results have been unusually soothing, as any good purge of emotion usually is. Unlike my blogging, which is more controlled and meant for others to read, my journal writing is often splashes of sentences that only I can understand, filled with run-on phrases, misspellings, and deeply private feelings meant for my eyes alone.

While I'm as honest as possible in my blog, my journal writing is really honest, where I can vent and reach into the darkest corners of my soul, often with some trepidation, but always rewarded, as even if I don't discover an answer, I do always end with a prayer to the Great Spirit, asking for guidance, courage or whatever else I might feel I'm lacking at the moment, and the hope those words bring is always reassuring.

Perhaps the greatest discovery, which came from my session with Glori that day, was something I've let lapse, and that's been writing here.

At one point, Glori and I were doing an updated treatment plan (I see her at a clinic), and she asked me what I hoped to achieve with our sessions in the coming months. At first, my answers were very self-centered, as I seemed to answer by rote, with the old chestnuts like, "I'd like to be happier," "I'd like to become more social," "I'd like to feel less anxious," etc.

And then she asked me about my writing, which I've always felt has helped not just me, but others as well. When I started this blog well over two years ago, it was at first a way to give meaning to a harrowing experience simply by expressing it. But in time, as certain comments were made, I saw that the sharing of the experience had a reverberating effect that went far deeper than I'd ever anticipated when I started.

I haven't had to offer any answers here, or any deep insights, or even clever writing. I've just had to be honest, even when that honesty reveals that I just spent three days in my pajamas and I feel like crap. It's those entries that sometimes resonate most of all for others suffering similarly, and this has caught me completely by surprise.

When Glori reminded me that thinking of others will come back to me a thousandfold, I knew what I had to do, which is coming back to my blog and continuing the chronicling of this bizarre journey.

And that's what some simple journal writing has led to. In the search to find answers, the answer is simply to be honest and continue the search, and perhaps most important, to share the experience with others, for it's in the sharing of the journey that the healing truly begins.

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That Lovely Ring of Truth

While shaving my head a few minutes ago (when's the last time you heard a woman say that?), I thought about my old therapist, for some reason. A couple of months ago, her daughter had called to tell me that she'd finally passed away of Alzheimer's.

I was a patient of this woman for about 18 years, right up until I could see that something was terribly amiss in her behavior about 10 years ago. I believe I've told my story about her here (I can't even remember my own posts anymore), but it isn't important in terms of my thoughts about her this morning.

It was her courage and fearlessness that popped into my mind, and how she taught me over the years to never really fear what was in my heart, no matter how dark it felt at any given moment.

No matter how distraught I could get over things in my life--past, present or future--MH always helped me face my fears head-on, particularly the ones I could have about my own sanity.

She seemed to embody a fundamental truth about life, which is that in the realm of emotions, there is nothing so dark that can't be faced, as when a truth is spoken, you truly are set free.

In that moment, one realizes that the agonizing torment of a particular situation doesn't really need a resolution at all, as when that spark of enlightenment, of insight, occurs, all things really do feel right again. For me, faith wasn't just restored; it was perhaps born for the first time--faith in the therapeutic process, faith in a power greater than myself, and faith--true faith--in another human being.

This was the wondrous feeling I'd so often get while driving home after a session. Never would I feel so relaxed, so at home in the world, as when I'd leave her office after an incredibly intense and satisfying therapeutic exchange. It was such a comfort, and so empowering, to feel that I no longer needed to cower, to appease, to ruminate, or to obsess in order to feel safe in a dangerous world. As time went by and my true self began to emerge (I actually began playing guitar and writing songs at age 35), it was as though an inner garden had sprung to life, and I was embarking at last on the journey of my becoming.

But then I was stricken with such pain and illness in '99 (at age 40). Everything I thought I knew shattered into a million pieces, and shattered even more in '05, when the pain took up round-the-clock surveillance of my soul, seeing just how much pressure it could exert before I cracked. It didn't take long.

So now I'm left wondering: All those strides I'd made with MH, all the new beliefs I'd developed, all the faith that lit my spirit, all the magic I'd feel from those mysterious "helping hands" that seemed to bring me exactly what I needed when I needed it...where did it all go?

Did these things just happen in my imagination? Did I really learn any fundamental truths at all? Yes, dark demons did get chased away by my courage and by my newfound faith in MH's therapeutic process and in a larger force at work in my life. But as I looked in the mirror at my new closely clipped head this morning, I wondered: Why can't I get rid of the demons now?

I suppose the world feels far more random to me these days, and far more unfair than I ever could have imagined. Still, if all things really are relative (another leap of faith), then surely there must be something I could apply to my physical state right now from the lessons I learned so many years ago about what restores health in the emotional realm.

OK, so when I stared down a fear, when I spoke the truth--no matter how painful that uttering might have been--something would give way, and a little bit of health would return effortlessly. Restoring my sanity didn't happen overnight, of course, but each step was built on a solid foundation, which provided sturdy and steady ground for what was to come next.

If indeed I'm on the right track with this line of thinking, what "physical" truth am I not facing right now? Well, for one thing, I suppose I've given up on taking care of myself. As the constant pain has worn my sense of hope down to a tiny nub, lighting that next cigarette, drinking that next cup of coffee (loaded with sugar, 'natch), or sipping that little bit of wine (not to mention popping the painkillers) has begun to feel like the only way I can feel just a tiny bit good again, if only for a minute.

But these things are bad for me (no matter how "moderate" I may or may not be), just like the lies I believed about myself so long ago. I can see now how much foul food was fed to my soul, so to speak, during my childhood, and when I purged it, my mental health seemed to take care of itself.

So I'm going to do an experiment. Tomorrow I'll be having a colonoscopy, which requires a liquid diet of me today. I have to go to the store to stock up anyway on juice and broth, so while I'm there, I'm going to pick up tons of fresh fruits and veggies...as many as I can carry...and practice a modified vegetarian/vegan diet for the next five days.

Not only will I remove caffeine, nicotine, alcohol and processed sugars from my plate, but I will add in things I don't usually eat, like fruit smoothies in the morning (with a scoop of whey protein).

If I say I'll do it for a week, I'll freak out, so let's keep it to five days.

I read an old acronym recently, using the word CARE, meaning circulation, assimilation, recreation and elimination...the four things we need to pay attention to in order to be healthy.

If I'm not giving my body the fundamental "truths" it needs to heal itself in these four areas, then how can I expect to ever get out of pain?

