In my last post, I said that if all things really are relative, then the truths I learned about emotional health during my years in therapy should at least have some application to healing my physical state, which is one of chronic pain.
So I decided to do a five-day diet of all healthy stuff, along with removing caffeine, nicotine, alcohol and sugar (which I've learned is actually the hypoglycemic diet; weird that I discovered that on my own).
Here are the results:
DAY ONE
Came home from my early-morning colonoscopy and had yogurt and granola. Later made a shake of yogurt, soy milk, bananas, raw almonds, protein powder and a touch of real maple syrup. For dinner had edamame and hummus with that Indian pan bread (I forget the name). For dessert had the rest of the shake I'd made earlier.
Cheats: Had a little wine (less than half a glass) before dinner with about three drags of a cigarette.
Observations: None, other than I think I picked up a cold at the hospital. I feel one coming on.
DAY TWO
Made the same protein shake as above for breakfast. For lunch had apple slices smeared with peanut butter. For dinner, had a Sunshine Burger (made primarily from sunflower seeds) on a whole wheat roll and red leaf lettuce (dipped in Paul Newman's Low Fat Sesame Ginger salad dressing--that stuff is SO DELICIOUS. What's the catch?). On the side had a soup of chicken broth with freshly-shopped celery and onions.
Cheats: At 2 p.m. made myself some coffee to remove the meat cleaver wedged into my skull. Just a few sips got rid of the headache. After dinner had a few sips of wine (then dumped the glass) and had a cigarette. That was dumb. It made me feel sick after that great dinner, and actually piqued my pain a bit.
Observations: Without the "schedule" of my usual vices, I felt a bit lost this morning, especially since I had a lot more energy than usual, only didn't know what to do with it. So I did laundry, vacuumed the apartment, and started a painting. Ordinarily, these things would take a lot of effort to set into motion, but they felt relatively easy to do. This surprised me.
This cold is getting worse.
DAY THREE
Had the same protein shake for breakfast, and the same lunch of half an apple and peanut butter for lunch. For dinner had a salad, sunshine burger (sans roll) and an ear of sweet corn. For dessert, had decaf tea and small cup of chocolate chip ice cream. Snacks during day included sunflower seeds, granola and dried banana chips.
Cheats: Had a few sips of coffee in late morning with a cigarette; had an aperitif glass of wine and cig before dinner. The less these things are in my diet, the more poisonous they feel when I take them into my body, especially the coffee. Interesting.
Observations: Hard to tell what's happening as this cold is pretty bad. Just my luck to get sick when I'm' doing a health diet. Interesting visit to hematologist this morning, though. My platelets, which had been way over a million last week came down by half. WTF? My platelet counts can be wacky, though, so I'll consider this a coincidence for now.
DAY FOUR
Smoothie for breakfast; yogurt with granola, along with egg salad on Triscuits for lunch; soup, salad and ear of corn for dinner; decaf tea and cup of ice cream for dessert. Same snacks as yesterday.
Cheats: Same as yesterday.
Observations: Even with the cold, had considerably more energy today. Went to the gym, then to the avenue with the granny shopping cart to buy box of clementines and bag of apples, along with some other sundries. Stopped at copy shop to make fliers for a volunteer group I work for. Then came home and began sorting out all of the art stuff I've brought home from my studio, finding room for everything. Was nice to talk to so many people today. I'm in a great mood!
DAY FIVE
That's today. It's 11:30 a.m., and I'm completely exhausted. Had a smoothie for breakfast, but I feel like someone's pulled the plug on my life force. Had a few sips of coffee and half a cigarette to wake me up, but I'm still tired. Just made a cup of tea. I'll be heading out this afternoon to do an overnight babysit of my nieces, ages two and four, so I better find some energy from somewhere! They always expect a good show. Diet will go out the window once I get there, as we're ordering pizza for dinner.
OVERALL RESULTS
Pain has been fairly steady, and I'm still on pain medication, but there were moments these past few days where the boost of energy made the pain more bearable. I may have overdid the activities yesterday, though, as this morning I'm completely slammed.
I'm going to continue with the diet, as it really hasn't been that hard. What's been the most difficult is what to do with the time and emotions I have when I'm not drinking coffee all morning and smoking.
It's clear that my vices are my escapes not just from the pain, but from the fear and loneliness this condition has brought on. It's hard to face just how let down I feel, still, by the pain, after having devoted my entire adult life to healing my emotional state. There's a cruel irony to it, but I suspect that if I can feel a streak of sustained energy, I'll start to have some confidence in getting my life back.
This energy crash today is a bit of a blow, but I'm not done with the experiment yet. I'll do another five days and report back.
******************************
Showing posts with label painkillers. Show all posts
Showing posts with label painkillers. Show all posts
Sunday, November 15, 2009
Friday, November 06, 2009
Musings from the Brooding Aftermath
Ever since I can remember, I've always questioned the meaning of life, even as a teenager, which back then made me think that I was insane...seriously. While all of my friends seemed to go about the daily business of boys, school, skin issues and just general life, I always had a type of tape loop going in the back of my brain, wondering why any of us were here, and wondering why everyone else wasn't wondering the same.
Of course, I was also hiding my depression and OCD behavior back then, as well as the dark goings-on at home, so I'm sure that added to my questions about the meaning of it all.
But I was never able to just enjoy life with ease, as the plaguing questions about it seemed to thwart its pleasures. Don't get me wrong: I liked having fun, and had the detention notes to prove it. But there was this inner brooding during my teen years that could only be pierced by art, in any of its forms, and so my life-long love affair with music, painting, books and film began, as the artists in these fields were at least asking the same questions as I was, and in their work I could find a camaraderie of sorts.
My first true encounter with art as enlightenment came as a double-whammy in nearly identical experiences. In each case, I was sitting in my living room, my face just a few feet from the TV screen, during two different family affairs where noise and conversation made me sit close to the set.
The first film was Midnight Cowboy, and the second, The Graduate, the former being the more intense experience, as I recall.
During those difficult days, there was little in my world that I could connect to, as I knew I didn't want the life my parents and relatives had chosen, as no one in my world seemed very happy. I thought something was just fundamentally wrong with marriage as an institution, as opposed to what was the real culprit: everyone's inability to say what they were really thinking and feeling. In hindsight, a life mate and kids might have been wonderful experiences for me, but in the kids department, I think it's fair to say that ship has sailed. I do hope some wonderful romance is in my future.
That aside, I remember that by the end of Midnight Cowboy, I felt so moved, and perhaps for the first time, so connected to this strange earthly plane that beforehand had felt so meaningless. Here was a story about two people who felt so forsaken themselves, who had been cast off by society, living in their perspective dreamworlds that held little hope for anything more than what they could eek out on that particular day. They were outcasts, oddballs, losers and lost, just like me, no matter what my good grades, quick smile and bevy of friends might have suggested otherwise.
Suddenly I realized that a whole other world existed out there than the one I lived in...a world where people not only thought about the greater questions of life, but actually created something from them that made us all feel just a little closer, if only through our compassion for these characters and their plight.
Of course, The Graduate spoke loud and clear to me, as well, as what young person couldn't identify with Dustin Hoffman's Benjamin Braddock, who was also seeking something more meaningful than what the culture around him could offer. Even though his world was of the white collar variety (and mine, blue), the issues were universal, and I will be forever grateful to these filmmakers and screenwriters for doing whatever it took to get these stories to the screen.
I suppose it's not surprising that as I was to go on to become a singer/songwriter, my songs would be so story-based. As some reviewers would observe, the songs wouldn't so much tell the story as to suggest it; the lyrics were the words going through the characters' heads in "the brooding aftermath" of what had just occurred, according to one (thank you, Linus Gelber).
Of course, my music is behind me now, even though I still pick up the guitar now and then. Yet there seems to be some kind of curious irony happening that the questions I asked about life's meaning as a teenager are as profound as they ever were, only now the result of an untreatable pain condition. At its very core, the unfathomableness of this experience (and those like it) flies in the face of any argument that declares the human experience as one of destiny and inherent meaning.
The one thing I can truly believe, though, the one thing that has been so sustaining this past year, is that while the experience of pain may indeed be meaningless, I can choose to give it meaning, when I'm able, by writing this blog.
I've been gifted with the ability to write, to communicate, and while I haven't been able to muster up a single tune about this awful experience, I have been able to get it down here, to at least attempt an explanation of what it's like, if for no other reason than to give voice to an ordeal that has rendered too many mute, some permanently.
This condition carries the awful nickname of "the suicide disease," as so many patients simply give up when they exhaust all avenues for relief; that's how bad it is.
But there is something in me that feels compelled not to give in, to continue to be the private eye who will solve the case, if not to get out of pain, then to discover a means to gracefully weave it into my life, if that's even possible. (I'm investigating all of the many ideas so many of you sent in your comments...thank you!)
It's as though I can't let my pain-mates down, which in many ways has been the thrust of so many of my creative pursuits over the years, even before I found myself in these particular dire straits. I must at least try to speak for us, and try even harder to solve the riddle of how to live when the unthinkable happens. I'm not sure if that earns me a gold star, or just an inflated ego for a short while as yet another coping mechanism that, like so many others, will ultimately give way under the weight and wear of all things relentless.
I hurt so bad today, and I've got just one Vicodin left until tomorrow. And it's only 12:39 p.m. as I write this.
Maddone.
*******************************
Some kind readers have asked about my music. Full streaming songs can be heard for free here:
http://maryannfarley.com/index_files/buy.htm
Paintings are watercolors from my illustrated journal.
And Linus Gelber's full review is here: http://www.musicdish.com/mag/index.php3?id=2427
A sampling: "There are stories in her music, but they are private ones; her characters show but don't tell. We meet them instead in their pondering aftermaths, musing brokenly about what has gone before and how it got them here."
******************************
Of course, I was also hiding my depression and OCD behavior back then, as well as the dark goings-on at home, so I'm sure that added to my questions about the meaning of it all.
But I was never able to just enjoy life with ease, as the plaguing questions about it seemed to thwart its pleasures. Don't get me wrong: I liked having fun, and had the detention notes to prove it. But there was this inner brooding during my teen years that could only be pierced by art, in any of its forms, and so my life-long love affair with music, painting, books and film began, as the artists in these fields were at least asking the same questions as I was, and in their work I could find a camaraderie of sorts.
My first true encounter with art as enlightenment came as a double-whammy in nearly identical experiences. In each case, I was sitting in my living room, my face just a few feet from the TV screen, during two different family affairs where noise and conversation made me sit close to the set.
The first film was Midnight Cowboy, and the second, The Graduate, the former being the more intense experience, as I recall.
During those difficult days, there was little in my world that I could connect to, as I knew I didn't want the life my parents and relatives had chosen, as no one in my world seemed very happy. I thought something was just fundamentally wrong with marriage as an institution, as opposed to what was the real culprit: everyone's inability to say what they were really thinking and feeling. In hindsight, a life mate and kids might have been wonderful experiences for me, but in the kids department, I think it's fair to say that ship has sailed. I do hope some wonderful romance is in my future.
That aside, I remember that by the end of Midnight Cowboy, I felt so moved, and perhaps for the first time, so connected to this strange earthly plane that beforehand had felt so meaningless. Here was a story about two people who felt so forsaken themselves, who had been cast off by society, living in their perspective dreamworlds that held little hope for anything more than what they could eek out on that particular day. They were outcasts, oddballs, losers and lost, just like me, no matter what my good grades, quick smile and bevy of friends might have suggested otherwise.
Suddenly I realized that a whole other world existed out there than the one I lived in...a world where people not only thought about the greater questions of life, but actually created something from them that made us all feel just a little closer, if only through our compassion for these characters and their plight.
Of course, The Graduate spoke loud and clear to me, as well, as what young person couldn't identify with Dustin Hoffman's Benjamin Braddock, who was also seeking something more meaningful than what the culture around him could offer. Even though his world was of the white collar variety (and mine, blue), the issues were universal, and I will be forever grateful to these filmmakers and screenwriters for doing whatever it took to get these stories to the screen.
I suppose it's not surprising that as I was to go on to become a singer/songwriter, my songs would be so story-based. As some reviewers would observe, the songs wouldn't so much tell the story as to suggest it; the lyrics were the words going through the characters' heads in "the brooding aftermath" of what had just occurred, according to one (thank you, Linus Gelber).
Of course, my music is behind me now, even though I still pick up the guitar now and then. Yet there seems to be some kind of curious irony happening that the questions I asked about life's meaning as a teenager are as profound as they ever were, only now the result of an untreatable pain condition. At its very core, the unfathomableness of this experience (and those like it) flies in the face of any argument that declares the human experience as one of destiny and inherent meaning. The one thing I can truly believe, though, the one thing that has been so sustaining this past year, is that while the experience of pain may indeed be meaningless, I can choose to give it meaning, when I'm able, by writing this blog.
I've been gifted with the ability to write, to communicate, and while I haven't been able to muster up a single tune about this awful experience, I have been able to get it down here, to at least attempt an explanation of what it's like, if for no other reason than to give voice to an ordeal that has rendered too many mute, some permanently.
This condition carries the awful nickname of "the suicide disease," as so many patients simply give up when they exhaust all avenues for relief; that's how bad it is.
But there is something in me that feels compelled not to give in, to continue to be the private eye who will solve the case, if not to get out of pain, then to discover a means to gracefully weave it into my life, if that's even possible. (I'm investigating all of the many ideas so many of you sent in your comments...thank you!)
It's as though I can't let my pain-mates down, which in many ways has been the thrust of so many of my creative pursuits over the years, even before I found myself in these particular dire straits. I must at least try to speak for us, and try even harder to solve the riddle of how to live when the unthinkable happens. I'm not sure if that earns me a gold star, or just an inflated ego for a short while as yet another coping mechanism that, like so many others, will ultimately give way under the weight and wear of all things relentless.
I hurt so bad today, and I've got just one Vicodin left until tomorrow. And it's only 12:39 p.m. as I write this.
Maddone.
*******************************
Some kind readers have asked about my music. Full streaming songs can be heard for free here:
http://maryannfarley.com/index_files/buy.htm
Paintings are watercolors from my illustrated journal.
And Linus Gelber's full review is here: http://www.musicdish.com/mag/index.php3?id=2427
A sampling: "There are stories in her music, but they are private ones; her characters show but don't tell. We meet them instead in their pondering aftermaths, musing brokenly about what has gone before and how it got them here."
******************************
Monday, November 02, 2009
Pills For Enlightenment
It would seem impossible that I could live a life without painkillers at this moment. This morning was a bad one that required one morphine pill, a Xanax and three Vicodins to get the pain to a somewhat bearable level, but I can no longer stand what these medications are doing to my spirit.
As I felt the pain battle for supremacy in my face and jaw (despite the meds), I decided to just lay on the couch at one point and give in, to not fight, to boldly tell it to get as bad as it wants to get--that I can take it.
It's always remarkably relaxing when I do this, as I suppose in these moments I can compartmentalize the pain, set it aside, and live with it instead of fighting it. But for some reason, I seem to do this only when I arrive at the point where I'm realizing it's winning handsomely, and the only way to win the war, so to speak, is to surrender the battle.
When I do this, the pain does ease up somewhat, and I wondered this morning if this tactic would be successful if I went off pain medication altogether. It seemed like such a shockingly bold move, even stupid, but the idea intrigued me.
Yet when I significantly decreased my pain meds in an experiment last week, the pain skyrocketed, and it took two days to get it down again. It's actually been pretty bad ever since.
But I literally can't stand this medication fog anymore. As I've been so isolated and sedentary for most of the past year, I joined a gym this week, and man, what an effort not only to exercise, but just to walk over there! My malaise fought me every inch of the way, and the depressing thought kept creeping in, "Why am I bothering?"
What's keeping my hope afloat, though, are the memories of more joyous times, when, despite my problems and issues, life could also feel electric and exciting, and I would be wildly filled with creative ideas that gave me more than enough fuel to execute them.
But my days are so very different now. And I have to wonder how they fit into the overall pattern of success/defeat defeat that has defined so much of my life. If everything around us is truly connected by some kind of universal web, where past, present and future are illusions of our three-dimensional world, and if I go on the assumption that I'm here on this earthly plane to learn deep truths via the gift of free choice, then what is the lesson?
Of course, my malady may be nothing more than a freak occurrence of bad luck, but for the sake of argument, if this ordeal does somehow reflect a bigger picture, what in that picture am I missing?
When I think along these lines (which always seem to effortlessly surface during these moments of surrender), it all feels so profoundly obvious to me--that of course this is all connected, you numnut, but you just don't want to go there. You don't want to face the sheer terror of the wild blue yonder before you, and instead would prefer to stay in your hovel of pain and medication, where the space is oh so small, but oh so familiar.
As I've written about before, most of my adult life was devoted to music, to being the best singer/songwriter I could be. Those were heady times indeed, but when one is so singularly focused on JUST ONE THING in life and that thing no longer exists, it's hard to feel anchored to the earth anymore, despite my other artistic endeavors.
And why was my life devoted to JUST ONE THING? Because I felt so incapable of succeeding in love relationships. Time after time, I made such poor choices in men, which had less to do with them and more to do with my low self-esteem. And let's face it...a life without love, or even the potential for love, is hardly a life at all. I dare say my fear of intimacy borders on something pathological, and I am the less for it.