Of course, no amount of nutrition is going to cure my bone marrow disease or bring down my high platelet count (I don't think so, but who knows?), but I have to believe that I can at least purge a resistant infection, or cool down the wiring of wayward nerves with proper nutritional attention.

As my pal Tom mentioned this morning, "Action is always the answer," which had that lovely ring of truth. I could ruminate to death on the "meaning" of all this crap, inherent or otherwise, but at the end of the day, if it's to happen at all, it's action that will get me out of pain...something that will happen as a result of something I DO.

I will start this new eating plan tomorrow. I'll post results as they develop.


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Note: Pictures are random selections from my illustrated journal. They have nothing whatsoever to do with this essay. :)


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Pills For Enlightenment

It would seem impossible that I could live a life without painkillers at this moment. This morning was a bad one that required one morphine pill, a Xanax and three Vicodins to get the pain to a somewhat bearable level, but I can no longer stand what these medications are doing to my spirit.

As I felt the pain battle for supremacy in my face and jaw (despite the meds), I decided to just lay on the couch at one point and give in, to not fight, to boldly tell it to get as bad as it wants to get--that I can take it.

It's always remarkably relaxing when I do this, as I suppose in these moments I can compartmentalize the pain, set it aside, and live with it instead of fighting it. But for some reason, I seem to do this only when I arrive at the point where I'm realizing it's winning handsomely, and the only way to win the war, so to speak, is to surrender the battle.

When I do this, the pain does ease up somewhat, and I wondered this morning if this tactic would be successful if I went off pain medication altogether. It seemed like such a shockingly bold move, even stupid, but the idea intrigued me.

Yet when I significantly decreased my pain meds in an experiment last week, the pain skyrocketed, and it took two days to get it down again. It's actually been pretty bad ever since.

But I literally can't stand this medication fog anymore. As I've been so isolated and sedentary for most of the past year, I joined a gym this week, and man, what an effort not only to exercise, but just to walk over there! My malaise fought me every inch of the way, and the depressing thought kept creeping in, "Why am I bothering?"

What's keeping my hope afloat, though, are the memories of more joyous times, when, despite my problems and issues, life could also feel electric and exciting, and I would be wildly filled with creative ideas that gave me more than enough fuel to execute them.

But my days are so very different now. And I have to wonder how they fit into the overall pattern of success/defeat defeat that has defined so much of my life. If everything around us is truly connected by some kind of universal web, where past, present and future are illusions of our three-dimensional world, and if I go on the assumption that I'm here on this earthly plane to learn deep truths via the gift of free choice, then what is the lesson?

Of course, my malady may be nothing more than a freak occurrence of bad luck, but for the sake of argument, if this ordeal does somehow reflect a bigger picture, what in that picture am I missing?

When I think along these lines (which always seem to effortlessly surface during these moments of surrender), it all feels so profoundly obvious to me--that of course this is all connected, you numnut, but you just don't want to go there. You don't want to face the sheer terror of the wild blue yonder before you, and instead would prefer to stay in your hovel of pain and medication, where the space is oh so small, but oh so familiar.

As I've written about before, most of my adult life was devoted to music, to being the best singer/songwriter I could be. Those were heady times indeed, but when one is so singularly focused on JUST ONE THING in life and that thing no longer exists, it's hard to feel anchored to the earth anymore, despite my other artistic endeavors.


And why was my life devoted to JUST ONE THING? Because I felt so incapable of succeeding in love relationships. Time after time, I made such poor choices in men, which had less to do with them and more to do with my low self-esteem. And let's face it...a life without love, or even the potential for love, is hardly a life at all. I dare say my fear of intimacy borders on something pathological, and I am the less for it.

Of course, now that I'm so ill, in such pain and on so many medications, I continue to feel myself unworthy of a love relationship, but of course this is just more of my bullshit. I'm aware that I'm actually quite good (for the most part) at handling extremely difficult physical conditions, and I'm also aware that no one is perfect; that we all have our proverbial crosses to bear and baggage to unload. Pain and illness does not deem me unlovable, but in my own mind, it gives me an excuse to melodramatically retreat, which is made all the easier by the fatigue created by the meds.

It's a vicious cycle indeed. Pain and fatigue keep me isolated, yet isolation keeps me away from any possibility of love, which would restore much-needed balance in my life, whether the pain was there or not.

It's certainly no easy thing to wake up with severe pain in the morning, and would be harder still to take a stab at not medicating it, but something has got to give. I've become frozen in time, remembering the person I used to be, yet only vaguely seeing the person I could become. And therein, perhaps, lies the rub.

With all previous definitions of myself shattered, who am I now, and who do I want to be? Where do I go from here? I can't see it, and this terrifies me, frankly. And with pain taking up so much real estate in my brain, it's difficult to formulate a new vision for myself or for anything...even some nutty creative endeavor.

Before all this happened, I was actually feeling okay about setting the music aside for awhile, by exploring new paths, by venturing forward full speed ahead in faith and love.

But of course, my faith was shattered, too, when pain exploded onto the scene. God not only vacated his co-pilot seat in my life; he actually hit the ejector button, leaving me to crash land in some foreign sea all on my own. I've been trying hard ever since not to drown.

And so my present is now largely defined by reruns of Criminal Minds. Nothing soothes the tortured soul, it seems, like stories of sociopathic serial killers.

I watched a preacher today during a Sunday morning TV program, and he talked about faith, about putting our troubles in God's hands. He focused mainly on the recession and the joblessness that many of his followers were no doubt experiencing, noting Bible passages that basically said to quit worrying, have faith that God will provide, and just enjoy your life.

When it comes to money and my freelance work, I can get with that. But how those parables apply to someone in chronic pain still has me stumped. Maybe they don't apply, or can't. Once again, I'm reminded of Buddhist teachings that say there will always be suffering in life; the trick is to rise above it (no matter how harsh the circumstances), relinquish your attachments, and enjoy the bliss that ensues.

But I'm told by this one Buddhist sect that I'll have to chant two to three hours a day to attain this enlightenment. Huh? What? Is this a joke? I get impatient with how long it takes to walk to my kitchen. Can't they just make a pill for it?


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Note: Watercolors are some new entries in my illustrated journal. I'm using them as inspiration to get back to my flamenco classes!




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The Healing Power of Honesty

Well, Open Salon has done it again. In my darkest hour, I poured my heart out in a post, feeling somewhat guilty for expressing such a bleak mood concerning the bleak circumstances of my life, yet instead of chastisement (which at this stage of my life I still fear), OSers opened their hearts in ways that completely caught me off guard.