Of course, now that I'm so ill, in such pain and on so many medications, I continue to feel myself unworthy of a love relationship, but of course this is just more of my bullshit. I'm aware that I'm actually quite good (for the most part) at handling extremely difficult physical conditions, and I'm also aware that no one is perfect; that we all have our proverbial crosses to bear and baggage to unload. Pain and illness does not deem me unlovable, but in my own mind, it gives me an excuse to melodramatically retreat, which is made all the easier by the fatigue created by the meds.
It's a vicious cycle indeed. Pain and fatigue keep me isolated, yet isolation keeps me away from any possibility of love, which would restore much-needed balance in my life, whether the pain was there or not.
It's certainly no easy thing to wake up with severe pain in the morning, and would be harder still to take a stab at not medicating it, but something has got to give. I've become frozen in time, remembering the person I used to be, yet only vaguely seeing the person I could become. And therein, perhaps, lies the rub.
With all previous definitions of myself shattered, who am I now, and who do I want to be? Where do I go from here? I can't see it, and this terrifies me, frankly. And with pain taking up so much real estate in my brain, it's difficult to formulate a new vision for myself or for anything...even some nutty creative endeavor.
Before all this happened, I was actually feeling okay about setting the music aside for awhile, by exploring new paths, by venturing forward full speed ahead in faith and love.
But of course, my faith was shattered, too, when pain exploded onto the scene. God not only vacated his co-pilot seat in my life; he actually hit the ejector button, leaving me to crash land in some foreign sea all on my own. I've been trying hard ever since not to drown.
And so my present is now largely defined by reruns of Criminal Minds. Nothing soothes the tortured soul, it seems, like stories of sociopathic serial killers.
I watched a preacher today during a Sunday morning TV program, and he talked about faith, about putting our troubles in God's hands. He focused mainly on the recession and the joblessness that many of his followers were no doubt experiencing, noting Bible passages that basically said to quit worrying, have faith that God will provide, and just enjoy your life.
When it comes to money and my freelance work, I can get with that. But how those parables apply to someone in chronic pain still has me stumped. Maybe they don't apply, or can't. Once again, I'm reminded of Buddhist teachings that say there will always be suffering in life; the trick is to rise above it (no matter how harsh the circumstances), relinquish your attachments, and enjoy the bliss that ensues.
But I'm told by this one Buddhist sect that I'll have to chant two to three hours a day to attain this enlightenment. Huh? What? Is this a joke? I get impatient with how long it takes to walk to my kitchen. Can't they just make a pill for it?
**************************************
Note: Watercolors are some new entries in my illustrated journal. I'm using them as inspiration to get back to my flamenco classes!
**************************************
As I felt the pain battle for supremacy in my face and jaw (despite the meds), I decided to just lay on the couch at one point and give in, to not fight, to boldly tell it to get as bad as it wants to get--that I can take it.
It's always remarkably relaxing when I do this, as I suppose in these moments I can compartmentalize the pain, set it aside, and live with it instead of fighting it. But for some reason, I seem to do this only when I arrive at the point where I'm realizing it's winning handsomely, and the only way to win the war, so to speak, is to surrender the battle.When I do this, the pain does ease up somewhat, and I wondered this morning if this tactic would be successful if I went off pain medication altogether. It seemed like such a shockingly bold move, even stupid, but the idea intrigued me.
Yet when I significantly decreased my pain meds in an experiment last week, the pain skyrocketed, and it took two days to get it down again. It's actually been pretty bad ever since.
But I literally can't stand this medication fog anymore. As I've been so isolated and sedentary for most of the past year, I joined a gym this week, and man, what an effort not only to exercise, but just to walk over there! My malaise fought me every inch of the way, and the depressing thought kept creeping in, "Why am I bothering?"
What's keeping my hope afloat, though, are the memories of more joyous times, when, despite my problems and issues, life could also feel electric and exciting, and I would be wildly filled with creative ideas that gave me more than enough fuel to execute them.
But my days are so very different now. And I have to wonder how they fit into the overall pattern of success/defeat defeat that has defined so much of my life. If everything around us is truly connected by some kind of universal web, where past, present and future are illusions of our three-dimensional world, and if I go on the assumption that I'm here on this earthly plane to learn deep truths via the gift of free choice, then what is the lesson?
Of course, my malady may be nothing more than a freak occurrence of bad luck, but for the sake of argument, if this ordeal does somehow reflect a bigger picture, what in that picture am I missing?
When I think along these lines (which always seem to effortlessly surface during these moments of surrender), it all feels so profoundly obvious to me--that of course this is all connected, you numnut, but you just don't want to go there. You don't want to face the sheer terror of the wild blue yonder before you, and instead would prefer to stay in your hovel of pain and medication, where the space is oh so small, but oh so familiar.
As I've written about before, most of my adult life was devoted to music, to being the best singer/songwriter I could be. Those were heady times indeed, but when one is so singularly focused on JUST ONE THING in life and that thing no longer exists, it's hard to feel anchored to the earth anymore, despite my other artistic endeavors.
And why was my life devoted to JUST ONE THING? Because I felt so incapable of succeeding in love relationships. Time after time, I made such poor choices in men, which had less to do with them and more to do with my low self-esteem. And let's face it...a life without love, or even the potential for love, is hardly a life at all. I dare say my fear of intimacy borders on something pathological, and I am the less for it.
Of course, now that I'm so ill, in such pain and on so many medications, I continue to feel myself unworthy of a love relationship, but of course this is just more of my bullshit. I'm aware that I'm actually quite good (for the most part) at handling extremely difficult physical conditions, and I'm also aware that no one is perfect; that we all have our proverbial crosses to bear and baggage to unload. Pain and illness does not deem me unlovable, but in my own mind, it gives me an excuse to melodramatically retreat, which is made all the easier by the fatigue created by the meds.
It's a vicious cycle indeed. Pain and fatigue keep me isolated, yet isolation keeps me away from any possibility of love, which would restore much-needed balance in my life, whether the pain was there or not.
It's certainly no easy thing to wake up with severe pain in the morning, and would be harder still to take a stab at not medicating it, but something has got to give. I've become frozen in time, remembering the person I used to be, yet only vaguely seeing the person I could become. And therein, perhaps, lies the rub.
With all previous definitions of myself shattered, who am I now, and who do I want to be? Where do I go from here? I can't see it, and this terrifies me, frankly. And with pain taking up so much real estate in my brain, it's difficult to formulate a new vision for myself or for anything...even some nutty creative endeavor.
Before all this happened, I was actually feeling okay about setting the music aside for awhile, by exploring new paths, by venturing forward full speed ahead in faith and love.
But of course, my faith was shattered, too, when pain exploded onto the scene. God not only vacated his co-pilot seat in my life; he actually hit the ejector button, leaving me to crash land in some foreign sea all on my own. I've been trying hard ever since not to drown.
And so my present is now largely defined by reruns of Criminal Minds. Nothing soothes the tortured soul, it seems, like stories of sociopathic serial killers.
I watched a preacher today during a Sunday morning TV program, and he talked about faith, about putting our troubles in God's hands. He focused mainly on the recession and the joblessness that many of his followers were no doubt experiencing, noting Bible passages that basically said to quit worrying, have faith that God will provide, and just enjoy your life.
When it comes to money and my freelance work, I can get with that. But how those parables apply to someone in chronic pain still has me stumped. Maybe they don't apply, or can't. Once again, I'm reminded of Buddhist teachings that say there will always be suffering in life; the trick is to rise above it (no matter how harsh the circumstances), relinquish your attachments, and enjoy the bliss that ensues.
But I'm told by this one Buddhist sect that I'll have to chant two to three hours a day to attain this enlightenment. Huh? What? Is this a joke? I get impatient with how long it takes to walk to my kitchen. Can't they just make a pill for it?
**************************************
Note: Watercolors are some new entries in my illustrated journal. I'm using them as inspiration to get back to my flamenco classes!
**************************************
Thursday, August 06, 2009
When Love Is Enough
I awoke this morning with an aching emptiness, as I knew this was a day that I was going to take a much harder look at myself, without the crutch of abusive substances.
What's been a little disturbing lately is my glass of wine in late afternoon, after my day is pretty much done. It's never been a problem, nor even a daily habit, but I've noticed this past week or so that the time I pour it has been inching up by a half-hour or so, and yesterday I poured a small amount at about 2:30 p.m. instead of my usual 4 p.m. or after.
While my intake has remained the same, this earlier start is scaring me, as it should, and when I went to sleep last night, I promised myself that today, no matter how well I'd be able to resist the clutches of pain medication, smoking and now wine, I would at least take a hard look at my feelings, and the best mirrors I've got are my private journal and this blog.
What's so interesting about these promises we make to ourselves is that most of the time they're half-hearted, something we say to make ourselves feel better for the moment, but never really put into action. But then there are those occasions when we know we mean it, and that's when life can get scary indeed.
Even before I began journal writing today, my anxiety level was up, almost as a type of wall to prevent me from this little trip into the unknown. But I stuck to my guns, made a cup of coffee, watched the last few minutes of a Sopranos rerun (no matter how bad things are, I have to see what Tony is up to), did not light up a smoke, and began writing.
I wish I could say that some startling insight was uncovered, but instead, what became as plain as day was that the pain in my jaw is still holding on with a fierce grip, and I literally felt sadness wash over me like a wave.
Somehow, in recent months, I've been distracted from the pain by family drama, by new freelance writing assignments, by trips to the shore to help my parents, and, of course, by pain medication.
When I told my doctor last week that I was taking way too much Vicodin, he switched me to MSContin, which is morphine sulphate in pill form. While that may somehow sound more dangerous in terms of addiction, for me it's a better choice in that I actually take less medication yet get better pain control. And I don't get the mood lift I was getting from the Vicodin, which, to be honest, is something I've come to miss.
With MSContin, the medication is released slowly over the course of 8 hours, so there's no rush, and therefore no quick and easy escape from the pain and sadness of my condition.
When I just sat with my feelings this morning, not having any deadlines looming or any particular place to be, there was a stillness there, a lack of motivation of any kind, which was in such stark contrast to just yesterday morning, when I felt like I had the world on a string, making all kinds of plans for a type of playday as a reward for meeting a big deadline--first to ride my bike, then to paint at my studio.
Those plans changed, of course, when I took that first sip of wine at 2:30, and interest in anything else simply and quickly waned. I cursed my behavior, vowing to do better today, and indeed I have. I've had one dose of medication and one cigarette, and it's now nearing 2 p.m. And I've made plans to meet a friend in about a half-hour.
But the pain in my face has me reaching--that feeling of wanting to grab something, anything, that will make me feel better, that will quell the loneliness that comes with chronic pain and constant disappointment.
At this particular moment, I suppose I need to just have faith, not in God, per se, but in the realization that in resisting the reach, I will feel better overall--maybe not now, but perhaps tomorrow, or the next day. That's hard to see in the moments of deep sorrow or wrenching pain, or in the throes of an addiction spell. When the latter occurs, it feels like every cell in my body is screaming for relief, and turning a deaf ear for the five minutes or so it takes for a craving to pass can feel like a lifetime.
I talked to a friend about faith earlier today, and I can see that I haven't lost it--it's just changed shape. When I pray now, I don't use the word God anymore, as it's attached to just too much baggage from my Catholic upbringing.
I pray to the "Universal Spirit" instead, which when I shorten it to the letters "U" and "S," spells "us." And that's something I can get with indeed.
All this misery has made me feel the love of others and within myself in ways I never have before, and as I said to my friend this morning, in terms of faith, love is enough. I don't need to pray to some great being in the sky, but I do need to pray to whatever the mysterious source is of all this deep compassion. When I pray to this universal spirit of love, I feel it, and I feel it for me in particular.
That's new.
***************************
What's been a little disturbing lately is my glass of wine in late afternoon, after my day is pretty much done. It's never been a problem, nor even a daily habit, but I've noticed this past week or so that the time I pour it has been inching up by a half-hour or so, and yesterday I poured a small amount at about 2:30 p.m. instead of my usual 4 p.m. or after.
While my intake has remained the same, this earlier start is scaring me, as it should, and when I went to sleep last night, I promised myself that today, no matter how well I'd be able to resist the clutches of pain medication, smoking and now wine, I would at least take a hard look at my feelings, and the best mirrors I've got are my private journal and this blog.
What's so interesting about these promises we make to ourselves is that most of the time they're half-hearted, something we say to make ourselves feel better for the moment, but never really put into action. But then there are those occasions when we know we mean it, and that's when life can get scary indeed.
Even before I began journal writing today, my anxiety level was up, almost as a type of wall to prevent me from this little trip into the unknown. But I stuck to my guns, made a cup of coffee, watched the last few minutes of a Sopranos rerun (no matter how bad things are, I have to see what Tony is up to), did not light up a smoke, and began writing.
I wish I could say that some startling insight was uncovered, but instead, what became as plain as day was that the pain in my jaw is still holding on with a fierce grip, and I literally felt sadness wash over me like a wave.
Somehow, in recent months, I've been distracted from the pain by family drama, by new freelance writing assignments, by trips to the shore to help my parents, and, of course, by pain medication.
When I told my doctor last week that I was taking way too much Vicodin, he switched me to MSContin, which is morphine sulphate in pill form. While that may somehow sound more dangerous in terms of addiction, for me it's a better choice in that I actually take less medication yet get better pain control. And I don't get the mood lift I was getting from the Vicodin, which, to be honest, is something I've come to miss.
With MSContin, the medication is released slowly over the course of 8 hours, so there's no rush, and therefore no quick and easy escape from the pain and sadness of my condition.
When I just sat with my feelings this morning, not having any deadlines looming or any particular place to be, there was a stillness there, a lack of motivation of any kind, which was in such stark contrast to just yesterday morning, when I felt like I had the world on a string, making all kinds of plans for a type of playday as a reward for meeting a big deadline--first to ride my bike, then to paint at my studio.
Those plans changed, of course, when I took that first sip of wine at 2:30, and interest in anything else simply and quickly waned. I cursed my behavior, vowing to do better today, and indeed I have. I've had one dose of medication and one cigarette, and it's now nearing 2 p.m. And I've made plans to meet a friend in about a half-hour.
But the pain in my face has me reaching--that feeling of wanting to grab something, anything, that will make me feel better, that will quell the loneliness that comes with chronic pain and constant disappointment.
At this particular moment, I suppose I need to just have faith, not in God, per se, but in the realization that in resisting the reach, I will feel better overall--maybe not now, but perhaps tomorrow, or the next day. That's hard to see in the moments of deep sorrow or wrenching pain, or in the throes of an addiction spell. When the latter occurs, it feels like every cell in my body is screaming for relief, and turning a deaf ear for the five minutes or so it takes for a craving to pass can feel like a lifetime.
I talked to a friend about faith earlier today, and I can see that I haven't lost it--it's just changed shape. When I pray now, I don't use the word God anymore, as it's attached to just too much baggage from my Catholic upbringing.
I pray to the "Universal Spirit" instead, which when I shorten it to the letters "U" and "S," spells "us." And that's something I can get with indeed.
All this misery has made me feel the love of others and within myself in ways I never have before, and as I said to my friend this morning, in terms of faith, love is enough. I don't need to pray to some great being in the sky, but I do need to pray to whatever the mysterious source is of all this deep compassion. When I pray to this universal spirit of love, I feel it, and I feel it for me in particular.
That's new.
***************************
Sunday, July 12, 2009
My Father, My Car and Michael Jackson
It's been over a month since my last post. During this time, my dad had a heart attack, which required a week in the hospital, then quadruple bypass surgery, which required another week, and now rehab, where he's been for seven days and will be there for seven more.
To call this a stressful period for both me and my family is an understatement. Of course, the stress caused by a parent suffering through a major health issue is a given for any adult child, but what I didn't expect was the resurfacing of major issues from my childhood, which, oddly enough, has given me great insight into the death of Michael Jackson, which also happened during this time.
In a sense, I wasn't at all surprised that my dad had the heart attack, as the week before, while visiting my parents for four days, my dad was raging. Even though I talk with my mom every day, I hadn't visited them much during the spring as I was without a car, and as I have a 17-pound cat, transport to and from the Jersey shore on mass transit was just too problematic, so I wasn't aware of how bad the rages had become.
As I was struggling one week looking through the classifieds to find a used car I could afford, my dad made the extraordinary offer of buying me a completely new car, so I purchased a $13K Hyundai Accent, which was thrilling, as this was the first time in my life to own a brand new vehicle.
Over the course of my life, the way my father has so often showed his love for me has been via my cars. Before my parents sold their suburban home and moved to a garden apartment at the beach, whenever I'd visit, my dad would lavish my vehicles with the type of attention and interest that he found too difficult to express to me personally. My visits to their home often resulted in my car getting washed and waxed, a new oil change, and a full tank of gas.
Even though conversations could be difficult, as his moods were always so unpredictable, I could frequently be assured that my car would leave the drive in fine shape, and as I got older, I realized that this was an act of love on his part, and I recognized it as such.
His behavior was often bittersweet in so many ways, as I'd always known that the guy would have taken a bullet for me, yet when it came to day to day matters during my formative years, he seemed to have a pathological need to criticize me, and it was beyond him simply wanting to live through his child, as many overly critical parents are wont to do. His criticisms often had a sadistic edge, where there was clearly a perverse type of pleasure in making me self-conscious or embarrassed concerning things I could do nothing about, like certain physical characteristics.
He would also often fly into rages over absolutely nothing at all, like me having "looked at him funny," which could mean the silent treatment for weeks at a time, or saying words that were just so hurtful that it was actually better for him to say nothing at all.
To detail all of the infractions would be just too painful to relive in this essay, and perhaps isn't even necessary, as the point is that no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids.
This has certainly been the case for me, yet during the past ten years or so, my father had calmed down considerably due in large part to the onset of hydrocephalus, a condition whereby fluid accumulates in the brain and makes the patient very tired, forgetful and quiet. While this illness made me miss the part of my dad that could be so charming and funny (at least with others), I certainly didn't miss the verbal abuse, which could still rear its ugly head now and then, but not to the extent it once had. In a a weird way, this was a blessing, particularly for my mother, who cares for him solely.
Yet for some reason, in recent months, the rage seemed to resurface, and it was worse than ever. My mom attributes it to the election of Obama, who he hates, and his constant viewing of Fox News, which fans the flames of bigotry and hatred no matter how "fair and balanced" they say they are.
The week before his heart attack, I experienced this rage firsthand when I went to the shore to show my parents my new car. What should have been a joyous gathering to celebrate my swanky, new vehicle instead turned into a four-day diatribe against me, the likes of which I hadn't experienced since I was a girl. And just like what happened in my most innocent days, I was caught completely off guard, and felt devastated by the contempt and loathing directed at me for no reason at all.
The first day I was there was innocuous enough, but on the second, while watching television together, I asked him to hit the "info" button on the remote, and he screamed that he wasn't going to "hit every goddamn button just so that you can see the year the film was made!" He then threw the remote at me before storming off to his room for a few hours.
On day three, while Obama was making a speech, he began ranting about what a liar he was, a familiar tactic to bait me into a political conversation so that he could rail against liberals and minorities. (I now just walk away from these useless discussions, as he loathes liberals, of which I'm one.) And on day four, while my mother was visiting a sick friend in the complex and I was doing the dishes, he asked, "Why are you still here?" in the angriest of tones. The list could go on, but you get the idea.
By the time I left, I couldn't get out of there fast enough, so when I got a call from my mom the following weekend that he was in the ER with a heart attack, my knees buckled a bit (despite the abuse, I never want to hear that either of my parents is suffering), but I wasn't surprised at the news. None of us was.
As we began visiting him over the next few weeks, the old dynamic took root, and I could feel that old familiar depression set in, as he was so charming, sweet and funny with all the doctors and nurses, but absolutely vile to me and my mom. (He's somewhat calmer with my sister, my only sibling who's 16 years younger than me--the "surprise" baby of the family; he's always been closer to her as he had a much larger hand in her rearing. Still, she, too, has suffered at his hands, and bears similar scars as a result.)
The unkindest cut of all came on the day he was transferred from the hospital to rehab. After my mom and I spent four and a half hours with him this one particular morning, I suggested that she and I go home for awhile, then come back a few hours later.
In a sneer, he uttered, "Don't you want to be here?" I said, "Dad, we're just going to go home for a bit. We'll be back. Please don't be offended."
And with that, his face blew up into a tomato-red balloon, he showed his teeth, then raised both fists to my face. I don't even want to recount what he said next, but it's something no daughter should ever hear from her father. I was absolutely stunned, and on the way home with my mother, I said things I couldn't believe would ever come out of my mouth. My basic premise was that it would have been easier if he'd just died.
Not surprisingly, we didn't go back that day, and for the rest of the week, I didn't go visit him. My mom did, as did my sister, and both repeatedly said he owed me an apology. At first he growled, "I don't owe her a damn thing," and when my mom said at one point that I was still very hurt, he said, "Let her stew in it."
But as the days passed, I suppose he began to think about what he had said and done, and he begrudingly agreed that he owed me an apology. So I relented and went to visit him yesterday, and upon leaving, he said, "I'm sorry we had an argument." I had to laugh somewhat, as he didn't take responsibility at all for what he had done, but I knew that was the best I was going to get. I kissed him goodbye and said, "I just want to be friends, Dad. All I've ever wanted was a loving relationship with my father."
I could see he was uncomfortable with my comment, as his eyes darted around, and he mumbled something like, "Okay," but that was that, and I came home to my apartment, where I'm tending to my own life before I head back to the shore again in a few days.
What I'm left with now, of course, is keen insight into how I've been shaped by my father's behavior towards me all these years, and despite the decades of psychotherapy, I'm realizing that while my happiness is entirely my responsibility, the scars left from the psychological dismantling of my identity and self-esteem in childhood might never fully heal, and maybe that's okay, in a weird way. It all has made me a more compassionate, tolerant and open-minded person, and for this, I'm thankful, although I'd like to think I would have been this way anyway, without all the misery.
After Michael Jackson's death, so much information came out about his own father's treatment of him, which wasn't exactly news, of course, but the revelation of the depth of Jackson's torment was something I fully understood in a way I hadn't before. And to hear that he'd become such a pill addict was another uncomfortable identification with him, as these painkillers are still a monkey on my back, but I've developed a strange comfort with this creature, as sick a relationship as it may be.
After my surgery, I did begin to experience some pain-free days (even without the hyperbaric treatment, which Medicare declined anyway), but with all the emotion stirred by this recent debacle (and the descent back into bad habits, like smoking), I've been holding onto the pills tighter than I perhaps ever have.
The emotional trauma set the pain off again to a searing level, and during the 48 hours after my father's outburst, I literally could not stop shaking or crying. I was in such a rage myself that I swore I'd never speak to him again, but I soon realized the destructive power of holding onto anger, and upon the advice of my friend Paul, I began to pray for my dad, and slowly, the rage did begin to lift.
Instead, I began to feel compassion for him, wondering what in the world had happened to him in his own childhood that created this Dr. Jekyll/Mr. Hyde personality. In talking with my cousin, who is close to my dad's age, family stories have begun to surface that are dark and cold, and it's clear that the cycle of abuse is a mysterious beast indeed.
Last night, after I came home from the shore, I had dinner with my dear friend Lynda, and after catching up on news about our own lives, we began to discuss the tragedy of Michael Jackson, particularly about the connection between his father, his plastic surgery and his pill addiction.
At one point, Lynda told me that upon hearing of Jackson's demise, she couldn't help but worry about me and my own painkiller abuse, as there were such parallels between Jackson's story and my own, albeit without the plastic surgery (not that I haven't considered it over the years, but I've never been able to afford it; plus, I knew there was much more to learn by not doing it).
When she said this, there was that pregnant pause between friends when an uncomfortable truth is uttered, and I did indeed feel a chill. As I've pondered Jackson's death these past weeks, I keep thinking, "Why didn't you get help? Why did you use the pills to squash your sadness and anger, and why couldn't you get off them? Why did you let your father's words destroy you?"
It's easy to ask these questions of another person, but not so easy to ask them of ourselves. I do ask them, of course, but that doesn't stop the next pill, the next cigarette, the next glass of wine or the relentless pain in my face and jaw. It's all a recipe for disaster and death, made all the more real by Jackson's untimely self-induced passing, and by the memory of my dad's fists in my face, and the outburst of words that can never be taken back.
I can't let him destroy me.
*************************************
To call this a stressful period for both me and my family is an understatement. Of course, the stress caused by a parent suffering through a major health issue is a given for any adult child, but what I didn't expect was the resurfacing of major issues from my childhood, which, oddly enough, has given me great insight into the death of Michael Jackson, which also happened during this time.
In a sense, I wasn't at all surprised that my dad had the heart attack, as the week before, while visiting my parents for four days, my dad was raging. Even though I talk with my mom every day, I hadn't visited them much during the spring as I was without a car, and as I have a 17-pound cat, transport to and from the Jersey shore on mass transit was just too problematic, so I wasn't aware of how bad the rages had become.
As I was struggling one week looking through the classifieds to find a used car I could afford, my dad made the extraordinary offer of buying me a completely new car, so I purchased a $13K Hyundai Accent, which was thrilling, as this was the first time in my life to own a brand new vehicle.
Over the course of my life, the way my father has so often showed his love for me has been via my cars. Before my parents sold their suburban home and moved to a garden apartment at the beach, whenever I'd visit, my dad would lavish my vehicles with the type of attention and interest that he found too difficult to express to me personally. My visits to their home often resulted in my car getting washed and waxed, a new oil change, and a full tank of gas.
Even though conversations could be difficult, as his moods were always so unpredictable, I could frequently be assured that my car would leave the drive in fine shape, and as I got older, I realized that this was an act of love on his part, and I recognized it as such.
His behavior was often bittersweet in so many ways, as I'd always known that the guy would have taken a bullet for me, yet when it came to day to day matters during my formative years, he seemed to have a pathological need to criticize me, and it was beyond him simply wanting to live through his child, as many overly critical parents are wont to do. His criticisms often had a sadistic edge, where there was clearly a perverse type of pleasure in making me self-conscious or embarrassed concerning things I could do nothing about, like certain physical characteristics.
He would also often fly into rages over absolutely nothing at all, like me having "looked at him funny," which could mean the silent treatment for weeks at a time, or saying words that were just so hurtful that it was actually better for him to say nothing at all.
To detail all of the infractions would be just too painful to relive in this essay, and perhaps isn't even necessary, as the point is that no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids.
This has certainly been the case for me, yet during the past ten years or so, my father had calmed down considerably due in large part to the onset of hydrocephalus, a condition whereby fluid accumulates in the brain and makes the patient very tired, forgetful and quiet. While this illness made me miss the part of my dad that could be so charming and funny (at least with others), I certainly didn't miss the verbal abuse, which could still rear its ugly head now and then, but not to the extent it once had. In a a weird way, this was a blessing, particularly for my mother, who cares for him solely.
Yet for some reason, in recent months, the rage seemed to resurface, and it was worse than ever. My mom attributes it to the election of Obama, who he hates, and his constant viewing of Fox News, which fans the flames of bigotry and hatred no matter how "fair and balanced" they say they are.
The week before his heart attack, I experienced this rage firsthand when I went to the shore to show my parents my new car. What should have been a joyous gathering to celebrate my swanky, new vehicle instead turned into a four-day diatribe against me, the likes of which I hadn't experienced since I was a girl. And just like what happened in my most innocent days, I was caught completely off guard, and felt devastated by the contempt and loathing directed at me for no reason at all.
The first day I was there was innocuous enough, but on the second, while watching television together, I asked him to hit the "info" button on the remote, and he screamed that he wasn't going to "hit every goddamn button just so that you can see the year the film was made!" He then threw the remote at me before storming off to his room for a few hours.
On day three, while Obama was making a speech, he began ranting about what a liar he was, a familiar tactic to bait me into a political conversation so that he could rail against liberals and minorities. (I now just walk away from these useless discussions, as he loathes liberals, of which I'm one.) And on day four, while my mother was visiting a sick friend in the complex and I was doing the dishes, he asked, "Why are you still here?" in the angriest of tones. The list could go on, but you get the idea.
By the time I left, I couldn't get out of there fast enough, so when I got a call from my mom the following weekend that he was in the ER with a heart attack, my knees buckled a bit (despite the abuse, I never want to hear that either of my parents is suffering), but I wasn't surprised at the news. None of us was.
As we began visiting him over the next few weeks, the old dynamic took root, and I could feel that old familiar depression set in, as he was so charming, sweet and funny with all the doctors and nurses, but absolutely vile to me and my mom. (He's somewhat calmer with my sister, my only sibling who's 16 years younger than me--the "surprise" baby of the family; he's always been closer to her as he had a much larger hand in her rearing. Still, she, too, has suffered at his hands, and bears similar scars as a result.)
The unkindest cut of all came on the day he was transferred from the hospital to rehab. After my mom and I spent four and a half hours with him this one particular morning, I suggested that she and I go home for awhile, then come back a few hours later.
In a sneer, he uttered, "Don't you want to be here?" I said, "Dad, we're just going to go home for a bit. We'll be back. Please don't be offended."
And with that, his face blew up into a tomato-red balloon, he showed his teeth, then raised both fists to my face. I don't even want to recount what he said next, but it's something no daughter should ever hear from her father. I was absolutely stunned, and on the way home with my mother, I said things I couldn't believe would ever come out of my mouth. My basic premise was that it would have been easier if he'd just died.
Not surprisingly, we didn't go back that day, and for the rest of the week, I didn't go visit him. My mom did, as did my sister, and both repeatedly said he owed me an apology. At first he growled, "I don't owe her a damn thing," and when my mom said at one point that I was still very hurt, he said, "Let her stew in it."
But as the days passed, I suppose he began to think about what he had said and done, and he begrudingly agreed that he owed me an apology. So I relented and went to visit him yesterday, and upon leaving, he said, "I'm sorry we had an argument." I had to laugh somewhat, as he didn't take responsibility at all for what he had done, but I knew that was the best I was going to get. I kissed him goodbye and said, "I just want to be friends, Dad. All I've ever wanted was a loving relationship with my father."
I could see he was uncomfortable with my comment, as his eyes darted around, and he mumbled something like, "Okay," but that was that, and I came home to my apartment, where I'm tending to my own life before I head back to the shore again in a few days.
What I'm left with now, of course, is keen insight into how I've been shaped by my father's behavior towards me all these years, and despite the decades of psychotherapy, I'm realizing that while my happiness is entirely my responsibility, the scars left from the psychological dismantling of my identity and self-esteem in childhood might never fully heal, and maybe that's okay, in a weird way. It all has made me a more compassionate, tolerant and open-minded person, and for this, I'm thankful, although I'd like to think I would have been this way anyway, without all the misery.
After Michael Jackson's death, so much information came out about his own father's treatment of him, which wasn't exactly news, of course, but the revelation of the depth of Jackson's torment was something I fully understood in a way I hadn't before. And to hear that he'd become such a pill addict was another uncomfortable identification with him, as these painkillers are still a monkey on my back, but I've developed a strange comfort with this creature, as sick a relationship as it may be.
After my surgery, I did begin to experience some pain-free days (even without the hyperbaric treatment, which Medicare declined anyway), but with all the emotion stirred by this recent debacle (and the descent back into bad habits, like smoking), I've been holding onto the pills tighter than I perhaps ever have.
The emotional trauma set the pain off again to a searing level, and during the 48 hours after my father's outburst, I literally could not stop shaking or crying. I was in such a rage myself that I swore I'd never speak to him again, but I soon realized the destructive power of holding onto anger, and upon the advice of my friend Paul, I began to pray for my dad, and slowly, the rage did begin to lift.
Instead, I began to feel compassion for him, wondering what in the world had happened to him in his own childhood that created this Dr. Jekyll/Mr. Hyde personality. In talking with my cousin, who is close to my dad's age, family stories have begun to surface that are dark and cold, and it's clear that the cycle of abuse is a mysterious beast indeed.
Last night, after I came home from the shore, I had dinner with my dear friend Lynda, and after catching up on news about our own lives, we began to discuss the tragedy of Michael Jackson, particularly about the connection between his father, his plastic surgery and his pill addiction.
At one point, Lynda told me that upon hearing of Jackson's demise, she couldn't help but worry about me and my own painkiller abuse, as there were such parallels between Jackson's story and my own, albeit without the plastic surgery (not that I haven't considered it over the years, but I've never been able to afford it; plus, I knew there was much more to learn by not doing it).
When she said this, there was that pregnant pause between friends when an uncomfortable truth is uttered, and I did indeed feel a chill. As I've pondered Jackson's death these past weeks, I keep thinking, "Why didn't you get help? Why did you use the pills to squash your sadness and anger, and why couldn't you get off them? Why did you let your father's words destroy you?"
It's easy to ask these questions of another person, but not so easy to ask them of ourselves. I do ask them, of course, but that doesn't stop the next pill, the next cigarette, the next glass of wine or the relentless pain in my face and jaw. It's all a recipe for disaster and death, made all the more real by Jackson's untimely self-induced passing, and by the memory of my dad's fists in my face, and the outburst of words that can never be taken back.
I can't let him destroy me.
*************************************
Monday, April 13, 2009
A Toll On My Soul
I was procrastinating on Saturday, as usual, so when I went to pick up my pain medication at the pharmacy across the street, I found that they'd closed a little early, and I was absolutely freaked that I wouldn't have enough meds for the following day, yesterday (Sunday).
For someone in chronic pain, narcotic meds are a type of deal with the devil, for on the one hand, they provide a certain amount of relief and respite--a sense of control over miserable circumstances--but on the other, they rob you of your normal emotions, even if, like me, you don't necessarily feel high anymore (not unless you take too much, which I've been wont to do now and then).
When I saw I had just one 10 mg Oxycontin pill yesterday morning, I knew it wouldn't be enough for the day and this made me nervous, but what was actually disturbing was the realization of how much a part of me these pills have become.
While they do ease the pain somewhat, they also take a toll on my soul, and it's hard to imagine life without them now. In a strange way, they fill the space that is the loneliness one feels with chronic pain. When I take my pills, the world is a little brighter, a little softer, and I'm happy to passively sit back and let it pass me by. But it's never without some regret, for when I watch TV, it's like I'm watching others live life for me, and I'm envious of their healthy, vibrant lives.