And quite simply, things changed.

I suppose the change was set in motion a few days earlier when I was drawing and writing in my illustrated journal (as opposed to my reflective journal, where I write multiple pages at a time). In an effort to break the logjam of isolation, I began doing some illustrations accompanied by scribbled thoughts inspired by the image, yet instead of it being a satisfying exercise as it had always been, it felt empty and boring.

It wasn't until the sixth entry of this new Moleskine journal that I realized what the problem was: I hadn't been honest in the previous five, and when I began to write from my center, when I acknowledged that things had taken a bad turn pain-wise, the satisfaction returned, and momentum began anew with hardly any effort at all.

Of course, there was a certain amount of effort in taking up the pen and paint, but it was a small one, and one I enjoy, regardless of the satisfaction level. What I love about these little sketches is that I always learn something, even if the drawing is a monumental failure, so the effort is never wasted.

These drawings and written thoughts led me directly to an enlightenment of sorts, and that, in turn, led me to a new blog post, where I simply poured my heart out, setting aside what others might think. It all flowed out of me in a single sitting, and when I clicked "publish," I just sent it out to the universe, response be damned, and once again, I wasn't disappointed.

The comments I received helped in so many ways. Some people simply posted their compassion, while others offered more hard-core suggestions, all of which were concrete things I could try. No matter how short or long the response, I suddenly didn't feel so alone, and I connected with others on a level I don't come across in my day to day life.

This boost from so many open hearts filled me with a much-needed and newfound energy that I hadn't felt since the new round of pain started over a month ago, and little breakthroughs began happening all over the place. One thing I realized is that I need to give up my art studio and bring everything home. For a few years, I've been struggling with the realization that I no longer have the energy to get there, nor can I afford it, yet giving it up felt like a failure to me. It would have been the period at the end of the sentence that my life has drastically changed these past five years, that I no longer can physically do the things I've always done.

Yet in accepting this fact, I can see all the good that will come of it. In having all of my art materials here at home, I will most likely paint more, not less (which has been my fear), and I'll have some extra cash in my bank account to boot, which I so desperately need. I've been spending a few thousand dollars a year to keep my studio, but it's become more of a storage place than a place of creativity, as when I go there, my isolation seems to feel more intense. Some studio mates have moved out due to their own financial issues, and it's just not the same place it used to be. And so it is time that I make my own changes.

Another astounding, even life-changing, insight was that this strange malaise actually began when I went on the Percocet in early September. While I definitely needed something to curtail the breakthrough pain, I suddenly realized that perhaps Percocet wasn't the answer, as for some, it does indeed cause depression. And in my case, when depression increases, so does the pain, so I found myself in a loop of pain, depression and pills.

To have this light bulb go off above my head was akin to an angel whispering in my ear, so my doctor changed my breakthrough pain medication back to Vicodin, and indeed the weight caused by the Percocet lifted. I will definitely note this little incident in the "not all meds work the same for all people" file for future reference.

While these insights might not seem like a big deal to others, I truly don't think I would have had them had I not been honest with myself and others, and I actually feel inspired to give up the studio, to bring all my cherished paints and paintings home here with me. In the last two days or so, I've been actively thinking of how I'll rearrange things in this small one-bedroom railroad, and I think it'll work.

It seems that momentum has been once again set in motion, and I am thrilled. But it wouldn't have happened without my taking the risk of being honest with others, and without their compassion in turn.

So thank you, Open Salon. While it was important for me to be honest, it was equally important that you offered such comfort and support. I would not have found this new place without it.


Note to those reading this on Blogger: This blog is cross-posted on Open Salon, a social networking site in the form of a blog.


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Looking for bodies...and Vicodin

Make no mistake, I'm experiencing the mother of all boredom attacks.

I can't remember when my life has felt this dull. With all the things I love to do--write, paint, make music, dance, bike--you'd think something would catch my interest. But nope. I got nuthin'. I don't even feel like watching TV shows about serial killers. Can you imagine?

I fully suspect that my problem is that I miss the Vicodin. I switched to MSContin as a pain reliever a week or two ago, and while it's an opiate, it's a boring opiate in that it doesn't make you even a little high. It helps the pain somewhat, but who cares? So did the Vicodin. What I need here is to medicate MY REALITY, not just the chronic pain in my jaw. I need TO ALTER MY WORLD WITH DRUGS, PERIOD.

One interesting thing that did happen today was that I got a pain attack, but in not having any Vicodin, I couldn't escape the emotional panic that always ensues, and I got really really pissed off. I mean, what am I supposed to to with that? Just sit around and be miserable?

I gave in to drinking a glass of wine, thinking that would help me escape, but you know what? Drinking bores me. I was so worried the other day that in replacing pills with alcohol that I'd become an alcoholic, but I've no fear of that anymore. Alcohol only increases my boredom and gives me an acid stomach, the latter of which is not interesting at all.

Sometimes Vicodin would make me vomit, and that was mildly interesting, but indigestion registers high on the boredom scale. Plus, alcohol does nothing for the pain. It does make me want to smoke, and that's a little entertaining, but only for 90 seconds or so. About halfway through the cig, I get bored and put it out, which considering the cost of these things is just crazy. Then again, they're SO expensive that there might actually be a market for half-smoked cigarettes, but I'm too bored to consider new business propositions.

I want my Vicodin...it's that simple. Like a baby who gets her bottle taken away, I'm throwing a temper tantrum, but not in a way that's melodramatic or even amusing. I'm not breaking things or yelling at anyone. I'm not running into bad neighborhoods looking "to score" nor am I prostituting myself for drugs, which would be an unwise business move anyway considering how flat-chested I am. I'm just pining away for that pillow-soft world that Vicodin brings.

What's not boring but instead irritating right now are these constant helicopters making a racket above my apartment house. I live on the banks of the Hudson River, across from NYC, where there was that plane/helicopter collision two days ago. They're still looking for bodies. My "in the know" pal in Hoboken here says they just found two bodies in the river that had nothing to do with the crash. Such typical Jersey stuff. He's a shady character. Maybe he has some Vicodin.

I don't need to do that, though. If I want Vicodin, I know my doctor would give it to me if I asked, as he has compassion for this pain mess I'm in. But I also know that would be a step backwards. Right now, I just have to put one boring foot in front of another boring foot, and walk this boring path into a new world that from here looks totally boring.

Lemme see if any serial killers are on TV.


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When Love Is Enough

I awoke this morning with an aching emptiness, as I knew this was a day that I was going to take a much harder look at myself, without the crutch of abusive substances.

What's been a little disturbing lately is my glass of wine in late afternoon, after my day is pretty much done. It's never been a problem, nor even a daily habit, but I've noticed this past week or so that the time I pour it has been inching up by a half-hour or so, and yesterday I poured a small amount at about 2:30 p.m. instead of my usual 4 p.m. or after.

While my intake has remained the same, this earlier start is scaring me, as it should, and when I went to sleep last night, I promised myself that today, no matter how well I'd be able to resist the clutches of pain medication, smoking and now wine, I would at least take a hard look at my feelings, and the best mirrors I've got are my private journal and this blog.

What's so interesting about these promises we make to ourselves is that most of the time they're half-hearted, something we say to make ourselves feel better for the moment, but never really put into action. But then there are those occasions when we know we mean it, and that's when life can get scary indeed.

Even before I began journal writing today, my anxiety level was up, almost as a type of wall to prevent me from this little trip into the unknown. But I stuck to my guns, made a cup of coffee, watched the last few minutes of a Sopranos rerun (no matter how bad things are, I have to see what Tony is up to), did not light up a smoke, and began writing.

I wish I could say that some startling insight was uncovered, but instead, what became as plain as day was that the pain in my jaw is still holding on with a fierce grip, and I literally felt sadness wash over me like a wave.

Somehow, in recent months, I've been distracted from the pain by family drama, by new freelance writing assignments, by trips to the shore to help my parents, and, of course, by pain medication.

When I told my doctor last week that I was taking way too much Vicodin, he switched me to MSContin, which is morphine sulphate in pill form. While that may somehow sound more dangerous in terms of addiction, for me it's a better choice in that I actually take less medication yet get better pain control. And I don't get the mood lift I was getting from the Vicodin, which, to be honest, is something I've come to miss.

With MSContin, the medication is released slowly over the course of 8 hours, so there's no rush, and therefore no quick and easy escape from the pain and sadness of my condition.

When I just sat with my feelings this morning, not having any deadlines looming or any particular place to be, there was a stillness there, a lack of motivation of any kind, which was in such stark contrast to just yesterday morning, when I felt like I had the world on a string, making all kinds of plans for a type of playday as a reward for meeting a big deadline--first to ride my bike, then to paint at my studio.

Those plans changed, of course, when I took that first sip of wine at 2:30, and interest in anything else simply and quickly waned. I cursed my behavior, vowing to do better today, and indeed I have. I've had one dose of medication and one cigarette, and it's now nearing 2 p.m. And I've made plans to meet a friend in about a half-hour.

But the pain in my face has me reaching--that feeling of wanting to grab something, anything, that will make me feel better, that will quell the loneliness that comes with chronic pain and constant disappointment.

At this particular moment, I suppose I need to just have faith, not in God, per se, but in the realization that in resisting the reach, I will feel better overall--maybe not now, but perhaps tomorrow, or the next day. That's hard to see in the moments of deep sorrow or wrenching pain, or in the throes of an addiction spell. When the latter occurs, it feels like every cell in my body is screaming for relief, and turning a deaf ear for the five minutes or so it takes for a craving to pass can feel like a lifetime.

I talked to a friend about faith earlier today, and I can see that I haven't lost it--it's just changed shape. When I pray now, I don't use the word God anymore, as it's attached to just too much baggage from my Catholic upbringing.

I pray to the "Universal Spirit" instead, which when I shorten it to the letters "U" and "S," spells "us." And that's something I can get with indeed.

All this misery has made me feel the love of others and within myself in ways I never have before, and as I said to my friend this morning, in terms of faith, love is enough. I don't need to pray to some great being in the sky, but I do need to pray to whatever the mysterious source is of all this deep compassion. When I pray to this universal spirit of love, I feel it, and I feel it for me in particular.

That's new.


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My Father, My Car and Michael Jackson

It's been over a month since my last post. During this time, my dad had a heart attack, which required a week in the hospital, then quadruple bypass surgery, which required another week, and now rehab, where he's been for seven days and will be there for seven more.

To call this a stressful period for both me and my family is an understatement. Of course, the stress caused by a parent suffering through a major health issue is a given for any adult child, but what I didn't expect was the resurfacing of major issues from my childhood, which, oddly enough, has given me great insight into the death of Michael Jackson, which also happened during this time.

In a sense, I wasn't at all surprised that my dad had the heart attack, as the week before, while visiting my parents for four days, my dad was raging. Even though I talk with my mom every day, I hadn't visited them much during the spring as I was without a car, and as I have a 17-pound cat, transport to and from the Jersey shore on mass transit was just too problematic, so I wasn't aware of how bad the rages had become.

As I was struggling one week looking through the classifieds to find a used car I could afford, my dad made the extraordinary offer of buying me a completely new car, so I purchased a $13K Hyundai Accent, which was thrilling, as this was the first time in my life to own a brand new vehicle.

Over the course of my life, the way my father has so often showed his love for me has been via my cars. Before my parents sold their suburban home and moved to a garden apartment at the beach, whenever I'd visit, my dad would lavish my vehicles with the type of attention and interest that he found too difficult to express to me personally. My visits to their home often resulted in my car getting washed and waxed, a new oil change, and a full tank of gas.

Even though conversations could be difficult, as his moods were always so unpredictable, I could frequently be assured that my car would leave the drive in fine shape, and as I got older, I realized that this was an act of love on his part, and I recognized it as such.

His behavior was often bittersweet in so many ways, as I'd always known that the guy would have taken a bullet for me, yet when it came to day to day matters during my formative years, he seemed to have a pathological need to criticize me, and it was beyond him simply wanting to live through his child, as many overly critical parents are wont to do. His criticisms often had a sadistic edge, where there was clearly a perverse type of pleasure in making me self-conscious or embarrassed concerning things I could do nothing about, like certain physical characteristics.

He would also often fly into rages over absolutely nothing at all, like me having "looked at him funny," which could mean the silent treatment for weeks at a time, or saying words that were just so hurtful that it was actually better for him to say nothing at all.

To detail all of the infractions would be just too painful to relive in this essay, and perhaps isn't even necessary, as the point is that no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids.