If it's a true crime show, I wonder what it's like to passionately catch crooks all day; if it's a TV drama, I wonder what it's like to live the life of a successful, creative actor; if it's a reality show...well, OK, I rarely envy those folks, especially any of those Real Housewives babes. If I lived in a world where I ever had to go to a "big hat luncheon," I'd slit my wrists. But I do envy their healthy, pain-free life.
In the past few months, I've even become something of a recluse, which is just plain weird for me, considering my personality. But the pills actually make watching lots of TV interesting, which is what I learned yesterday, as without the pills I was absolutely bored to tears by just about everything. I almost didn't know what to do with all the time, not because of the pain so much, but because I no longer recognized myself. Spitfire Mary Ann has turned into a human lump on the couch. I didn't even feel like shaving my head, which is saying something, because I always get a big kick out of that.
I can tell I'm withering, as I now shave my noggin every two weeks or so, as opposed to every five days. I used to love the fiery feelings my hairless dome would bring up--such adventure, such mischief--but it's as though there's few feelings at all anymore, except exhaustion from all this endurance.
I have to remind myself that I haven't given up--that the therapies I've set in motion take time to come to fruition. Hopefully, I'll get accepted into NYU's psychoanalytic program, so that I can probe the mind/body connection in all this, and once that happens, I'll have more surgery. I want to do things differently this time. I want to be more aware of what's happening in my subconscious before I go under the knife again, which is a curious goal considering I really have no feelings to report, other than an opinion on that cool Chariots of the Gods show on the History Channel yesterday, which wasn't boring at all.
I have to admit; watching all those talking heads speaking so enthusiastically about the possibility of ancient aliens made me wonder what it's like to be an anthropologist. Who would I be without all the pain, all the pills?
It's a beautiful, sunny day today, but it may as well be raining, 'cause I doubt I'll be going out. I know I should push myself, but I'm no longer chasing my dreams and passions anymore. I'm instead running from the monster as fast as I can, only to find he's keeping up quite well and resting comfortably, in fact, in my own body. The only ammo I've got is this friggin' pill, which tames him temporarily, but tames me, too. I'm just so sick of all this crap, all this pain, all this confusion, all these pills.
Now where's the remote?
********************************
For someone in chronic pain, narcotic meds are a type of deal with the devil, for on the one hand, they provide a certain amount of relief and respite--a sense of control over miserable circumstances--but on the other, they rob you of your normal emotions, even if, like me, you don't necessarily feel high anymore (not unless you take too much, which I've been wont to do now and then).
When I saw I had just one 10 mg Oxycontin pill yesterday morning, I knew it wouldn't be enough for the day and this made me nervous, but what was actually disturbing was the realization of how much a part of me these pills have become.
While they do ease the pain somewhat, they also take a toll on my soul, and it's hard to imagine life without them now. In a strange way, they fill the space that is the loneliness one feels with chronic pain. When I take my pills, the world is a little brighter, a little softer, and I'm happy to passively sit back and let it pass me by. But it's never without some regret, for when I watch TV, it's like I'm watching others live life for me, and I'm envious of their healthy, vibrant lives.
If it's a true crime show, I wonder what it's like to passionately catch crooks all day; if it's a TV drama, I wonder what it's like to live the life of a successful, creative actor; if it's a reality show...well, OK, I rarely envy those folks, especially any of those Real Housewives babes. If I lived in a world where I ever had to go to a "big hat luncheon," I'd slit my wrists. But I do envy their healthy, pain-free life.
In the past few months, I've even become something of a recluse, which is just plain weird for me, considering my personality. But the pills actually make watching lots of TV interesting, which is what I learned yesterday, as without the pills I was absolutely bored to tears by just about everything. I almost didn't know what to do with all the time, not because of the pain so much, but because I no longer recognized myself. Spitfire Mary Ann has turned into a human lump on the couch. I didn't even feel like shaving my head, which is saying something, because I always get a big kick out of that.
I can tell I'm withering, as I now shave my noggin every two weeks or so, as opposed to every five days. I used to love the fiery feelings my hairless dome would bring up--such adventure, such mischief--but it's as though there's few feelings at all anymore, except exhaustion from all this endurance.
I have to remind myself that I haven't given up--that the therapies I've set in motion take time to come to fruition. Hopefully, I'll get accepted into NYU's psychoanalytic program, so that I can probe the mind/body connection in all this, and once that happens, I'll have more surgery. I want to do things differently this time. I want to be more aware of what's happening in my subconscious before I go under the knife again, which is a curious goal considering I really have no feelings to report, other than an opinion on that cool Chariots of the Gods show on the History Channel yesterday, which wasn't boring at all.
I have to admit; watching all those talking heads speaking so enthusiastically about the possibility of ancient aliens made me wonder what it's like to be an anthropologist. Who would I be without all the pain, all the pills?
It's a beautiful, sunny day today, but it may as well be raining, 'cause I doubt I'll be going out. I know I should push myself, but I'm no longer chasing my dreams and passions anymore. I'm instead running from the monster as fast as I can, only to find he's keeping up quite well and resting comfortably, in fact, in my own body. The only ammo I've got is this friggin' pill, which tames him temporarily, but tames me, too. I'm just so sick of all this crap, all this pain, all this confusion, all these pills.
Now where's the remote?
********************************
Saturday, March 07, 2009
Using the Monster
Sometimes I think this illness is just a waste of time, a waste of energy, a waste of potential, until I remind myself that as long as I keep up this journal, none of the journey is wasted, particularly if it can help another person.
It ain't easy, though. And it's certainly not an assignment I ever would have asked for. As a young person, I always thought my "hero's journey" would take place on a grander, far swankier scale. I'd become some celebrated singer/songwriter, and that's where the drama of my life would unfold. That's how I'd fulfill my destiny--by writing and performing songs that would enchant and connect, as others' songs have done for me. It was a singular quest for many years, but all along, something about it just didn't feel right.
Strangely, as I was going through it, I somehow knew that I would not succeed commercially in music (despite the wonderful and worthy songs that came through me). Something about that world wasn't a good fit, yet as I'd never seen myself in any other role in life, I would just trudge on, even though I didn't like the path.
I loved writing and performing, but I hated touring, and I hated the music business. I also hated the deep-seated sense of unworthiness I felt nearly all the time, which in hindsight was my true enemy. When we feel we're unworthy of good things, we don't get them for sure. It pains me now to think of how much I dressed down during those early performing days (hiding in plain sight) and that I didn't celebrate this nice Irish face and slim build that I've been given. (You can bet your ass I'm enjoying it now.)
I worked on these unworthy feelings for years in therapy, and slowly things began to change for the better. But with these changes came also the realization that what I was really looking for in the music business (as opposed to music itself) was some kind of validation, my own version of keeping up with the Joneses. And, of course, no one can give you that; you validate yourself.
While it's been liberating to have had these insights, I do wonder these days where I fit into the grand scheme of things, which was so clear to me years ago. No amount of painkillers today has been able to even make a dent in this pain and I feel devoured by endurance.
At times I feel wistful for all the things that I could potentially be doing without pain or illness. My art studio beckons daily, as do countless creative ideas, all of which are lost without me--a realization made all the more poignant by my awareness of having hit the half-century mark. The future is shorter now, and I can no longer live in the land of "someday," which is so often the refuge for the young when frustration sets in.
My somedays are getting fewer, so I suppose the real trick now is to somehow turn my "somedays" into "todays," to work with what I've been given instead of mourning for what could have been.
A well Mary Ann would be working on those new paintings, taking flying lessons, dating, seeing family more (especially my nieces), volunteering, and going to flamenco classes two or three times a week.
But this Mary Ann is in constant pain, which, whether I like it or not, has put me in a place where I must accept without crumbling; where faith has been challenged; and where I watch a lot of TV. What an assignment.
This morning, a television ad came on for Batman Begins, and this text came on the screen: "I'm using this monster to help other people."
I don't know that this journal will ever help anyone else, but one thing is for sure: I'm using this monster.
************************
It ain't easy, though. And it's certainly not an assignment I ever would have asked for. As a young person, I always thought my "hero's journey" would take place on a grander, far swankier scale. I'd become some celebrated singer/songwriter, and that's where the drama of my life would unfold. That's how I'd fulfill my destiny--by writing and performing songs that would enchant and connect, as others' songs have done for me. It was a singular quest for many years, but all along, something about it just didn't feel right.
Strangely, as I was going through it, I somehow knew that I would not succeed commercially in music (despite the wonderful and worthy songs that came through me). Something about that world wasn't a good fit, yet as I'd never seen myself in any other role in life, I would just trudge on, even though I didn't like the path.
I loved writing and performing, but I hated touring, and I hated the music business. I also hated the deep-seated sense of unworthiness I felt nearly all the time, which in hindsight was my true enemy. When we feel we're unworthy of good things, we don't get them for sure. It pains me now to think of how much I dressed down during those early performing days (hiding in plain sight) and that I didn't celebrate this nice Irish face and slim build that I've been given. (You can bet your ass I'm enjoying it now.)
I worked on these unworthy feelings for years in therapy, and slowly things began to change for the better. But with these changes came also the realization that what I was really looking for in the music business (as opposed to music itself) was some kind of validation, my own version of keeping up with the Joneses. And, of course, no one can give you that; you validate yourself.
While it's been liberating to have had these insights, I do wonder these days where I fit into the grand scheme of things, which was so clear to me years ago. No amount of painkillers today has been able to even make a dent in this pain and I feel devoured by endurance.
At times I feel wistful for all the things that I could potentially be doing without pain or illness. My art studio beckons daily, as do countless creative ideas, all of which are lost without me--a realization made all the more poignant by my awareness of having hit the half-century mark. The future is shorter now, and I can no longer live in the land of "someday," which is so often the refuge for the young when frustration sets in.
My somedays are getting fewer, so I suppose the real trick now is to somehow turn my "somedays" into "todays," to work with what I've been given instead of mourning for what could have been.
A well Mary Ann would be working on those new paintings, taking flying lessons, dating, seeing family more (especially my nieces), volunteering, and going to flamenco classes two or three times a week.
But this Mary Ann is in constant pain, which, whether I like it or not, has put me in a place where I must accept without crumbling; where faith has been challenged; and where I watch a lot of TV. What an assignment.
This morning, a television ad came on for Batman Begins, and this text came on the screen: "I'm using this monster to help other people."
I don't know that this journal will ever help anyone else, but one thing is for sure: I'm using this monster.
************************
Thursday, February 26, 2009
The Wrestler
Spoiler alert: While I don't say what happens in The Wrestler in the following post, I do talk about insights and personal conclusions, so read at your own risk!
*************************************************
Friends and family are noticing something different about me, and I notice it, too. I feel like there is a big change coming, that I'm ready for something to change, but it's gonna take guts on my part.
This week has been a strange one, no doubt made even stranger by my new experiments with pot. Yes, at the tender age of 50, I was doing something all week that I didn't even do in high school or college. The results were curiously positive for the most part, but I'm not sure it did anything for the pain.
I will say that in the mornings, I was so alert that I felt like I slept like a two-year-old who's so dead to the world that you could toss her in the air and she'd sleep right through it. I've read that cannabis opens capillaries in the brain, so that right and left sides communicate instantly with each other, which is why people can feel so creative when...well...stoned. Their senses are heightened, and insights can come quickly, especially when you're looking for them.
I wonder, too, if pot somehow makes sleep more restorative, as the subconscious becomes so active. Perhaps we work through issues while we're sleeping that's in some way helpful, as this week has been fraught with insights all over the place.
Regardless, I'm finished with pot, for now anyway. The main thing I have to remember is that now is not the time to give up on life, even though certain days feel like nothing more than an endurance test. I have to wait out the suffering and just hope that tomorrow will be a better day.
I saw The Wrestler recently, and that's really the point of the whole movie--that so often, just when we're on the brink of having the things in life that truly matter, we give up on ourselves, thinking that neither our circumstances, nor we ourselves, will ever really change.
The film was profoundly moving, and it has stayed with me. I don't know Mickey Rourke, yet I feel so strangely happy for him that he mounted this tremendous comeback. (If you see the film, the word "mount" is probably not the best I could have chosen. lol!)
Unlike his brilliantly rendered character, Rourke himself did hang on through his own darkest days, and he prevailed in being "discovered" yet again. Talk about lightning striking twice. There was a tremendous amount of luck in him getting this role, of course, but no one could ever take away from him what he did with it. His work as this aging wrestler is one of those performances where you soon forget you're watching the actor, and you just see the characters and story...and yourself.
It was the movie I needed to see this season, as I feel so on the brink myself of good tidings; I just have to remember that I can't give up, not now, not ever.
The worst way I could give up would be to descend into a haze of pills, pot and god knows what else. I know what I have to do, and I know there's no shortcut around it.
Wish me luck.
*************************************
*************************************************
Friends and family are noticing something different about me, and I notice it, too. I feel like there is a big change coming, that I'm ready for something to change, but it's gonna take guts on my part.
This week has been a strange one, no doubt made even stranger by my new experiments with pot. Yes, at the tender age of 50, I was doing something all week that I didn't even do in high school or college. The results were curiously positive for the most part, but I'm not sure it did anything for the pain.
I will say that in the mornings, I was so alert that I felt like I slept like a two-year-old who's so dead to the world that you could toss her in the air and she'd sleep right through it. I've read that cannabis opens capillaries in the brain, so that right and left sides communicate instantly with each other, which is why people can feel so creative when...well...stoned. Their senses are heightened, and insights can come quickly, especially when you're looking for them.
I wonder, too, if pot somehow makes sleep more restorative, as the subconscious becomes so active. Perhaps we work through issues while we're sleeping that's in some way helpful, as this week has been fraught with insights all over the place.
Regardless, I'm finished with pot, for now anyway. The main thing I have to remember is that now is not the time to give up on life, even though certain days feel like nothing more than an endurance test. I have to wait out the suffering and just hope that tomorrow will be a better day.
I saw The Wrestler recently, and that's really the point of the whole movie--that so often, just when we're on the brink of having the things in life that truly matter, we give up on ourselves, thinking that neither our circumstances, nor we ourselves, will ever really change.
The film was profoundly moving, and it has stayed with me. I don't know Mickey Rourke, yet I feel so strangely happy for him that he mounted this tremendous comeback. (If you see the film, the word "mount" is probably not the best I could have chosen. lol!)
Unlike his brilliantly rendered character, Rourke himself did hang on through his own darkest days, and he prevailed in being "discovered" yet again. Talk about lightning striking twice. There was a tremendous amount of luck in him getting this role, of course, but no one could ever take away from him what he did with it. His work as this aging wrestler is one of those performances where you soon forget you're watching the actor, and you just see the characters and story...and yourself.
It was the movie I needed to see this season, as I feel so on the brink myself of good tidings; I just have to remember that I can't give up, not now, not ever.
The worst way I could give up would be to descend into a haze of pills, pot and god knows what else. I know what I have to do, and I know there's no shortcut around it.
Wish me luck.
*************************************
Wednesday, January 28, 2009
Ghost Stories
Today is one of those days when my vitality, my life force, is just so low. I'm so worn out by the pain and the pills that I have little motivation to do anything--even the basics, like paying bills and grocery shopping. It all has to get done today...it HAS to. All that's in my fridge is butter, apple sauce and maple syrup.
But pain sucks the life energy right out of you. What little of it is left I use for flamenco classes, the occasional painting, even volunteering at the local shelter when I can. But activity of any kind, particularly dancing, can flatten me for a day or more. Maybe the fatigue is from the pills. I've actually been a little spooked lately that I may take one pain pill too many and inadvertently check out of this existence long before my scheduled departure.
On the one hand, a permanent rest sounds lovely, but there's also this sneaking suspicion that I'm supposed to meet this challenge, and I have absolutely no evidence as to why I feel this way.
Like other times in my life when something deep within my psyche was speaking to me, either overtly warning me of grave danger (to the extent that I made a decision that averted catastrophe) or providing me with a general premonition that something cataclysmic and unavoidable was about to occur (and then it would), there's something now nagging at me from my center that's telling me that there's more meaning to this experience than I'm willing to admit, and I wonder why I'm fighting it.
I'm guessing it's because it means more work on my part...more silence, more journal writing, more reading, more meditation...and frankly, I can't be bothered. I'd rather watch Ghost Hunters.
But if I'm ever going to get out of this mess, I've got to follow hunches and at least be open to the possibility that something else is going on in the dimensions all around me (hence my interest in shows about the paranormal). While we humans live in three, science has now mathematically proven the existence of nine (last I heard), and something is going on there.
Whether that something can be of any use to me is a mystery, but I need to review some crucial paranormal events in my own life, as they were as real as the hands I type this post with, and maybe they're the evidence I need to find some hope in this hornets' nest of pain and misery.
While I'm trying hard here to be a good newly-born atheist (letting go of all notions of inherent meaning to terrible events and the idea of any master plan), if I'm to give up my beliefs in an afterlife, then I basically have to erase certain experiences from my brain, and, of course, I can't.
There haven't been many, but they've been memorable. Here they are:
1) The first happened when I was 17. I was driving my dad's big old Cadillac at around 2 a.m. after dropping off a bunch of high school girlfriends at their respective homes. I remember being at a red light and feeling agitated, like I wanted to run it as there wasn't a soul around. But it was a main intersection, right by Seton Hall, and I figured it would be just my luck to run it just as a cop car came along.
So I decided to sit and wait, but when the light turned green, something bizarre occurred. Fully formed sentences in my head told me to not move, that someone was going to run the light, and I froze in position--not out of fear, but more as if I were paralyzed into a type of powerless obedience.
Sure enough, after a few long seconds, a large white van ran the red light at about 50 mph. Had I not listened to this voice, I would have been broadsided and killed instantly.
What's so striking about this event, other than its obvious strangeness, is that I thought nothing of it at the time. I had a type of "of course" response, like, "Of course someone would run the light; I knew it would." And then I just went home and never spoke of it until 20 years later, not because I feared anyone thinking me nuts, but because I just forgot about it.
What reminded me of it was my friend Lynda's very similar story, about an internal voice telling her (when she was a teenager) to step back from a curb. She obeyed and averted getting hit by an out-of-control car.
It was her story that awakened this very clear memory of my own. Perhaps not coincidentally, Lynda and I went on to become very dear friends in our adult lives, meeting all kinds of joys and challenges together. Did something intervene for us both at the same time in our lives to make sure this adult friendship would happen?
Weird.
2) The next biggie wouldn't come until I was 43, quite a long time after my teenage experience. Interspersed in these years were extraordinary occurrences of synchronicity, but I'll leave that subject for another post. Synchronicity is very different from predictions or premonitions, which is what I'm sticking with here.
It was in August of 2002, just after the release of my second album, My Life of Crime. As I was planning for a trip to Los Angeles to do some shows, I remember being in the kitchen on the phone with my mom when this all-pervasive feeling of...well...nothingness wash over me.
It were as though I could no longer see my future, and the experience was so startling that I remember exactly where I was standing when it struck. I simply wrote it off as record-release jitters and the anticipation of travelling to L.A. and London to perform. But about two weeks later, I was overcome by abdominal pain, only to find out that the main vein in my liver had clotted, as well as the liver itself, and that my life was in grave danger.
I remember the doctor coming in to tell me the news with this look of shock on his face, as doctors almost never see this condition; one told me it's something they only read about in their medical textbooks.
Having been introduced to the works of Florence Scovel Shinn around this time (an author who first wrote about the Law of Attraction and the power of words in the 1920s), I kept a vision of myself in my head as an old lady planting tomatoes as a counter-measure to the premonition.
As for the feeling that I "couldn't see my future," years later I was to read an article about author Lucy Greely (Autobiography of a Face), who had told her best friend of those exact same feelings in that exact same language just weeks before she died.
Creepy.
3) This same futureless sensation overcame me about two years later, after having been in and out of the hospital for three months with an esophageal hemorrhage and its accompanying complications.
I wondered why in the world I was getting this feeling now, as it seemed that the worst was behind me and that I was now on the mend. But there it was...the feeling that there was no future before me. Nothing...just a blank slate, neither dark nor light, good nor evil, and nothing to be afraid of. It was just...empty.
Unlike the previous premonition of '02, which I didn't utter to a soul, I did tell friends and family about this one. And sure enough, a few weeks later I was in a psychiatric hospital with depression and suicidal ideation, which was to be the biggest threat to my life EVER.
Of all I've been through, I can attest that severe mental illness is the cruelest cut of all, as it so blights our subjectivity. When serotonin and dopamine aren't getting through, you can no longer choose your response to anything, and you feel like the walking dead, truly. The trick is to just HANG ON until the meds start to work.
What was particularly challenging at this time was to keep that positive old-lady image of myself in my head to again counter the premonition. It was so difficult, though, because every cell in my body was screaming to die, if for no other reason than just to end the screeching, untreatable pain in my face and jaw. I didn't want to live anymore, which made me feel that perhaps this current futureless feeling was more prediction than premonition.
The real point, though, is how did I know this was coming? How did I know any of these events were about to happen?
There've been other things, I guess, but nothing as big as these three. (I know there's a fourth, which escapes me at the moment.) While technically I haven't been visited by ghosts, I was certainly visited by something in these instances, or perhaps tripped on some space-time warp that gave me a vision of what was to come.
And then there's my mom, who just last month heard someone whisper her name late at night right next to her bed. She says in all her 75 years, she's never had a single thing like that ever happen to her. Suffice to say, she was freaked.
I watch science shows about phantom matter, dark matter, dark energy, black holes, etc., all the time. Will the paranormal all be scientifically explained one day by the mysteries of the universe that still baffle us? Even if it is, will we ever know how or why the universe was even created?
While there are no answers, I do know this: if I ever actually see a ghost, I'll crap my pants. Premonitions I can handle, but full-bodied apparitions? Get out the smelling salts.
*****************************
But pain sucks the life energy right out of you. What little of it is left I use for flamenco classes, the occasional painting, even volunteering at the local shelter when I can. But activity of any kind, particularly dancing, can flatten me for a day or more. Maybe the fatigue is from the pills. I've actually been a little spooked lately that I may take one pain pill too many and inadvertently check out of this existence long before my scheduled departure.
On the one hand, a permanent rest sounds lovely, but there's also this sneaking suspicion that I'm supposed to meet this challenge, and I have absolutely no evidence as to why I feel this way.
Like other times in my life when something deep within my psyche was speaking to me, either overtly warning me of grave danger (to the extent that I made a decision that averted catastrophe) or providing me with a general premonition that something cataclysmic and unavoidable was about to occur (and then it would), there's something now nagging at me from my center that's telling me that there's more meaning to this experience than I'm willing to admit, and I wonder why I'm fighting it.
I'm guessing it's because it means more work on my part...more silence, more journal writing, more reading, more meditation...and frankly, I can't be bothered. I'd rather watch Ghost Hunters.
But if I'm ever going to get out of this mess, I've got to follow hunches and at least be open to the possibility that something else is going on in the dimensions all around me (hence my interest in shows about the paranormal). While we humans live in three, science has now mathematically proven the existence of nine (last I heard), and something is going on there.
Whether that something can be of any use to me is a mystery, but I need to review some crucial paranormal events in my own life, as they were as real as the hands I type this post with, and maybe they're the evidence I need to find some hope in this hornets' nest of pain and misery.
While I'm trying hard here to be a good newly-born atheist (letting go of all notions of inherent meaning to terrible events and the idea of any master plan), if I'm to give up my beliefs in an afterlife, then I basically have to erase certain experiences from my brain, and, of course, I can't.
There haven't been many, but they've been memorable. Here they are:
1) The first happened when I was 17. I was driving my dad's big old Cadillac at around 2 a.m. after dropping off a bunch of high school girlfriends at their respective homes. I remember being at a red light and feeling agitated, like I wanted to run it as there wasn't a soul around. But it was a main intersection, right by Seton Hall, and I figured it would be just my luck to run it just as a cop car came along.
So I decided to sit and wait, but when the light turned green, something bizarre occurred. Fully formed sentences in my head told me to not move, that someone was going to run the light, and I froze in position--not out of fear, but more as if I were paralyzed into a type of powerless obedience.
Sure enough, after a few long seconds, a large white van ran the red light at about 50 mph. Had I not listened to this voice, I would have been broadsided and killed instantly.
What's so striking about this event, other than its obvious strangeness, is that I thought nothing of it at the time. I had a type of "of course" response, like, "Of course someone would run the light; I knew it would." And then I just went home and never spoke of it until 20 years later, not because I feared anyone thinking me nuts, but because I just forgot about it.
What reminded me of it was my friend Lynda's very similar story, about an internal voice telling her (when she was a teenager) to step back from a curb. She obeyed and averted getting hit by an out-of-control car.
It was her story that awakened this very clear memory of my own. Perhaps not coincidentally, Lynda and I went on to become very dear friends in our adult lives, meeting all kinds of joys and challenges together. Did something intervene for us both at the same time in our lives to make sure this adult friendship would happen?
Weird.
2) The next biggie wouldn't come until I was 43, quite a long time after my teenage experience. Interspersed in these years were extraordinary occurrences of synchronicity, but I'll leave that subject for another post. Synchronicity is very different from predictions or premonitions, which is what I'm sticking with here.
It was in August of 2002, just after the release of my second album, My Life of Crime. As I was planning for a trip to Los Angeles to do some shows, I remember being in the kitchen on the phone with my mom when this all-pervasive feeling of...well...nothingness wash over me.
It were as though I could no longer see my future, and the experience was so startling that I remember exactly where I was standing when it struck. I simply wrote it off as record-release jitters and the anticipation of travelling to L.A. and London to perform. But about two weeks later, I was overcome by abdominal pain, only to find out that the main vein in my liver had clotted, as well as the liver itself, and that my life was in grave danger.
I remember the doctor coming in to tell me the news with this look of shock on his face, as doctors almost never see this condition; one told me it's something they only read about in their medical textbooks.
Having been introduced to the works of Florence Scovel Shinn around this time (an author who first wrote about the Law of Attraction and the power of words in the 1920s), I kept a vision of myself in my head as an old lady planting tomatoes as a counter-measure to the premonition.
As for the feeling that I "couldn't see my future," years later I was to read an article about author Lucy Greely (Autobiography of a Face), who had told her best friend of those exact same feelings in that exact same language just weeks before she died.
Creepy.
3) This same futureless sensation overcame me about two years later, after having been in and out of the hospital for three months with an esophageal hemorrhage and its accompanying complications.
I wondered why in the world I was getting this feeling now, as it seemed that the worst was behind me and that I was now on the mend. But there it was...the feeling that there was no future before me. Nothing...just a blank slate, neither dark nor light, good nor evil, and nothing to be afraid of. It was just...empty.
Unlike the previous premonition of '02, which I didn't utter to a soul, I did tell friends and family about this one. And sure enough, a few weeks later I was in a psychiatric hospital with depression and suicidal ideation, which was to be the biggest threat to my life EVER.
Of all I've been through, I can attest that severe mental illness is the cruelest cut of all, as it so blights our subjectivity. When serotonin and dopamine aren't getting through, you can no longer choose your response to anything, and you feel like the walking dead, truly. The trick is to just HANG ON until the meds start to work.
What was particularly challenging at this time was to keep that positive old-lady image of myself in my head to again counter the premonition. It was so difficult, though, because every cell in my body was screaming to die, if for no other reason than just to end the screeching, untreatable pain in my face and jaw. I didn't want to live anymore, which made me feel that perhaps this current futureless feeling was more prediction than premonition.
The real point, though, is how did I know this was coming? How did I know any of these events were about to happen?
There've been other things, I guess, but nothing as big as these three. (I know there's a fourth, which escapes me at the moment.) While technically I haven't been visited by ghosts, I was certainly visited by something in these instances, or perhaps tripped on some space-time warp that gave me a vision of what was to come.
And then there's my mom, who just last month heard someone whisper her name late at night right next to her bed. She says in all her 75 years, she's never had a single thing like that ever happen to her. Suffice to say, she was freaked.
I watch science shows about phantom matter, dark matter, dark energy, black holes, etc., all the time. Will the paranormal all be scientifically explained one day by the mysteries of the universe that still baffle us? Even if it is, will we ever know how or why the universe was even created?
While there are no answers, I do know this: if I ever actually see a ghost, I'll crap my pants. Premonitions I can handle, but full-bodied apparitions? Get out the smelling salts.
*****************************
Thursday, January 15, 2009
Catching Flies
I haven't posted for a couple of weeks, as I've been writing the story of what happened in March 2004, when life took such a dive. I've been wanting to get it down for awhile now, just so that I don't have to tell the story anymore. If someone wants to know what happened, I want to be able to simply direct them to the blog posting, which will liberate me from having to tell such a weighty story over and over. I suppose it's a way of putting it in the past, even though it continues to play out in such painful ways.
In writing it, though, there are so many details to the story that I begin to even bore myself with it. While there's plenty of action, blood and guts, literally, it tires me to write it, so I've been carefully editing and shortening, as at the end of the day, I'm an entertainer at heart. If I'm gonna spin a tale with that much real-life drama, I've got to lighten the verbiage to capture the essence of how rapidly things declined, and how close I came to meeting my maker, with all of the harrowing details intact.
Who knows if anyone will ever read it, and who cares. I just gotta get it on the page so that I can leave it somewhere. As the World Wide Web is a fairly large place, I suspect it can handle the load.
As for how things have been the past few weeks, comparing life to a rollercoaster is an understatement. I'm working with a new chiropractor who's doing trigger point therapy--working out the knots in my face, jaw and neck that have taken years to develop.
On about two occasions, I had a couple of hours where I was completely, absolutely pain-free. There was one night that I caught myself with my mouth open in astonishment, the old "catching-flies" gape, as I felt so completely myself again. When physical pain lifts, the speed with which it becomes a memory is nothing short of shocking. Immediately, my thoughts raced towards all of the things I want to do, goals I want to accomplish, paintings I want to start. I even continued work on a song I began last year.
I was so heartened by this new turn of events that I also signed up for a one-month intensive workshop of flamenco study, where I go to class in New York every other day. The exercise has boosted my endorphins, and I've had short periods of such hope and happiness.
But in the last few days, the pain in my face lapsed back into being as bad as it ever was, and I've been popping Vicodin like candy in an effort to get the level down, not just because I don't want to suffer, but because I'm going out to dinner this weekend with my family to celebrate my 50th birthday.
Fifty. When the hell did that happen? In some, if not most, ways, I'm thrilled to say I'm younger than I've ever been. But time is marching on, and each day has a new value that hasn't existed before. Twenty years ago I was 30; in another 20, I'll be 70.
As Carly Simon once said, "I haven't got time for the pain," but it seems that pain has time for me.
Well, I can't do anything about it except accept it, hard as that is. When they say we "practice" acceptance, that's exactly what it is--like practicing the piano.
I need to get better at it.
********************************
In writing it, though, there are so many details to the story that I begin to even bore myself with it. While there's plenty of action, blood and guts, literally, it tires me to write it, so I've been carefully editing and shortening, as at the end of the day, I'm an entertainer at heart. If I'm gonna spin a tale with that much real-life drama, I've got to lighten the verbiage to capture the essence of how rapidly things declined, and how close I came to meeting my maker, with all of the harrowing details intact.
Who knows if anyone will ever read it, and who cares. I just gotta get it on the page so that I can leave it somewhere. As the World Wide Web is a fairly large place, I suspect it can handle the load.
As for how things have been the past few weeks, comparing life to a rollercoaster is an understatement. I'm working with a new chiropractor who's doing trigger point therapy--working out the knots in my face, jaw and neck that have taken years to develop.
On about two occasions, I had a couple of hours where I was completely, absolutely pain-free. There was one night that I caught myself with my mouth open in astonishment, the old "catching-flies" gape, as I felt so completely myself again. When physical pain lifts, the speed with which it becomes a memory is nothing short of shocking. Immediately, my thoughts raced towards all of the things I want to do, goals I want to accomplish, paintings I want to start. I even continued work on a song I began last year.
I was so heartened by this new turn of events that I also signed up for a one-month intensive workshop of flamenco study, where I go to class in New York every other day. The exercise has boosted my endorphins, and I've had short periods of such hope and happiness.
But in the last few days, the pain in my face lapsed back into being as bad as it ever was, and I've been popping Vicodin like candy in an effort to get the level down, not just because I don't want to suffer, but because I'm going out to dinner this weekend with my family to celebrate my 50th birthday.
Fifty. When the hell did that happen? In some, if not most, ways, I'm thrilled to say I'm younger than I've ever been. But time is marching on, and each day has a new value that hasn't existed before. Twenty years ago I was 30; in another 20, I'll be 70.
As Carly Simon once said, "I haven't got time for the pain," but it seems that pain has time for me.
Well, I can't do anything about it except accept it, hard as that is. When they say we "practice" acceptance, that's exactly what it is--like practicing the piano.
I need to get better at it.
********************************
Tuesday, December 30, 2008
The Return Of Pollyanna
I continue to explore this strange, new world. I wasn't sure if this new state of acceptance was going to stick, as this journey of chronic pain has been fraught with so many hills and valleys. But it seems it has, as each morning I'm waking up in a calmer state.
What's troubling, though, is that I haven't given up the painkillers, and I wish I could. I went most of the day without them today, but by the time I got home from afternoon errands (including a 12-step meeting), my face hurt just so bad, and it was all I could think of. I ordered a refill from the pharmacy, took two Vicodin, then fell promptly asleep for the rest of the afternoon.
This is what bugs me about painkillers. They rob me of precious hours of my life. I suppose I was hoping that a new state of acceptance would somehow make me so emotionally strong that I could withstand physical pain, but that hasn't been the case, and I'm wondering now how this is all going to play out.
What I love about pain medication is that, even if it does nothing for the pain, it helps me to escape it for a short while, at the end of which I usually take more to keep the escape going. But what I hate about it is that I no longer experience the natural highs of making art or music. I no longer experience those magical moments of truth where "art happens," and I'm left dumbfounded by what I've been able to channel.
I miss these experiences...a lot.
And as I sit here, I sip on a glass of wine and smoke a cigarette, which, combined with pain medication, makes me feel like a total degenerate. I must be the picture of the classic tortured artist. I can think of friends from the past who found these images of themselves romantic, but trust me, they're not. They're sad, and I feel weak and stupid until I catch myself and just accept that this is tough road I'm walking and will therefore be fraught with mistakes.