This has certainly been the case for me, yet during the past ten years or so, my father had calmed down considerably due in large part to the onset of hydrocephalus, a condition whereby fluid accumulates in the brain and makes the patient very tired, forgetful and quiet. While this illness made me miss the part of my dad that could be so charming and funny (at least with others), I certainly didn't miss the verbal abuse, which could still rear its ugly head now and then, but not to the extent it once had. In a a weird way, this was a blessing, particularly for my mother, who cares for him solely.

Yet for some reason, in recent months, the rage seemed to resurface, and it was worse than ever. My mom attributes it to the election of Obama, who he hates, and his constant viewing of Fox News, which fans the flames of bigotry and hatred no matter how "fair and balanced" they say they are.

The week before his heart attack, I experienced this rage firsthand when I went to the shore to show my parents my new car. What should have been a joyous gathering to celebrate my swanky, new vehicle instead turned into a four-day diatribe against me, the likes of which I hadn't experienced since I was a girl. And just like what happened in my most innocent days, I was caught completely off guard, and felt devastated by the contempt and loathing directed at me for no reason at all.

The first day I was there was innocuous enough, but on the second, while watching television together, I asked him to hit the "info" button on the remote, and he screamed that he wasn't going to "hit every goddamn button just so that you can see the year the film was made!" He then threw the remote at me before storming off to his room for a few hours.

On day three, while Obama was making a speech, he began ranting about what a liar he was, a familiar tactic to bait me into a political conversation so that he could rail against liberals and minorities. (I now just walk away from these useless discussions, as he loathes liberals, of which I'm one.) And on day four, while my mother was visiting a sick friend in the complex and I was doing the dishes, he asked, "Why are you still here?" in the angriest of tones. The list could go on, but you get the idea.

By the time I left, I couldn't get out of there fast enough, so when I got a call from my mom the following weekend that he was in the ER with a heart attack, my knees buckled a bit (despite the abuse, I never want to hear that either of my parents is suffering), but I wasn't surprised at the news. None of us was.

As we began visiting him over the next few weeks, the old dynamic took root, and I could feel that old familiar depression set in, as he was so charming, sweet and funny with all the doctors and nurses, but absolutely vile to me and my mom. (He's somewhat calmer with my sister, my only sibling who's 16 years younger than me--the "surprise" baby of the family; he's always been closer to her as he had a much larger hand in her rearing. Still, she, too, has suffered at his hands, and bears similar scars as a result.)

The unkindest cut of all came on the day he was transferred from the hospital to rehab. After my mom and I spent four and a half hours with him this one particular morning, I suggested that she and I go home for awhile, then come back a few hours later.

In a sneer, he uttered, "Don't you want to be here?" I said, "Dad, we're just going to go home for a bit. We'll be back. Please don't be offended."

And with that, his face blew up into a tomato-red balloon, he showed his teeth, then raised both fists to my face. I don't even want to recount what he said next, but it's something no daughter should ever hear from her father. I was absolutely stunned, and on the way home with my mother, I said things I couldn't believe would ever come out of my mouth. My basic premise was that it would have been easier if he'd just died.

Not surprisingly, we didn't go back that day, and for the rest of the week, I didn't go visit him. My mom did, as did my sister, and both repeatedly said he owed me an apology. At first he growled, "I don't owe her a damn thing," and when my mom said at one point that I was still very hurt, he said, "Let her stew in it."

But as the days passed, I suppose he began to think about what he had said and done, and he begrudingly agreed that he owed me an apology. So I relented and went to visit him yesterday, and upon leaving, he said, "I'm sorry we had an argument." I had to laugh somewhat, as he didn't take responsibility at all for what he had done, but I knew that was the best I was going to get. I kissed him goodbye and said, "I just want to be friends, Dad. All I've ever wanted was a loving relationship with my father."

I could see he was uncomfortable with my comment, as his eyes darted around, and he mumbled something like, "Okay," but that was that, and I came home to my apartment, where I'm tending to my own life before I head back to the shore again in a few days.

What I'm left with now, of course, is keen insight into how I've been shaped by my father's behavior towards me all these years, and despite the decades of psychotherapy, I'm realizing that while my happiness is entirely my responsibility, the scars left from the psychological dismantling of my identity and self-esteem in childhood might never fully heal, and maybe that's okay, in a weird way. It all has made me a more compassionate, tolerant and open-minded person, and for this, I'm thankful, although I'd like to think I would have been this way anyway, without all the misery.

After Michael Jackson's death, so much information came out about his own father's treatment of him, which wasn't exactly news, of course, but the revelation of the depth of Jackson's torment was something I fully understood in a way I hadn't before. And to hear that he'd become such a pill addict was another uncomfortable identification with him, as these painkillers are still a monkey on my back, but I've developed a strange comfort with this creature, as sick a relationship as it may be.

After my surgery, I did begin to experience some pain-free days (even without the hyperbaric treatment, which Medicare declined anyway), but with all the emotion stirred by this recent debacle (and the descent back into bad habits, like smoking), I've been holding onto the pills tighter than I perhaps ever have.

The emotional trauma set the pain off again to a searing level, and during the 48 hours after my father's outburst, I literally could not stop shaking or crying. I was in such a rage myself that I swore I'd never speak to him again, but I soon realized the destructive power of holding onto anger, and upon the advice of my friend Paul, I began to pray for my dad, and slowly, the rage did begin to lift.

Instead, I began to feel compassion for him, wondering what in the world had happened to him in his own childhood that created this Dr. Jekyll/Mr. Hyde personality. In talking with my cousin, who is close to my dad's age, family stories have begun to surface that are dark and cold, and it's clear that the cycle of abuse is a mysterious beast indeed.

Last night, after I came home from the shore, I had dinner with my dear friend Lynda, and after catching up on news about our own lives, we began to discuss the tragedy of Michael Jackson, particularly about the connection between his father, his plastic surgery and his pill addiction.

At one point, Lynda told me that upon hearing of Jackson's demise, she couldn't help but worry about me and my own painkiller abuse, as there were such parallels between Jackson's story and my own, albeit without the plastic surgery (not that I haven't considered it over the years, but I've never been able to afford it; plus, I knew there was much more to learn by not doing it).

When she said this, there was that pregnant pause between friends when an uncomfortable truth is uttered, and I did indeed feel a chill. As I've pondered Jackson's death these past weeks, I keep thinking, "Why didn't you get help? Why did you use the pills to squash your sadness and anger, and why couldn't you get off them? Why did you let your father's words destroy you?"