Some of my recovery pals like to think that this pain is just a manifestation of my secret desire "to use," and I do try to keep an open mind to their opinions. But as I sit here, my face fucking hurts. It's as real as this tasty Pinot Noir and Camel Light.
Decisions, decisions.
What's been interesting is that in this new state of acceptance, I can see just how angry, bitter, guilt-ridden and jealous I've been towards those who have such healthy and pain-free bodies. I wasn't even aware that I was feeling such things until I decided to stop fighting the pain so hard.
I was even jealous of my two- and four-year-old nieces, who are so innocent and pure, so healthy, so joyous, and live in such a love-filled life. I couldn't look at them at not feel some twinge of sadness and regret, as if all of the good things of life had passed me by, and one of my only real uses now as a human being was to help them grow into strong healthy adults. In such a state of pain and addiction, my life was beginning to feel over.
It was a horrible state to be in, and only now do I see just how destructive it was to my psyche. But acceptance has changed all that. I accept now that these awful things have happened to me in my life, and it's all okay. I can deal with it. I can make something with it; I can give it all meaning, and who knows? Maybe these very writings will be the biggest thing I will ever offer my fellow human beings, which means that every twist and turn won't be wasted, provided I can stay honest and true about every detail (which tonight is the issue of alcohol and nicotine).
I read an article recently by Scott Kiloby about something called "non-duality," which is the name of what I've been experiencing, apparently. We've exchanged a couple of emails about the topic, and he closed one by saying this: "What is, is what is. And a full surrender into that brings a peace of mind totally unknown to most people. I also experience it as unconditional love."
It occurs to me that had I not gone through this terrible ordeal, I might not have stumbled upon this insight, which indeed fills me with unconditional love.
When I played with my nieces this Christmas, I was filled with such light and such joy at watching them tear open their gifts. And instead of feeling any kind of jealousy or resentment, I felt deep compassion for them, as they go through their own trials and tribulations in their growth experience. And I was happy for them that they have a family who loves them so dearly.
Everything seems poignant to me right now, although I think I'm starting with the flu. Although I hate feeling these symptoms, I can even see the bright spot in having a nasty cold in that I don't smoke when I'm sick, and this will be a good break from it for a few days...an opportunity to break the habit for good, hopefully.
I'm feeling a little like Pollyanna again, which has always been an aspect of my character and has been missing for years now. I've always felt it's been a slightly corny part of me, but how I welcome her return. I don't know if she'll be here tomorrow, but she's here right now, and I'm grateful.
What's troubling, though, is that I haven't given up the painkillers, and I wish I could. I went most of the day without them today, but by the time I got home from afternoon errands (including a 12-step meeting), my face hurt just so bad, and it was all I could think of. I ordered a refill from the pharmacy, took two Vicodin, then fell promptly asleep for the rest of the afternoon.
This is what bugs me about painkillers. They rob me of precious hours of my life. I suppose I was hoping that a new state of acceptance would somehow make me so emotionally strong that I could withstand physical pain, but that hasn't been the case, and I'm wondering now how this is all going to play out.
What I love about pain medication is that, even if it does nothing for the pain, it helps me to escape it for a short while, at the end of which I usually take more to keep the escape going. But what I hate about it is that I no longer experience the natural highs of making art or music. I no longer experience those magical moments of truth where "art happens," and I'm left dumbfounded by what I've been able to channel.
I miss these experiences...a lot.
And as I sit here, I sip on a glass of wine and smoke a cigarette, which, combined with pain medication, makes me feel like a total degenerate. I must be the picture of the classic tortured artist. I can think of friends from the past who found these images of themselves romantic, but trust me, they're not. They're sad, and I feel weak and stupid until I catch myself and just accept that this is tough road I'm walking and will therefore be fraught with mistakes.
Some of my recovery pals like to think that this pain is just a manifestation of my secret desire "to use," and I do try to keep an open mind to their opinions. But as I sit here, my face fucking hurts. It's as real as this tasty Pinot Noir and Camel Light.
Decisions, decisions.
What's been interesting is that in this new state of acceptance, I can see just how angry, bitter, guilt-ridden and jealous I've been towards those who have such healthy and pain-free bodies. I wasn't even aware that I was feeling such things until I decided to stop fighting the pain so hard.
I was even jealous of my two- and four-year-old nieces, who are so innocent and pure, so healthy, so joyous, and live in such a love-filled life. I couldn't look at them at not feel some twinge of sadness and regret, as if all of the good things of life had passed me by, and one of my only real uses now as a human being was to help them grow into strong healthy adults. In such a state of pain and addiction, my life was beginning to feel over.
It was a horrible state to be in, and only now do I see just how destructive it was to my psyche. But acceptance has changed all that. I accept now that these awful things have happened to me in my life, and it's all okay. I can deal with it. I can make something with it; I can give it all meaning, and who knows? Maybe these very writings will be the biggest thing I will ever offer my fellow human beings, which means that every twist and turn won't be wasted, provided I can stay honest and true about every detail (which tonight is the issue of alcohol and nicotine).
I read an article recently by Scott Kiloby about something called "non-duality," which is the name of what I've been experiencing, apparently. We've exchanged a couple of emails about the topic, and he closed one by saying this: "What is, is what is. And a full surrender into that brings a peace of mind totally unknown to most people. I also experience it as unconditional love."
It occurs to me that had I not gone through this terrible ordeal, I might not have stumbled upon this insight, which indeed fills me with unconditional love.
When I played with my nieces this Christmas, I was filled with such light and such joy at watching them tear open their gifts. And instead of feeling any kind of jealousy or resentment, I felt deep compassion for them, as they go through their own trials and tribulations in their growth experience. And I was happy for them that they have a family who loves them so dearly.
Everything seems poignant to me right now, although I think I'm starting with the flu. Although I hate feeling these symptoms, I can even see the bright spot in having a nasty cold in that I don't smoke when I'm sick, and this will be a good break from it for a few days...an opportunity to break the habit for good, hopefully.
I'm feeling a little like Pollyanna again, which has always been an aspect of my character and has been missing for years now. I've always felt it's been a slightly corny part of me, but how I welcome her return. I don't know if she'll be here tomorrow, but she's here right now, and I'm grateful.
Saturday, December 13, 2008
The Limits Of Everything
It's Saturday now. It's taken me two days to absorb the consultation at the Hackensack Pain Clinic, where after a long discussion about the details of my health history, I was told I would most likely be in pain for the rest of my life.
While I was told about treatments that might help--a change in medications, injection therapy (which most likely wouldn't work as this has gone on too long), and a type of brain surgery where a device is implanted to re-route the pain signals--the words that echo are the ones that sounded so final. This condition will never heal on its own, as what I'm experiencing now is something akin to phantom limb pain. The source of the pain is long gone; what is firing now are essentially memories of it.
The pain has been worsening in the last month or two, which has made me careless, as I've been smoking again, albeit one or two here and there. Still, it doesn't help matters any.
The doctor I saw was perhaps the most empathetic doctor I've ever seen. He gave me the bad news first and let me cry in a fit of shock at hearing words I wasn't expecting. I might have had an easier time hearing I was going to die than hearing I would be feeling this pain for the remaining decades of my life.
He actually made that point to me--that I was still a relatively young person who had a lot of life yet to live, and therefore something like this motor cortex stimulation (the brain...er...procedure) should be something seriously considered.
I woke up feeling just so sick this morning from all the pills I've been taking, and just so sad, as if a grey mist was circling my entire room. Of course, it might have been the dust build-up, as I can't bring myself to clean anything right now. My poor cat is acting as the dust mop. As she rolls around the floor, her fur picks up all kinds of debris. She knows something is up.
My friends in recovery are so concerned about the effect of this news on my addiction, but addiction right now seems like the least of my concerns. Whatever it takes to get me through the day is what I'll take, addiction be damned.
I'm trying my hardest to move forward. I saw a chiropractor yesterday, and will continue to see him for trigger point therapy; I've made an appointment with my old acupuncturist for Monday; and I've made an appointment with the neurosurgeon recommended by the pain doctor for Wednesday.
It's all a bit overwhelming to find myself at this level of pain again, and at this point of despondency. I suppose the question I'm grappling with now is not how much suffering one person can take, but how many times can they take it?
I'm trying to push myself out the door to work on my Christmas card project down at my studio, but I'd so much rather watch television and escape into lives and stories where things always work out.
I'm also trying hard not to feel sorry for myself, but all this trying in every direction is eroding me to the bone.
I just can't go to the recovery rooms anymore. While I'm happy for everyone that God is working in their lives, as many have truly found peace and contentment, I just can't be there right now and listen to it. Instead of finding understanding and fellowship there, I'm finding, well, nothing.
That said, I'm still working with my sponsor, who I love, as I do enjoy the Twelve Steps. But that's about as far as I can go with the recovery folks right now.
While these other therapies the pain doctor spoke of do present some hope, I just can't feel it for some reason. I'm so used to everything going wrong at every turn that I dare not get my hopes up for anything. While I said in a recent post that disappointment hasn't killed me yet, I fear there IS a limit as to how much one can bear.
Just like there are no absolute truths, there are limits to everything, and I've hit the limit of just about everything I can currently think of.
Getting out of this mess will be a miracle indeed.
While I was told about treatments that might help--a change in medications, injection therapy (which most likely wouldn't work as this has gone on too long), and a type of brain surgery where a device is implanted to re-route the pain signals--the words that echo are the ones that sounded so final. This condition will never heal on its own, as what I'm experiencing now is something akin to phantom limb pain. The source of the pain is long gone; what is firing now are essentially memories of it.
The pain has been worsening in the last month or two, which has made me careless, as I've been smoking again, albeit one or two here and there. Still, it doesn't help matters any.
The doctor I saw was perhaps the most empathetic doctor I've ever seen. He gave me the bad news first and let me cry in a fit of shock at hearing words I wasn't expecting. I might have had an easier time hearing I was going to die than hearing I would be feeling this pain for the remaining decades of my life.
He actually made that point to me--that I was still a relatively young person who had a lot of life yet to live, and therefore something like this motor cortex stimulation (the brain...er...procedure) should be something seriously considered.
I woke up feeling just so sick this morning from all the pills I've been taking, and just so sad, as if a grey mist was circling my entire room. Of course, it might have been the dust build-up, as I can't bring myself to clean anything right now. My poor cat is acting as the dust mop. As she rolls around the floor, her fur picks up all kinds of debris. She knows something is up.
My friends in recovery are so concerned about the effect of this news on my addiction, but addiction right now seems like the least of my concerns. Whatever it takes to get me through the day is what I'll take, addiction be damned.
I'm trying my hardest to move forward. I saw a chiropractor yesterday, and will continue to see him for trigger point therapy; I've made an appointment with my old acupuncturist for Monday; and I've made an appointment with the neurosurgeon recommended by the pain doctor for Wednesday.
It's all a bit overwhelming to find myself at this level of pain again, and at this point of despondency. I suppose the question I'm grappling with now is not how much suffering one person can take, but how many times can they take it?
I'm trying to push myself out the door to work on my Christmas card project down at my studio, but I'd so much rather watch television and escape into lives and stories where things always work out.
I'm also trying hard not to feel sorry for myself, but all this trying in every direction is eroding me to the bone.
I just can't go to the recovery rooms anymore. While I'm happy for everyone that God is working in their lives, as many have truly found peace and contentment, I just can't be there right now and listen to it. Instead of finding understanding and fellowship there, I'm finding, well, nothing.
That said, I'm still working with my sponsor, who I love, as I do enjoy the Twelve Steps. But that's about as far as I can go with the recovery folks right now.
While these other therapies the pain doctor spoke of do present some hope, I just can't feel it for some reason. I'm so used to everything going wrong at every turn that I dare not get my hopes up for anything. While I said in a recent post that disappointment hasn't killed me yet, I fear there IS a limit as to how much one can bear.
Just like there are no absolute truths, there are limits to everything, and I've hit the limit of just about everything I can currently think of.
Getting out of this mess will be a miracle indeed.
Tuesday, December 09, 2008
Hope Springs Until Thursday
It's been a tough week and I haven't posted anything. I suppose I don't want to sound like a broken records of complaints and thoughts that the universe has diabolical plans for my existence.
But it's also been an interesting week. Over the weekend, I was surprisingly in a very low amount of pain and was faced strictly with the issues of addiction. When I'm alone in those very private moments, pill-free and pain-free (my version of pain-free anyway), I'm faced with the curious facts of my life and my history, and I find myself perplexed.
To be brief, I'm aware that I really don't know who I am without all the drama that accompanies the health and addiction issues. When things are quiet, I'm suddenly faced with, well...me. I have this wonderful life set up for myself, which I'm thankful for as I've been able to forge one despite the complications. But when the path before me is clear, I'm lost, as ironic as that sounds. I'm so used to pain and illness (physical or mental) that I'm actually frightened when things suddenly aren't so dramatic--when life beckons with potential.
Part of me fears that without drama, life will be boring, and it does make me wonder if my subconscious somehow creates problems in order to continue the pattern that has been so familiar to me since childhood.
Then again, it's hard to fathom how the subconscious could dig so deeply into biological pathologies--into my bone marrow fer chrissakes--and create such havoc.
Still, it's not lost on me that I expect disappointment in life, particularly when things are going well. Disappointment and betrayal have been constant themes, and the betrayal of my own body has been the unkindest cut of all.
I wrote at length in my journal this weekend, seeing so very clearly the sequence of events that continue to play themselves out in a way that's almost scripted; the players and circumstances change, but the results are always the same: I'm felled and crippled back to square one, constantly starting over only to be disappointed and restricted yet again by some new catastrophe.
I suppose this isn't anything extraordinary. People repititiously get into abusive relationships all the time; drugs and alcohol can be a constant theme for someone for decades; workaholics never see their folly until they're on their deathbeds. Clearly, I fall into a similar category, only my story is slightly different; I ride high with great expectations until something hits me so hard that I'm KO'd in that championship fight where I'm the odds-on favorite. This happens over and over and over.
Even though I've technically been a painkiller addict for four and a half years, I've buried my deepest self and escaped in other ways that have been just as profound, and just as damaging, throughout my adult life.
Physically, something was terribly wrong with my health starting in my late 20s and through my 30s (not diagnosed until my 40s), but that was the side story to my workaholism, which manifested as a music career. I was addicted to it wholeheartedly. I defined who I was by it, and I had no other life other than music for years. While I've never regretted, not even once, any song I've ever written (they seemed to come through me to the extent I almost don't feel responsible for them), being the singer/songwriter was extremely stressful for me as I just didn't feel worthy of the success that I knew the music could bring.
It was as though my own work was bigger than me, and I didn't have the self-esteem it took to shepherd my songs and performances to the success they deserved. But I sacrificed myself for them completely out of pure ambition, and that's the affliction any addict will tell you they identify with.
Despite discovering these new insights, I woke up yesterday morning with that familiar plaguing pain, which again so deeply disappointed me. Surely, when I had these insights the night before, I thought for sure they would be curative. But they weren't, and I'm now back on the pills.
The Pain Center at Hackensack Medical Center has agreed to offer me a consultation on Thursday. As I don't have PNH (talked about in an earlier email), I feel like this is my last hope for relief.
Earlier this evening, my spirits were descending into the logical place where most chronic pain patients with my condition find themselves--that the only logical place left to go is to check out for good, which would be the ultimate painkiller.
As soon as I had that thought (almost to the second), the Pain Center called saying they had an opening Thursday. It's not the first time something like this has happened--that some kind of intervention happened at exactly the moment I needed it, offering some glimmer of hope to keep me going for a few more days. It's like my guardian angel puts in an emergency report to God, saying, "We've got to do something or we're going to lose her."
I've no idea what to expect Thursday. While tonight hope might not be springing eternal, it's at least springing until Thursday.
*************************
But it's also been an interesting week. Over the weekend, I was surprisingly in a very low amount of pain and was faced strictly with the issues of addiction. When I'm alone in those very private moments, pill-free and pain-free (my version of pain-free anyway), I'm faced with the curious facts of my life and my history, and I find myself perplexed.
To be brief, I'm aware that I really don't know who I am without all the drama that accompanies the health and addiction issues. When things are quiet, I'm suddenly faced with, well...me. I have this wonderful life set up for myself, which I'm thankful for as I've been able to forge one despite the complications. But when the path before me is clear, I'm lost, as ironic as that sounds. I'm so used to pain and illness (physical or mental) that I'm actually frightened when things suddenly aren't so dramatic--when life beckons with potential.
Part of me fears that without drama, life will be boring, and it does make me wonder if my subconscious somehow creates problems in order to continue the pattern that has been so familiar to me since childhood.
Then again, it's hard to fathom how the subconscious could dig so deeply into biological pathologies--into my bone marrow fer chrissakes--and create such havoc.
Still, it's not lost on me that I expect disappointment in life, particularly when things are going well. Disappointment and betrayal have been constant themes, and the betrayal of my own body has been the unkindest cut of all.
I wrote at length in my journal this weekend, seeing so very clearly the sequence of events that continue to play themselves out in a way that's almost scripted; the players and circumstances change, but the results are always the same: I'm felled and crippled back to square one, constantly starting over only to be disappointed and restricted yet again by some new catastrophe.