It's easy to ask these questions of another person, but not so easy to ask them of ourselves. I do ask them, of course, but that doesn't stop the next pill, the next cigarette, the next glass of wine or the relentless pain in my face and jaw. It's all a recipe for disaster and death, made all the more real by Jackson's untimely self-induced passing, and by the memory of my dad's fists in my face, and the outburst of words that can never be taken back.

I can't let him destroy me.


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The Taming of the Blue

It's been a little over a year since I wrote my History Repeating post about the plague that engulfed Europe in 1347. Like a number of essays on this blog, it was inspired by a show on the History Channel, which just happened to air again yesterday.

I was just as fascinated with the program as I was 13 months ago, but what was even more intriguing was my very different response to it this time around.

Last year at this time, I was in such a state of profound questioning about God, railing against life's unfairness, and feeling that I'd somehow been singled out by my creator to suffer extreme and unending pain for reasons known only to him. My intellect grappled with this daily, on the one hand clearly seeing that I was just an unfortunate victim of circumstance, but on the other, feeling some deep sense of deserving this punishment, and maybe more hopefully, feeling that this was part of some divine plan designed to teach me something profound.

In hindsight, no matter how you look at it, any response I was having was tremendously self-centered, and I say that not as a self-criticism, but as a simple, if uncomfortable, observation.

Of course, it's natural to focus entirely on oneself when physical agony sets the tone for the day, but all that grappling with profound questions has led me to a curious state of being indeed, and one that I didn't at all expect, for in all my questioning about God, the place I'm being led is not to the heavens, but back to earth, upon which I feel like I'm walking for the very first time.

I've always been somewhat of a heady character, and in fact used to joke that my body was the thing that simply carried my head around. In being a creative person absorbed in the arts, I was always writing songs or painting pictures, and when I wasn't doing that, I was pondering the after-effects of therapy in order to unravel a more happy existence. In short, my head was in some very stormy clouds nearly all of the time, and the world around me was something I witnessed but kept at a distance, as I was the star of the show, so to speak, slightly removed and certainly above the mundane world of ordinary folks.

In short, I suppose I was something of a snob, albeit a nice one, but my niceness in no way affected my ambitions to be bigger, bolder and better in nearly everything I did.

What a moron.

I can see this so clearly now, and while a little embarrassed by it, I couldn't be more thankful that this old crusty cloak is slowly disintegrating all around me, and I do have to wonder if this horrible, awful, painful ordeal has had anything to do with it.

Two weeks ago, I had yet another surgery on my jaw, and by all accounts, it seems that my attempts to rid myself of pain have failed yet again. In fact, I may have even made matters worse, as the wound and bone refuse to heal.

This landed me at a local hospital's wound center last week, where I'm on deck (if Medicare approves it) to receive treatment in a hyperbaric chamber, which will be six weeks of being locked in a pressurized glass tube three hours a day. I'm told that this will force more oxygen into my system, thus destroying all bacteria and fostering growth of new blood vessels. Apparently, my chances are 50/50 in terms of pain relief, which before might have depressed me, but now...well...I'm not sure it matters which way the wind blows.

I felt this same way just before my surgery, in fact, which was in such stark contrast to so many of the other surgeries these past five years. I used to pray so hard for a positive outcome, only to be devastated when those prayers weren't answered. In many ways, I felt exactly like the plague victims, who turned to God and their faith for relief from their terrorizing torture, only to be ignored and left to their own devices. Clearly, the god of their understanding became irrelevant when it really counted, just like my own understanding of God and faith faltered when the going got tough.

When I take a closer look, I can see now that I was asking all the wrong questions and focusing on (and praying for) all the wrong things. While it was certainly appropriate and understandable for me to rage at my fate, I can see now that this ordeal has taken me completely out of my head and landed me squarely on my feet, where I now feel the dirt and sand between my toes in ways I never have before.

What's so startling is how I now move in my world. Despite the pain, no matter where I go, I seem to laugh and talk with just about everyone, and I'm quick to help when I see someone in a jam, whether it be a mother struggling to get her baby stroller up the subway steps, or an old lady waiting in the rain at a bus stop, who I pick up and drive home. I hate to think that I didn't help in these ways before, but what I'm guessing is that I just didn't see these situations, as I was too blinded by heady concepts and my own ambition.

In a waiting room the other day, for example, I began playing with three little brothers as if I'd known them my whole life, and in short order had everyone in the room laughing with our antics. The connection was instant, strong and barrier-free. I complimented their mom and dad on their beautiful family, and was warmed by the very thought of these three little devils for the rest of the day.

This may not sound like a big deal, but I can't really remember this ever happening before. When I say I talk with and smile at everyone, I mean everyone, and this glorious, bustling city I live in provides ample opportunity to flex my new friendly and outgoing muscles. I crack wise with cops and politicians, I have coffee with artist friends at local cafes, and I thank my bus driver after every single ride.

Oddly enough, as I write this, I'm actually having a very bad day. The pain is as bad as it ever was, which often leads to combustible outbursts of tears and long periods of sleep.

In a sense, the malaise and sadness about this condition haven't changed, but what has changed is that I don't expect to not suffer anymore. When I look at the world at large, either now or in the past, great suffering certainly isn't anything new, or anything unique to me. Maybe the trick to my ultimate contentment will be to be at rest with what is and to use that as the stuff of glorious, creative absorption, which is, of course, the ultimate painkiller.

It sounds so simple, but it's quite hard for me not to define myself by my accomplishments. No wonder this pain has caused such suffering on so many levels, as it has forced me to sit still and think, to rest, to just be. For so long, I felt like my accomplishments had to be huge in order for them to matter to the world, to make a difference. I'm only beginning to see that a smile exchange with just one person can light a spark for us both that can illuminate an entire hour, or more.

I should know in a day or two if Medicare will approve the hyperbaric treatment. If that does happen, I'm not expecting much, other than some claustrophobia and maybe some nice encounters with staff, who I suspect I'll get to know quite well. Maybe there'll be some kids in the waiting room.


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A Toll On My Soul

I was procrastinating on Saturday, as usual, so when I went to pick up my pain medication at the pharmacy across the street, I found that they'd closed a little early, and I was absolutely freaked that I wouldn't have enough meds for the following day, yesterday (Sunday).