I suppose this isn't anything extraordinary. People repititiously get into abusive relationships all the time; drugs and alcohol can be a constant theme for someone for decades; workaholics never see their folly until they're on their deathbeds. Clearly, I fall into a similar category, only my story is slightly different; I ride high with great expectations until something hits me so hard that I'm KO'd in that championship fight where I'm the odds-on favorite. This happens over and over and over.
Even though I've technically been a painkiller addict for four and a half years, I've buried my deepest self and escaped in other ways that have been just as profound, and just as damaging, throughout my adult life.
Physically, something was terribly wrong with my health starting in my late 20s and through my 30s (not diagnosed until my 40s), but that was the side story to my workaholism, which manifested as a music career. I was addicted to it wholeheartedly. I defined who I was by it, and I had no other life other than music for years. While I've never regretted, not even once, any song I've ever written (they seemed to come through me to the extent I almost don't feel responsible for them), being the singer/songwriter was extremely stressful for me as I just didn't feel worthy of the success that I knew the music could bring.
It was as though my own work was bigger than me, and I didn't have the self-esteem it took to shepherd my songs and performances to the success they deserved. But I sacrificed myself for them completely out of pure ambition, and that's the affliction any addict will tell you they identify with.
Despite discovering these new insights, I woke up yesterday morning with that familiar plaguing pain, which again so deeply disappointed me. Surely, when I had these insights the night before, I thought for sure they would be curative. But they weren't, and I'm now back on the pills.
The Pain Center at Hackensack Medical Center has agreed to offer me a consultation on Thursday. As I don't have PNH (talked about in an earlier email), I feel like this is my last hope for relief.
Earlier this evening, my spirits were descending into the logical place where most chronic pain patients with my condition find themselves--that the only logical place left to go is to check out for good, which would be the ultimate painkiller.
As soon as I had that thought (almost to the second), the Pain Center called saying they had an opening Thursday. It's not the first time something like this has happened--that some kind of intervention happened at exactly the moment I needed it, offering some glimmer of hope to keep me going for a few more days. It's like my guardian angel puts in an emergency report to God, saying, "We've got to do something or we're going to lose her."
I've no idea what to expect Thursday. While tonight hope might not be springing eternal, it's at least springing until Thursday.
*************************
Sunday, November 23, 2008
Soul Paralysis
Timing is surely a perplexing thing. Yesterday, I decided to clear off some outdated papers hanging on my fridge, and one was an old schedule of my flamenco teacher, Victorio, who's now teaching in a new location.
What was under it was a message I received almost two years ago from self-help author Gay Hendricks of The Hendricks Institute in reply to a question I'd sent about the spiritual nature of chronic physical pain to hear what he had to say about it.
I was in a very challenging state of mind at the time, angry at God and at a world that no longer made sense to me, for absolutely nothing I was reading was providing any solace at all for my wounded soul and for the spiritual debacle of my aching jaw and face, which back then was scoring an 11 on a 10-point pain scale.
As I was on the institute's email list (and still am), I decided to put Gay in the hotseat in response to the its current newsletter at the time, as he and his wife, Kathlyn, always seem to have such a clear point of view on all matters of the heart and soul. I thought for sure he'd have nothing to say to me (why should he when no one else did?), and I'm quite certain there must have been an angry tone to my question (which unfortunately I can't precisely recall).
In reading his words yesterday and this evening, they make far more sense to me now then they did back then, when I wrote him off as just another nut who was out to blame the victim, for right from the start, he shared a life challenge of his own (weight issues in his youth), noting that his healing began when he realized "I was the source of my reality."
At first it was difficult to equate a weight problem and chronic pain, for the former seemed controllable to me (you can decide what you put in your mouth, which sounds unfairly simple, I'm aware) while the latter was out of the patient's hands. (How does one take personal responsibility for a bone marrow disease?)
But in reading his words again more carefully, something is resonating for me this time around.
He told me a short story of how he'd been obese since birth, and that his weight problem seemed to be genetic in origin, so he could have easily disowned it. But he had an insight in his 20s (when he was 100 pounds overweight), which was that he chose at that moment to be the source of the problem, and once that occurred, he began to lose the weight and has stayed slim ever since.
"It's the act of choosing to claim the source of the issue that liberates the healing energy," he said. "It's when you align your consciousness with it and say, 'This is me. This is happening in me. I'm obviously making it up because where else would it be coming from?' That's when the magic begins to happen."
At the time, these words just sounded kooky, hollow and abstract, for what did he mean by "source"? It rang of self-help jargon, for surely there was no question that the pain was IN me, but how was I "making it up"? Still, I kept a print-out of his words, where they became buried on the fridge until now.
And so I've been thinking about it. In a recent post ("The Wait Is Over"), I talked about embracing the pain as a part of me--not something to be waited out or wished away, but rather recognizing it as an essential part of the journey that has made me all I am today...a person I've come to like, actually. A lot.
And then I began to think about the "source" of this pain--of all pain in my life, not just the physical--and I could see how much I've absorbed the strengths and weaknesses of my relatives, for good or bad, and how I've embodied, in particular, the awful truths they've believed about themselves.
When you're a kid, your parents are who they perceive themselves to be because of their own upbringing, and you accept them as that, just as you accept the perceptions they have of you as absolute truth. And it dawned on me that, despite years of therapy, the scars I carry from the harrowing, constant criticisms are actually still open wounds to a degree.
When I was a child, any time I bravely expressed any individuality, there was some dark force that seemed to be lying in wait for me to take that chance so that it could seize the opportunity, almost ravenously, to denigrate, mock and ridicule. It hurts me to even remember this, because I can feel a twinge of fear that all those comments about me were actually true (words I find hard to repeat here, as they still hurt so much).
I've had to learn to detach myself from them and realize that my loved ones were so insecure themselves, and that it must have given them (my dad in particular) a sense of great and much-needed power to hurt and manipulate a defenseless child.
I could sit here and plague myself with questions as to why he did this--why anyone would feel a need to destroy instead of build up the foundation of my personality--but they can never be answered, really.
The only thing I can do is tend to the scars, and claim my fears now as strictly my own, not coming from any outside source. They're within me, and it's up to me to own them, and to realize it's me who's choosing to not let them go.
Why? Well, again it's just history repeating in a brain loop that I must somehow learn to interrupt.
I'm not on any pain medication today, so I've been asking myself why I haven't gone down to my studio to work on the new paintings I'm so thrilled about, and the answer is clear. I want to forge ahead with this thrilling work, much like I did as a child, when I joyously wanted to venture into a world of discovery and chance.
Back then, though, these forays were met with sadistic criticism, and my disappointment was profound, even crushing. I suppose it's not big leap to see my fear that any stabs I make at individuality, fulfillment and success will be met with terrible disappointment, and so I freeze in a temporary state of soul paralysis where I simply don't move, literally.
Yet I'm aware that if I don't start taking some real chances here, healing on any level won't happen for sure.
I'm afraid that a pain-free, pill-free world will be stark, scary, disappointing, and perhaps worst of all, boring. That might surprise some people, as I seem to be all about adventure and creativity and putting myself out there. But have I really?
Today is a clear-headed day, and the pain is low to moderate. Will I be so open to these thoughts when caught again in the vice of crushing pain? I'm always optimistic that the most recent attack will be my last, but realistically, I'll be confronted with the beast again, I know. Will Gay's words resonate then?
I can't think about this anymore. Where's the remote?
**************************
What was under it was a message I received almost two years ago from self-help author Gay Hendricks of The Hendricks Institute in reply to a question I'd sent about the spiritual nature of chronic physical pain to hear what he had to say about it.
I was in a very challenging state of mind at the time, angry at God and at a world that no longer made sense to me, for absolutely nothing I was reading was providing any solace at all for my wounded soul and for the spiritual debacle of my aching jaw and face, which back then was scoring an 11 on a 10-point pain scale.
As I was on the institute's email list (and still am), I decided to put Gay in the hotseat in response to the its current newsletter at the time, as he and his wife, Kathlyn, always seem to have such a clear point of view on all matters of the heart and soul. I thought for sure he'd have nothing to say to me (why should he when no one else did?), and I'm quite certain there must have been an angry tone to my question (which unfortunately I can't precisely recall).
In reading his words yesterday and this evening, they make far more sense to me now then they did back then, when I wrote him off as just another nut who was out to blame the victim, for right from the start, he shared a life challenge of his own (weight issues in his youth), noting that his healing began when he realized "I was the source of my reality."
At first it was difficult to equate a weight problem and chronic pain, for the former seemed controllable to me (you can decide what you put in your mouth, which sounds unfairly simple, I'm aware) while the latter was out of the patient's hands. (How does one take personal responsibility for a bone marrow disease?)
But in reading his words again more carefully, something is resonating for me this time around.
He told me a short story of how he'd been obese since birth, and that his weight problem seemed to be genetic in origin, so he could have easily disowned it. But he had an insight in his 20s (when he was 100 pounds overweight), which was that he chose at that moment to be the source of the problem, and once that occurred, he began to lose the weight and has stayed slim ever since.
"It's the act of choosing to claim the source of the issue that liberates the healing energy," he said. "It's when you align your consciousness with it and say, 'This is me. This is happening in me. I'm obviously making it up because where else would it be coming from?' That's when the magic begins to happen."
At the time, these words just sounded kooky, hollow and abstract, for what did he mean by "source"? It rang of self-help jargon, for surely there was no question that the pain was IN me, but how was I "making it up"? Still, I kept a print-out of his words, where they became buried on the fridge until now.
And so I've been thinking about it. In a recent post ("The Wait Is Over"), I talked about embracing the pain as a part of me--not something to be waited out or wished away, but rather recognizing it as an essential part of the journey that has made me all I am today...a person I've come to like, actually. A lot.
And then I began to think about the "source" of this pain--of all pain in my life, not just the physical--and I could see how much I've absorbed the strengths and weaknesses of my relatives, for good or bad, and how I've embodied, in particular, the awful truths they've believed about themselves.
When you're a kid, your parents are who they perceive themselves to be because of their own upbringing, and you accept them as that, just as you accept the perceptions they have of you as absolute truth. And it dawned on me that, despite years of therapy, the scars I carry from the harrowing, constant criticisms are actually still open wounds to a degree.
When I was a child, any time I bravely expressed any individuality, there was some dark force that seemed to be lying in wait for me to take that chance so that it could seize the opportunity, almost ravenously, to denigrate, mock and ridicule. It hurts me to even remember this, because I can feel a twinge of fear that all those comments about me were actually true (words I find hard to repeat here, as they still hurt so much).
I've had to learn to detach myself from them and realize that my loved ones were so insecure themselves, and that it must have given them (my dad in particular) a sense of great and much-needed power to hurt and manipulate a defenseless child.
I could sit here and plague myself with questions as to why he did this--why anyone would feel a need to destroy instead of build up the foundation of my personality--but they can never be answered, really.
The only thing I can do is tend to the scars, and claim my fears now as strictly my own, not coming from any outside source. They're within me, and it's up to me to own them, and to realize it's me who's choosing to not let them go.
Why? Well, again it's just history repeating in a brain loop that I must somehow learn to interrupt.
I'm not on any pain medication today, so I've been asking myself why I haven't gone down to my studio to work on the new paintings I'm so thrilled about, and the answer is clear. I want to forge ahead with this thrilling work, much like I did as a child, when I joyously wanted to venture into a world of discovery and chance.
Back then, though, these forays were met with sadistic criticism, and my disappointment was profound, even crushing. I suppose it's not big leap to see my fear that any stabs I make at individuality, fulfillment and success will be met with terrible disappointment, and so I freeze in a temporary state of soul paralysis where I simply don't move, literally.
Yet I'm aware that if I don't start taking some real chances here, healing on any level won't happen for sure.
I'm afraid that a pain-free, pill-free world will be stark, scary, disappointing, and perhaps worst of all, boring. That might surprise some people, as I seem to be all about adventure and creativity and putting myself out there. But have I really?
Today is a clear-headed day, and the pain is low to moderate. Will I be so open to these thoughts when caught again in the vice of crushing pain? I'm always optimistic that the most recent attack will be my last, but realistically, I'll be confronted with the beast again, I know. Will Gay's words resonate then?
I can't think about this anymore. Where's the remote?
**************************
Friday, November 21, 2008
The Pendulum Of Consciousness
Some interesting developments with my hematologist. He attended a conference a week or two ago about a very rare and very underdiagnosed genetic mutation that he thinks I might have. It's hard to fathom that anything could be rarer than my current diagnosis (essential thrombocythemia), but apparently one exists, and I might be a likely candidate.
Mind you, in all of Europe and North America, there's only about 7,000 diagnosed cases, so my chances of being one of them is akin to winning the TriState Lotto, but if anyone is going to have this thing, it could well be me, as "rare" is my CB handle all things health-related.
Not only do I have a rare blood disorder, but I've had even rarer complications, which has led many a practitioner to say there's "something else going on" with me, as nearly everything I've suffered with has been something a doctor only reads about in medical textbooks. As my GP has often said, "no one actually gets these things," and both he and my hematologist have never seen a patient like me in their combined 60 years of practice.
Called Paroxysmal Noctornal Hemoglobinuria (I still don't have it memorized), it's a condition that causes the exact types of clots I've endured, even down to their location, and explains a patient's inability to heal from infection (hence the trouble in my jawbone), among other things.
My doc has told me not to get too excited that this could be me, but I told him that as disappointment hasn't killed me in the past, why stop the optimism now? We're going to do the test the Monday after Thanksgiving, and odds alone would suggest slim chances for diagnosis, but hey--it's nice to live in hope for once.
In fact, this feeling of hope truly has buoyancy. Even though these posts often sound so glum (because, well, I often am), I tend to have a curiously buoyant spirit, even in the worst of times. People who don't read my blog would most likely be surprised to know of what I endure on a daily basis, as my interest in life, and especially my work, can sometimes eclipse anything else I'm feeling in that moment, even pain (although to be honest, that's rare).
This was noted to me by my life coach, Nancy Colasurdo, this week, who's one person in particular who witnesses these extremes. In the evening, she'll read about a particularly bad day I'm having, yet upon meeting the next day about my goals, I'll get so fired up about my dreams and visions that it's hard for her to reconcile these two seemingly disparate states.
Mind you, no matter what I'm feeling, I still dress up in some swanky or nutty outfit almost every day, the impression of which must surely be a curious one. Lately, not only have I been sporting a shaved head, but also a fabulous Marc Jacobs coat that I got for a steal on eBay, along with an aviator's cap that Nancy applauded as yet another stunt I'm "getting away with."
I must admit that I, too, can be baffled not just by my overly harsh life experience, but also by the joy I can still feel in spite of it. As Nancy recently mentioned, she can only imagine what I'd be like without all the pain and pills. If I can get as much done as I do in this painful, drugged state, just think of what I could do pain-free and alert.
Of course, there's a good chance that I'd just watch more television, but with this looming possibility of a better diagnosis and a new cutting-edge treatment, I actually feel a twinge of fear and excitement at the thought of a ball-and-chain-free life. This pain and fatigue weighs me down so much that in the same way one's arm seems to float after intense downward pressure is lifted, I fear I'd instantly launch into a full-body orbit once these pressures were removed.
Occasionally, I do have a spectacular day, when I awake feeling healthy and pain-free, and I suddenly remember what it feels like to be 15 years old again. I'm looking through the eyes of someone who doesn't even think about her body, and I can assure you, it's heavenly.
If I am diagnosed with PNH (let's just go with the short version), my doctor told me that the treatment will cost...drum roll...$365,000 per year! Upon seeing my face after telling me this, he quickly followed up with an even more staggering fact; that the government will actually pay for it. I'm not sure which part of that equation is nuttier--the cost of the medication itself or the government's willingness to value the life of one citizen that much. I suspect it's all part of this new research, but whatever the reason, I'm grateful.
Of course, I'm not even diagnosed yet, but it's so like me to get so far ahead of myself, which is why I hired Nancy in the first place.
I do need to stop thinking about it, though, as it all seems too good to be true. To anyone reading this, please say a prayer for me that when they do the test, whatever result they get will be the correct one, and that whatever that result is, I'll be able to handle it, for either answer will swing the pendulum of my consciousness to the extreme.
***********************
Mind you, in all of Europe and North America, there's only about 7,000 diagnosed cases, so my chances of being one of them is akin to winning the TriState Lotto, but if anyone is going to have this thing, it could well be me, as "rare" is my CB handle all things health-related.
Not only do I have a rare blood disorder, but I've had even rarer complications, which has led many a practitioner to say there's "something else going on" with me, as nearly everything I've suffered with has been something a doctor only reads about in medical textbooks. As my GP has often said, "no one actually gets these things," and both he and my hematologist have never seen a patient like me in their combined 60 years of practice.
Called Paroxysmal Noctornal Hemoglobinuria (I still don't have it memorized), it's a condition that causes the exact types of clots I've endured, even down to their location, and explains a patient's inability to heal from infection (hence the trouble in my jawbone), among other things.
My doc has told me not to get too excited that this could be me, but I told him that as disappointment hasn't killed me in the past, why stop the optimism now? We're going to do the test the Monday after Thanksgiving, and odds alone would suggest slim chances for diagnosis, but hey--it's nice to live in hope for once.