For someone in chronic pain, narcotic meds are a type of deal with the devil, for on the one hand, they provide a certain amount of relief and respite--a sense of control over miserable circumstances--but on the other, they rob you of your normal emotions, even if, like me, you don't necessarily feel high anymore (not unless you take too much, which I've been wont to do now and then).

When I saw I had just one 10 mg Oxycontin pill yesterday morning, I knew it wouldn't be enough for the day and this made me nervous, but what was actually disturbing was the realization of how much a part of me these pills have become.

While they do ease the pain somewhat, they also take a toll on my soul, and it's hard to imagine life without them now. In a strange way, they fill the space that is the loneliness one feels with chronic pain. When I take my pills, the world is a little brighter, a little softer, and I'm happy to passively sit back and let it pass me by. But it's never without some regret, for when I watch TV, it's like I'm watching others live life for me, and I'm envious of their healthy, vibrant lives.

If it's a true crime show, I wonder what it's like to passionately catch crooks all day; if it's a TV drama, I wonder what it's like to live the life of a successful, creative actor; if it's a reality show...well, OK, I rarely envy those folks, especially any of those Real Housewives babes. If I lived in a world where I ever had to go to a "big hat luncheon," I'd slit my wrists. But I do envy their healthy, pain-free life.

In the past few months, I've even become something of a recluse, which is just plain weird for me, considering my personality. But the pills actually make watching lots of TV interesting, which is what I learned yesterday, as without the pills I was absolutely bored to tears by just about everything. I almost didn't know what to do with all the time, not because of the pain so much, but because I no longer recognized myself. Spitfire Mary Ann has turned into a human lump on the couch. I didn't even feel like shaving my head, which is saying something, because I always get a big kick out of that.

I can tell I'm withering, as I now shave my noggin every two weeks or so, as opposed to every five days. I used to love the fiery feelings my hairless dome would bring up--such adventure, such mischief--but it's as though there's few feelings at all anymore, except exhaustion from all this endurance.

I have to remind myself that I haven't given up--that the therapies I've set in motion take time to come to fruition. Hopefully, I'll get accepted into NYU's psychoanalytic program, so that I can probe the mind/body connection in all this, and once that happens, I'll have more surgery. I want to do things differently this time. I want to be more aware of what's happening in my subconscious before I go under the knife again, which is a curious goal considering I really have no feelings to report, other than an opinion on that cool Chariots of the Gods show on the History Channel yesterday, which wasn't boring at all.

I have to admit; watching all those talking heads speaking so enthusiastically about the possibility of ancient aliens made me wonder what it's like to be an anthropologist. Who would I be without all the pain, all the pills?

It's a beautiful, sunny day today, but it may as well be raining, 'cause I doubt I'll be going out. I know I should push myself, but I'm no longer chasing my dreams and passions anymore. I'm instead running from the monster as fast as I can, only to find he's keeping up quite well and resting comfortably, in fact, in my own body. The only ammo I've got is this friggin' pill, which tames him temporarily, but tames me, too. I'm just so sick of all this crap, all this pain, all this confusion, all these pills.

Now where's the remote?

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A Big Bubble of Love

It caught me completely off guard. On Wednesday I was walking down Washington Street, a main shopping avenue here in Hoboken, and I was suddenly overcome by what I can only describe as a deep sense of peace.

The night before I did some jaw exercises, which mysteriously alleviated the pain (usually they don't work), a state that lasted into the next morning, so at first I thought this newfound contentment was just a result of having a good day catch me by surprise. But there was an otherness to it that I'd never quite felt before--a feeling that it wasn't coming from within me, but rather something that was surrounding me, like a big bubble of love.

I was so invigorated that I decided to keep my appointment with my life coach, Nancy Colasurdo, and afterwards had the energy to do multiple errands around town, which ordinarily would feel like lifting boulders but instead felt effortless.

In a nutshell, I suppose I was just plain calm for the first time in months.

When I got home that evening, I didn't check email for some reason, which is unusual for me. It wasn't until noon the next day that I finally opened my inbox, and to my complete astonishment, there were dozens of emails alerting me to all of the responses to my new blog at Salon. (Even though I publish primarily at Blogger, I recently signed up for a blog at Open.Salon.com, which takes your feed and reproduces your blog post for post, creating a perfect duplicate.)

When I began reading the comments, I was overwhelmed by their compassion, intelligence and offers of prayers, which made me wonder: Was this the reason for that sense of peace the day before?

Wednesday morning, I did read one Salon comment from Vonnia in response to one of my posts in which she said, "I'm holding your hand, and I won't let go." It was so powerful, so sincere, so touching that I carried those words with me throughout the entire day. And I was so surprised at the intensity of my reaction to them, as they felt just so real--like someone was really there holding my hand, bearing silent witness to my suffering with a type of strength and fortitude I couldn't summon on my own.

Who was she, this anonymous woman who offered such a simple promise that has me in tears as I write this?

And who were of all these amazing souls, for that matter, who took the time to write such powerful, warm words straight from their center, who got down in the trenches with me to offer such solace, such understanding, such compassion.

I truly believe that the combination of everything was that fuzzy thing that wrapped around me that afternoon, a full day before I knew where it was coming from.

There are forces out there that we still don't understand, that we haven't fully harnessed, for if I could feel so strongly this outpouring of love, imagine what we could do as a people if we focused our prayers (in whatever form they take) in a collective way on specific issues. Perhaps we really could change the world just by channelling the love in our hearts. That might sound naive, but I know what I felt Wednesday afternoon.

While I've written a lot of words here, there are none that can express my gratitude for this generosity of spirit from perfect strangers. For a chick who's got a lot to say about everything, I'm speechless.


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Hotel Heaven

The pain is overwhelming today. I thought I was really onto something with my last post, and maybe I am, but that doesn't console me right now.

Pain like this is ruthless, brutal, cruel. A few days ago I was on top of the world, which makes this crash all the harsher.

It's hard to know if those insights were real, or if they created just a temporary placebo effect, which has happened to me in the past. The muscles and tendons are still very relaxed, but the localized jaw pain is fierce.

Regardless, I've applied to NYU's psychoanalytic institute. I've got to keep trying, but this sharp increase in pain is crushing; it makes it hard to think let alone take some kind of action.

Last night, I took an oxycontin (10 mg), an advil, a xanax and a few drags of pot, and the pain went away completely. When moments like that occur, it's like the pain never happened. I immediately snap back to myself and my joyousness soars. Instantly, I begin enjoying just normal life stuff, normal life thoughts.

Today, I find myself threatening God, saying that if someone up there doesn't help me soon, I'll be checking in to Hotel Heaven in the not-too-distant future, not out of despondency but logic.

Many people with my condition have killed themselves. In fact, when this first struck in 1999, I joined two different online support groups, which was a disaster. People were so devastated by their pain that all they could manage to write was their misery. It wasn't a true support group, where everyone is helping and uplifting each other, but instead a dumping ground of human agony.

I tried to be cheerful and upbeat, but then one of the patients in the first group killed herself. Her husband wrote in to say that she'd just reached the end of the line and took herself out. Needless to say, I immediately opted out of that group.

But then the following week, a patient in the other group also killed herself, and my blood ran cold, mainly because I so completely understood why she did it. I understood why they both did it, and I realized that this pain was potentially fatal.

What's a little spooky is that a few weeks ago, I had that awful premonition again, the type where I suddenly can't see my future. I didn't tell anyone because I talked myself out of it. But I have to be honest; it happened, and now here I am feeling that I just can't go on. I'm not sure I want to. There's nothing left in me; no hope, no will, no motivation.

In my 20s, when I first began therapy, strange and wonderful things began to happen in my life, where something would meet me halfway in terms of the things I wanted to accomplish.

The first instance was my desire to find a music studio, so that I wasn't doing it in my bedroom all the time and potentially bothering my three roommates. When I thought about what I wanted, I thought of a small, separate room in my building that a writer had been renting for years. When I opened the paper to look for rental space, one of my roommates joked, "Are you looking for a new apartment?"

When I told her I was looking for a space similar to the one rented by the writer downstairs, she told me that she'd just seen him moving out three days prior. I thought it an incredible stroke of luck, and took over the space.

But then these "coincidences" began to multiply. Over and over, I was startled at how doors were opening up for me, and I began to tally up these experiences. I didn't know what it was, but there was a true force at work.

In The Power of Myth, Bill Moyers and Joseph Campbell call this force the "helping hands" phenomenon. The only explanation I could come up with at the time was that when we follow our bliss, we tap into something extraordinary, and I began to understand the notion that "God helps those who help themselves." It seemed that when I took risks to follow my dreams, there was something there to help me, and it was something I knew I could actually count on.

I suppose my problem now is that I have no dreams anymore. There's no bliss to follow. I'm caught in some kind of negative vortex where I'm completely left to my own devices. The helping hands are gone, and I don't know how to get them back.

The writer in me wants a happy ending to this story. I would love to find my way out of pain not just for myself, but to provide a type of road map for others who come after me. But I'm beginning to feel clubbed to death. At some point, I just won't be able to stand up anymore.

Prayers are welcome, because right now, I can't even pray. Please see my future for me.


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Full Speed Ahead

Something remarkable happened this week, and I'm almost superstitious about reporting it.

I had an insight, which was this: How I feel about this pain, every single experience I have of it, precisely repeats how I felt in my childhood. The pattern is almost an exact recreation of the players and the situation I knew growing up, the most difficult of which was my relationship with my dad.

Here are some correlations:

• I’m fighting an enemy that no one can see. I look fine, yet I’m terrorized daily. (No one would’ve ever believed my dad was the tormenter he was. People considered me “lucky” to have the life I did.)
  
• I’m oppressed to the extent that I can hardly think about anything else. Expressing myself creatively takes an extreme amount of energy, and living/enjoying life is secondary to dealing with the pain (dad).
  
• I’m struggling just to get through the day.
  
• I feel punished for an infraction I don’t understand.
  
• The pain (dad’s rage) comes and goes for no reason at all. It’s not at all dependent upon what I do or don’t do.
  
• The pain (dad) crushes me with ruthless abandon.
  
• I don’t see anyone else suffering like this, fighting an enemy like this, so I’m all alone with it.
  
• I don’t feel protected.
  
• No one can help me.
  
• I feel like something is inherently wrong with me, which is why all this is happening. I must deserve it. I must have done something.
  

The list could go on, of course, but when I saw so clearly that this is a repeat of a pattern I’m deeply familiar with, I could see that the relationship I have with this pain is the relationship I had with him.

All of my adult life, I’ve been sick with something; when one thing would resolve, something else would emerge to torment me. The torment has gotten progressively worse.

What’s particularly astonishing is that my dad nowadays has given up on life. He had a small stroke ten years ago that profoundly affected him emotionally. He sits and watches TV all day, unmotivated to do anything.

What have I been doing all month? Sitting in front of the TV all day, unmotivated to do anything.

I can see so clearly the maladaptive patterns of others in my life, but I’ve never been able to turn that same eye on myself to the extent I did this week.

Suffice to say, I’ve been working hard on all this, testing the theory that this pain is surpressed rage, which was a belief of Freud, proven to a large extent by the work of Dr. John Sarno at NYU, who’s cured thousands of back pain and other chronic ailments by helping patients understand the connection. (See the book The Mindbody Prescription for more info.)

When I had this insight, I dare say it was one of the most profound I’ve ever experienced. It all made so much sense, and I felt absolutely flooded with light when it occurred. As long as I focus on this pain, I’m not focusing on the other issues of my psyche. In fact, I dare say that I haven’t revisited them in the five years this has all been going on. And this coming from a woman who LIKES therapy, who’s spent years in it.

Since all this happened, the pain has changed dramatically. It’s far more localized now, and all of the knots in my jaw and neck have diminished significantly.

Sarno says one must be diligent daily about spending time in reflection or meditation, bringing into consciousness the rumblings we feel deep within. We don't have to exactly know what they are or how to resolve them, but we must give them a tip of the hat, so to speak. We have to at least feel them so that they're not driven into avenues like pain.

I've known for years that some important issues have yet to be resolved for me, but as they can make me feel so broken, I was starting to write them off, saying that maybe there are certain things one just can't heal from and we have to learn to live with it.

Curiously, I've made these same exact statements about my pain condition.

I've applied for NYU's psychoanalytic program, which is different from psychotherapy, as you must go multiple times a week. Even if I don't get out of pain, these issues must be addressed if I'm ever going to have a full, loving human experience.

The pain has postponed this leg of my life journey for awhile now, but how much longer can I expect to just drift in confusion?

I'm excited to see where all this will lead. I'm feeling shaky about it, which I suspect means I'm on the right track. At the very least, I'm on a new and shiny track, which beats the current rusty one that has me at a full stop.

Full speed ahead.


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