In fact, this feeling of hope truly has buoyancy. Even though these posts often sound so glum (because, well, I often am), I tend to have a curiously buoyant spirit, even in the worst of times. People who don't read my blog would most likely be surprised to know of what I endure on a daily basis, as my interest in life, and especially my work, can sometimes eclipse anything else I'm feeling in that moment, even pain (although to be honest, that's rare).
This was noted to me by my life coach, Nancy Colasurdo, this week, who's one person in particular who witnesses these extremes. In the evening, she'll read about a particularly bad day I'm having, yet upon meeting the next day about my goals, I'll get so fired up about my dreams and visions that it's hard for her to reconcile these two seemingly disparate states.
Mind you, no matter what I'm feeling, I still dress up in some swanky or nutty outfit almost every day, the impression of which must surely be a curious one. Lately, not only have I been sporting a shaved head, but also a fabulous Marc Jacobs coat that I got for a steal on eBay, along with an aviator's cap that Nancy applauded as yet another stunt I'm "getting away with."
I must admit that I, too, can be baffled not just by my overly harsh life experience, but also by the joy I can still feel in spite of it. As Nancy recently mentioned, she can only imagine what I'd be like without all the pain and pills. If I can get as much done as I do in this painful, drugged state, just think of what I could do pain-free and alert.
Of course, there's a good chance that I'd just watch more television, but with this looming possibility of a better diagnosis and a new cutting-edge treatment, I actually feel a twinge of fear and excitement at the thought of a ball-and-chain-free life. This pain and fatigue weighs me down so much that in the same way one's arm seems to float after intense downward pressure is lifted, I fear I'd instantly launch into a full-body orbit once these pressures were removed.
Occasionally, I do have a spectacular day, when I awake feeling healthy and pain-free, and I suddenly remember what it feels like to be 15 years old again. I'm looking through the eyes of someone who doesn't even think about her body, and I can assure you, it's heavenly.
If I am diagnosed with PNH (let's just go with the short version), my doctor told me that the treatment will cost...drum roll...$365,000 per year! Upon seeing my face after telling me this, he quickly followed up with an even more staggering fact; that the government will actually pay for it. I'm not sure which part of that equation is nuttier--the cost of the medication itself or the government's willingness to value the life of one citizen that much. I suspect it's all part of this new research, but whatever the reason, I'm grateful.
Of course, I'm not even diagnosed yet, but it's so like me to get so far ahead of myself, which is why I hired Nancy in the first place.
I do need to stop thinking about it, though, as it all seems too good to be true. To anyone reading this, please say a prayer for me that when they do the test, whatever result they get will be the correct one, and that whatever that result is, I'll be able to handle it, for either answer will swing the pendulum of my consciousness to the extreme.
***********************
Sunday, November 16, 2008
Life In The Penumbra
Today is Sunday, and I woke up feeling somewhat better. I took some Xanax yesterday, which scares me as benzodiazapenes have the potential of permanently scarring the brain, but drugs in the Valium family are known for their pain-relieving properties for facial pain. I don't have the same addiction issues with Xanax as I do with opiates--for some odd reason, addiction to that drug has never set in. I use it sparingly as I'm so leery of it, but what relief it can bring, even a small dose.
I tend to flog myself when I resort to any type of pain meds, thinking that I should be stronger in character to overcome things through mental means, but that's just as nuts as taking too much of something. The cliche "happy medium" comes to mind here--a concept I should perhaps consider more, if that's even possible for an addict.
I got up around nine, and after making my morning coffee, I popped on the TV, and there was that History Channel show again about the plague in Europe in the 1350s. As it has before, this show gives me great comfort, because it's a story about human suffering on an unimaginable scale--a story that was recorded with the written word (as opposed to similar human die-offs like the peoples of Central America who succumbed to European diseases in the 1500s).
It reinforced the notion that the scale of human suffering can vary wildly. Some go through life with the ordinary trials and tribulations of the human condition, while others suffer in such grotesque ways that we avert our eyes, as such unfairness is unthinkable.
Perhaps this is the reason for the current popularity of the philosophical/spiritual concept of the Law of Attraction, which seems to be taking root everywhere. While this idea has been around for ages, current books like "The Secret" have become red-hot bestsellers as they offer people a greater sense of control over what happens to them if they can just "vibrate" and visualize differently in their thoughts and actions. They have faith that if they expect more of life, they will get it, and surely there is some wisdom in this.
When one stops and thinks about it, it really should come as no surprise that this "law" contains such truth, as the evidence for it is all around us. We all know someone who had an ideal upbringing and marches into their adulthood having a natural love of themselves and others. They often find love and success early in life, and clearly it's because they're unencumbered by the baggage that plagues the person who suffered horrendous abuse in childhood, be it emotional, physical or sexual.
When survivors of these diabolical ravages begin to come of age, their view of the world and of themselves is grossly distorted, and much of their energies, if not all of it at times, is spent trying to repair the damage that never should have occurred in the first place. Yet at the same time, they must also embark on developing the survival skills that any human needs so that take can care of themselves and their families (provided they have the emotional stability to even have a family), and to lead an independent life.
For these folks (myself being one), the Law of Attraction provides a new hope and a clear map towards a better existence, whereby we can consciously tap into the power of expectation, which seems to come so easily to the products of happy childhoods.
Yet there is also a grave danger in thinking this law so absolute, for when bad things happen to good people, we can easily slip into the "blame the victim" mentality. If a child is kidnapped and killed, parents can wonder where their thinking went wrong that allowed this to happen. If we are felled by a disease that causes lifelong crippling, we can blame ourselves that we didn't visualize hard enough to prevent this terrible event.
I suppose my point is that there are limits to everything, and that there are no absolute truths in life, for if there were, we would indeed have complete control over everything that happens to both us and the ones we love just by creating a pretty picture in our heads.
A few years ago, I had a lovely friendship with a woman, Elle, who actually started out as a fan of my music. We had a long discussion over dinner one evening about my work and about art in general, and I attempted to explain what art was for me, and that I knew it when I created it.
I said that the click happened when my song was somehow able to encompass a broader statement about life than what was there on the surface. If it was a happy tune, there was also an aching sadness just below the surface, and if it was a sad song, there was a foundation of hope somewhere deep inside it.
Elle (who has a massive IQ) explained it much better. She said that art and music like this exists in the "penumbra" (which Webster's defines as "a space of partial illumination between the perfect shadow on all sides and the full light") and that this is the area in which the Supreme Court grapples with its decisions in order to find truth. It's never precisely in one location, but rather in the grey area between light and shadow.
I never forgot her explanation, as I'd discovered this heady concept all on my own in my dogged attempts to write something so seemingly simple as a pop song. It's wonderful when humans from such varied backgrounds can come to such similar conclusions via completely different routes.
I don't see Elle as much these days, as she's suffering greatly herself, only her trial is full-blown multiple sclerosis, and she's attempting, quite valiantly, to find her own comfortable place in the penumbra.
For both of us, the shadows in our lives are quite dark indeed. But I like to believe that it's in such a state of darkness that any light is best seen, provided we choose to open our eyes.
In a world where there seems to be no absolute truths right now, I suppose that's one truth I can count on.
Hope springs eternal.
******************************
I tend to flog myself when I resort to any type of pain meds, thinking that I should be stronger in character to overcome things through mental means, but that's just as nuts as taking too much of something. The cliche "happy medium" comes to mind here--a concept I should perhaps consider more, if that's even possible for an addict.
I got up around nine, and after making my morning coffee, I popped on the TV, and there was that History Channel show again about the plague in Europe in the 1350s. As it has before, this show gives me great comfort, because it's a story about human suffering on an unimaginable scale--a story that was recorded with the written word (as opposed to similar human die-offs like the peoples of Central America who succumbed to European diseases in the 1500s).
It reinforced the notion that the scale of human suffering can vary wildly. Some go through life with the ordinary trials and tribulations of the human condition, while others suffer in such grotesque ways that we avert our eyes, as such unfairness is unthinkable.
Perhaps this is the reason for the current popularity of the philosophical/spiritual concept of the Law of Attraction, which seems to be taking root everywhere. While this idea has been around for ages, current books like "The Secret" have become red-hot bestsellers as they offer people a greater sense of control over what happens to them if they can just "vibrate" and visualize differently in their thoughts and actions. They have faith that if they expect more of life, they will get it, and surely there is some wisdom in this.
When one stops and thinks about it, it really should come as no surprise that this "law" contains such truth, as the evidence for it is all around us. We all know someone who had an ideal upbringing and marches into their adulthood having a natural love of themselves and others. They often find love and success early in life, and clearly it's because they're unencumbered by the baggage that plagues the person who suffered horrendous abuse in childhood, be it emotional, physical or sexual.
When survivors of these diabolical ravages begin to come of age, their view of the world and of themselves is grossly distorted, and much of their energies, if not all of it at times, is spent trying to repair the damage that never should have occurred in the first place. Yet at the same time, they must also embark on developing the survival skills that any human needs so that take can care of themselves and their families (provided they have the emotional stability to even have a family), and to lead an independent life.
For these folks (myself being one), the Law of Attraction provides a new hope and a clear map towards a better existence, whereby we can consciously tap into the power of expectation, which seems to come so easily to the products of happy childhoods.
Yet there is also a grave danger in thinking this law so absolute, for when bad things happen to good people, we can easily slip into the "blame the victim" mentality. If a child is kidnapped and killed, parents can wonder where their thinking went wrong that allowed this to happen. If we are felled by a disease that causes lifelong crippling, we can blame ourselves that we didn't visualize hard enough to prevent this terrible event.
I suppose my point is that there are limits to everything, and that there are no absolute truths in life, for if there were, we would indeed have complete control over everything that happens to both us and the ones we love just by creating a pretty picture in our heads.
A few years ago, I had a lovely friendship with a woman, Elle, who actually started out as a fan of my music. We had a long discussion over dinner one evening about my work and about art in general, and I attempted to explain what art was for me, and that I knew it when I created it.
I said that the click happened when my song was somehow able to encompass a broader statement about life than what was there on the surface. If it was a happy tune, there was also an aching sadness just below the surface, and if it was a sad song, there was a foundation of hope somewhere deep inside it.
Elle (who has a massive IQ) explained it much better. She said that art and music like this exists in the "penumbra" (which Webster's defines as "a space of partial illumination between the perfect shadow on all sides and the full light") and that this is the area in which the Supreme Court grapples with its decisions in order to find truth. It's never precisely in one location, but rather in the grey area between light and shadow.
I never forgot her explanation, as I'd discovered this heady concept all on my own in my dogged attempts to write something so seemingly simple as a pop song. It's wonderful when humans from such varied backgrounds can come to such similar conclusions via completely different routes.
I don't see Elle as much these days, as she's suffering greatly herself, only her trial is full-blown multiple sclerosis, and she's attempting, quite valiantly, to find her own comfortable place in the penumbra.
For both of us, the shadows in our lives are quite dark indeed. But I like to believe that it's in such a state of darkness that any light is best seen, provided we choose to open our eyes.
In a world where there seems to be no absolute truths right now, I suppose that's one truth I can count on.
Hope springs eternal.
******************************
Wednesday, November 12, 2008
Popping Mad
Oh, man. Today is really bad. There's just something about this pain that is so debilitating, so crushing to the soul. I tell people it's like someone injected acid into my face and jaw, and lemme tell ya, it's hard to imagine at the moment what could be worse in this life.
Perhaps there are equivalents, like losing a child or being unjustly imprisoned for years, but as far as I know, this particular type of jaw/face pain (also known as atypical trigeminal neuralgia) is the only condition on Wikipedia called "the suicide disease," as sufferers find it so unbearable, and ultimately become despondent and suicidal because it's so untreatable.
In fact, that Wikipedia entry is truly the best description I've read so far of what I suffer through, and believe me, I've read plenty.
I know there are unconventional things I've yet to try to find relief, but frankly, I'm exhausted. Plus, life goes on; I need to earn money to stay afloat (disability doesn't cover my expenses), bills need to be paid, obligations must be met. And there are those days or weeks when the pain just isn't so bad, and I enjoy simply living my life. The last thing I want to do during these periods is make an appointment at that swanky pain clinic. I want to paint, or hang with friends, or buy shoes, or visit my nieces!
When things are bad, though, after so many years of this ordeal the idea of making even more appointments and telling the whole story all over again--with full knowledge that absolutely all of my previous efforts have been in vain--is just torturous. It's certainly easier to just pop pills and forget about it all for awhile--to drift off into a temporary Utopia where the darkness isn't quite so black.
I don't have any pills right now, though. Damn! I want to just check out; go watch "House" reruns and pop pills whenever House does. I want that smooth feeling to come over me that everything is going to be okay, or better, that everything is okay. I want the pain to lift just a bit (it never goes away completely), so that I can sigh and maybe take a nap.
Instead, I sit here wrapped as tight as a drum, wondering how any creator could have screwed things up so completely to have this condition even exist.
Sometimes people say to me, "Everything happens for a reason."
"Oh, really?" I respond (just in my mind, of course). "Let's hear you say that while I slice your skull with this machete."
I don't even know what I mean by that other than I'm obviously pissed and upset and sick to death of that irritating concept called "spirituality."
I suppose if I had a boyfriend or husband, my workload in finding a cure would be divided. But every responsibility of my life is on my shoulders and my shoulders alone. Normally, I actually enjoy this and rarely even think about it. But when I really need help of the more dire sort, I'm acutely aware that I'm in this by myself, and it's up to me to do it all--to seek out the treatments, make the appointments, find transportation, then follow whatever program is laid before me.
For years now, it's all been paid for with credit. Yes, money is another issue.
My friends in recovery encourage me to call someone when I'm suffering, but sometimes calling friends or family is worse because no one knows how to advise. No one has dealt with anything even close to this, and I actually feel bad for them that I can sometimes be so inconsolable. It gets frustrating for us both when every suggestion they make is something I've tried, and while this often makes me sound negative, I'm basically just reporting the facts.
Ultimately, I end up doing a faked cheerfulness before I get off the phone, just so that they don't feel so bad.
It's just way easier sometimes to sit back and start popping. Sometimes friends say, "But you could die from those pills!" Trust me--I'm not clinically depressed when I say, "Yeah? And?" The only reason I don't check out is that there's so much of the good life I've yet to live. I know it exists--I've seen it in movies.
I dunno. I gotta find some pills. This is just awful.
*************************
Perhaps there are equivalents, like losing a child or being unjustly imprisoned for years, but as far as I know, this particular type of jaw/face pain (also known as atypical trigeminal neuralgia) is the only condition on Wikipedia called "the suicide disease," as sufferers find it so unbearable, and ultimately become despondent and suicidal because it's so untreatable.
In fact, that Wikipedia entry is truly the best description I've read so far of what I suffer through, and believe me, I've read plenty.
I know there are unconventional things I've yet to try to find relief, but frankly, I'm exhausted. Plus, life goes on; I need to earn money to stay afloat (disability doesn't cover my expenses), bills need to be paid, obligations must be met. And there are those days or weeks when the pain just isn't so bad, and I enjoy simply living my life. The last thing I want to do during these periods is make an appointment at that swanky pain clinic. I want to paint, or hang with friends, or buy shoes, or visit my nieces!
When things are bad, though, after so many years of this ordeal the idea of making even more appointments and telling the whole story all over again--with full knowledge that absolutely all of my previous efforts have been in vain--is just torturous. It's certainly easier to just pop pills and forget about it all for awhile--to drift off into a temporary Utopia where the darkness isn't quite so black.
I don't have any pills right now, though. Damn! I want to just check out; go watch "House" reruns and pop pills whenever House does. I want that smooth feeling to come over me that everything is going to be okay, or better, that everything is okay. I want the pain to lift just a bit (it never goes away completely), so that I can sigh and maybe take a nap.
Instead, I sit here wrapped as tight as a drum, wondering how any creator could have screwed things up so completely to have this condition even exist.
Sometimes people say to me, "Everything happens for a reason."
"Oh, really?" I respond (just in my mind, of course). "Let's hear you say that while I slice your skull with this machete."
I don't even know what I mean by that other than I'm obviously pissed and upset and sick to death of that irritating concept called "spirituality."
I suppose if I had a boyfriend or husband, my workload in finding a cure would be divided. But every responsibility of my life is on my shoulders and my shoulders alone. Normally, I actually enjoy this and rarely even think about it. But when I really need help of the more dire sort, I'm acutely aware that I'm in this by myself, and it's up to me to do it all--to seek out the treatments, make the appointments, find transportation, then follow whatever program is laid before me.
For years now, it's all been paid for with credit. Yes, money is another issue.
My friends in recovery encourage me to call someone when I'm suffering, but sometimes calling friends or family is worse because no one knows how to advise. No one has dealt with anything even close to this, and I actually feel bad for them that I can sometimes be so inconsolable. It gets frustrating for us both when every suggestion they make is something I've tried, and while this often makes me sound negative, I'm basically just reporting the facts.
Ultimately, I end up doing a faked cheerfulness before I get off the phone, just so that they don't feel so bad.
It's just way easier sometimes to sit back and start popping. Sometimes friends say, "But you could die from those pills!" Trust me--I'm not clinically depressed when I say, "Yeah? And?" The only reason I don't check out is that there's so much of the good life I've yet to live. I know it exists--I've seen it in movies.
I dunno. I gotta find some pills. This is just awful.
*************************
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